Sister Eleanor’s cry for Issy



issy photo fb

My daughter in desperation wrote below; Why no response to her nor my 6 years of appealing on a blog ??

‘I would be very grateful to those who take the time to read this

A lot of you may have caught onto the fact I have a severely Autistic sister, Isabel (Issy), 22.

Issy decided to remain at home one weekend and not return to her NAS residential care school, enforced upon her by care court application after attempts to MHA section, without any assessment at the age of 10.

After being so abused in NAS  (pulling her hair out, 48 bruises one weekend noted as ‘self-harm’, far too skinny (no period for a yr, not noted), undetected potentially fatal fecial impaction, an unexplained cauliflower ear, two bites, verbal abuse from a carer and witnessing the distress of other residents, all compiling to cause her to suffer intense physical and emotional suffering for most of her time there.

All at the cost of £177,000/yr ,paid by the LA with taxpayer money. At the age of 15 she couldn’t even write her name ( when she could at 5), brush her teeth or wipe her bottom.

Since her return, we’ve received an interminable series of ever-changing pairs of LA care and education workers visiting our house.

They’ve also let Issy down one way or another, abruptly leaving her and/ or telling her she was to go to independent living and never see mummy or daddy again.

This threat, Issy repeated herself through her daily short repetitive mantras of distress.

A particularly awful statement, considering she was then and still is suffering from PTSD, as a rational reaction to her previous treatment of care, which is furthermore exacerbated, due to her autism, that makes her innately more sensitive to nastiness anyway, especially from those she trusts, as Issy had shown that she wanted to live with her family.

As a consequence, she’s barely stepped a toe outside our house since May 2014, for fear of never returning.

To this day, we’ve had no support. No respite from 24/7 care, often endless nights, and just weekly supervision by Sheffield Health and Social Care, a private company, run for profit.

Two workers come in and never even encourage her to brush her teeth, which are rotting, nor try to take her out for walks.

If she says “go now”, (one or her common sayings). After an average of 15 minutes of unproductivity, two/ three times a week they leave

Not asking my parents and I how we are, and even being quite confrontational at times during periods of intermittent hostile silences.

Our 24/7 support allowance is £62.50/week.

Her DLA has been stopped and we’ve yet to receive PIP, where a private company funded by the NHS owning community/independent living whose providers would receive £8,000/week.

If we wish to discontinue the Health and Social Care visits, which amount to nothing no help with Issy’s basic needs, and actually make her regress, we would have to go to court, seen as the state would deem us to be interfering with Issy’s rights even though they’ve written her off as having no capacity following the MCA act anyway, and are blatantly disregarding her wishes to stay at home so much so she daren’t ever leave the house threshold.

I haven’t written this as a means to exercise my ‘cynicism’ or for scare-mongering. Nor have I given much care for the perfunctory need to preserve the dignity and privacy of my family and most significantly Issy, as might be interpreted. We are far past that point.

It has been driven by a compulsion to provide a brief glimpse that doesn’t even touch the sides into my sister’s suffering inflicted by the state and our oppression and bullying – not only to inform people but to expose what countless severely disabled individuals and their family’s suffer in this system but are overlooked and dismissed. The odd exceptional case publicised.

Through this little amount of exposure, I want to chip a little into the path to tempering the pervading state control and detrimental interference of family life for the sake of venture capitalist profit. To try and help all autistic and their families, from their daily oppression, not least our own.

I cannot coerce anyone to A) give this time of day or B) believe the entirety of what I have just written. It is the people’s choice as much as the profit makers for this flagrant breach of human rights to continue through public acquiescence and indifference.
Ultimately, this post has come about because I love my sister, and am sick of her and my family being hounded.

Thank you.’

My daughter posted this in her facebook received over 200 comments but now effectively forgotten.

we as a family are beyond fed up, but who cares ?

Billions profit from Institutions – 8 attempts to get Issy

Investment Company Omers bought Lifeways in 2012 for 207 million, UHS Cygnet in 2016 bought Cambian Adult services for 379 million.

Such is the guaranteed profit from the lifelong care of our most vulnerable,, that
All agency developmental support plans lead to the institutionalisation of the autistic/learning disabled/vulnerable.

It is the only NHS/LA funded support at 18.

The net of avaricious State harvesting of these lucrative commodities, made ever wider by the State’s definition and assessment of those that qualify.

The State’s web is honed to perfection via safeguarding, statute and all agencies.

Now under Liberty Safeguards ( Newspeak for removal to institution) at 16.

Millions will, and are being imprisoned for life without oversight, or even family contact, against their and their families wishes for profit.

All illegal under Autism Act, HRA, MHA and MCA.
Our most vulnerable are commodities- non persons – worse than slaves- rendered ‘incapable’ of any decision under the MCA

All agencies conspire in secret to this end – GPs, LAs, NHS, Care agencies, charities, companies.

Institutions, known as ‘care in the community’, but without family, are the only funded support at 18.

paid £9,000+ a week per person, £13,000 if sectioned to a mental hospital, fuel our economy, boost our GDP, at huge expense to our trillion pound deficit, and result in a life of torture and early death for our most vulnerable.

All achieved on the most audacious lie of austerity.

The State pounds by bureaucratic foot, the most loving families and society’s most vulnerable

Whilst that state, is charged and paid to support, it feeds it into private untaxed profit coffers.

Here, I describe what my family went through from years of support,

after their 16 year old vulnerable daughter had been abused for a million by the very advocate for autism- the National Autistic Society , and desperately showed she only wanted to remain with her family.

Reflect on the horror caused to that vulnerable child, the family, and the mother that writes this and the public money spent.

And the modus of gov and their agencies to feed private venture untaxed profit.

First attempt was by social services in December 2012 when Issy was 15, depressed, not eating and pooh impacted, with rotten teeth in NAS residential , under MHA section to St Andrews , Northampton but the psychiatrist, refused to section without our knowledge.

So Issy, pooh impacted fed risperidone and build up drinks might as many have died an agonising death at 15, unseen in St Andrews.

Issy refused to go back to her NAS home after her a weekend with us at 16 years old.

Without support ,we cleared her impaction, got her eating and took her out for walks.

We could get no support until we had innumerable meetings with our social worker and Reed agency, and funding was available after the NAS notice period expired on her placement .

this cost NHS/LA a quarter of £177,000 for one 4 hour babysitting of Issy in May 2013.

Issy’s NAS worker abuser and large burly male baby sat but refused to take Issy out for a walk, despite her demands, as not insured.

In June 2013 Reed support commenced, thanks to Zoe an excellent carer Issy went via bus all over Sheffield and Darbyshire put on a lot of weight and was happy.
We had tickets to watch Wimbledon so requested a weekend respite requiring more innumerable meetings and emails with Reed

Social services offered Issy a stay in what appeared to be an independent living complex apartment in the city.

Worried that Issy would think she’d never return home, be distressed in a strange environment, and stop going out, I rejected the offer,

Reed at the last moment notified us that the LA respite request had been too late to organise staff, and I decided not to go worrying Issy would be distressed left alone.

The support appeared to be unaware that I would be at home.

Reed support was a bureaucratic exercise to produce a body, some complete strangers, to cover the hours paid at huge expense -estimated at over£3,000 pounds, Reed charged 3 times the worker’s £7.50 an hour to provide them.

Here I describe it

One overnight worker, I found out later, was an experienced Social Worker paid £30 an hour for an 8 hour overnight shift- £240, costing LA £720 to Reed , a worker £7,50 costing £168.

Why this extra provision for a social worker, if not anticipated that any problem with Issy could result in a phonecall for police aid and MHA section ?

The third, and one would think most unlikely attempt, was then by an education package funded by the LA to a charity New Routes 2,

Issy had regressed – hardly read, couldn’t write,didn’t wipe her bum or brush her teeth, despite NAS paid million
Issy had refused to go into a classroom in NAS for over a year, there and now since January 2013 no attempt at educational provision, despite the LA’s duty to provide.

A teacher from the local Bents Green special needs school arrived in my kitchen and assessed Issy in August 2013.

By October, having been told Issy could not attend any local school – Bents Green, Talbot, we were offered New Routes 2

The package consisted of an assistant teacher from Bents Green , her Reed workers and New Routes manager, eventually taking Issy to a room in ad hoc provision in Sheffield, full of computers and storage and often locked.
The two four hour a week provision was factored into Reed support.

I have to add the stress caused by yet inderminable meetings with SW and education package head, who appeared disinterested in Issy’s needs,.

New Routes 2 and our social worker started to create safeguarding intervention issues.

In January 2014, I was informed by a rker, that the education workers, were meeting up in Costa Coffee each week, and being quizzed for negative comments about me, my home, and care of Issy.

When workers were in our kitchen their boss would ring asking what I was doing

In April 2014 Issy whilst having lunch out with the education workers refused to leave the cafe and eventually after hours she arrived home in the managers car rather than usual bus.

She then refused to go out and started repeating ‘you can’t live with mummy and daddy’

The page of this incident were removed from Reed Daily log book kept on our kitchen table.

Our new social worker drafted a critical assessment with many serious inaccuracies which I complained about.

A rather hostile Children in Need Meeting of 8, including a note taker was convened in our kitchen, the social worker commencing with ‘Isabel started to pull her hair out when she returned home’, when in fact she had had bald patches on arriving home which had now regrown, so quite the reverse.

She also complained Isabel was now overweight at 12 stone, up from 7 when she arrived home, including her periods restarting, and was not eating healthily.

I noticed parental consent was needed for the educational support funded to March 2015, so withdrew it, at which point New Routes manger angrily withdrew the workers at the end of the meeting midway through their shift.

Zoe, issy’s main worker arrived days later but could not get her out and refused any information on the education incident that appeared to have caused this , and left never to be seen again, a great loss for Issy.

Eventually. with the help of another worker X, we got Issy out all day in May 2014, but then she again became housebound as this worker was not sent again by Reed.

There then appeared a fourth attempt to get Issy with the help of Reed support.

A new Reed regular worker was, unknown to me, a trainee social worker, and, she asked me without reason, ’What are you going to do to keep Issy? ‘Stop her slipping when she got out of the bath, when she never had.

By September 2014, most support was by this lady, and a newly qualified social worker, who wrote a very unfair, negative, spun daily log, which was corrected and part of a formal complaint.

I was told by a worker, that one of the regular support, had refused to support Issy, at the end of September. We were told she was ill, but I was told, she knew what they were doing, and, did not want to be part of it, and, has since left social care altogether

I think a Warrior Mum’s blog post- Michelle Daly published in net on Issy 28 /9, put heat on Reed a reputable international agency,

So much so, on October 6th, Reed withdrew their extremely lucrative support, and ended their contract with LA without explanation.

The fifth apparent attempt was by a family comany, a second education package recommended by the LA, paid for by use by our direct payments,the LA funding lady met in the kitchen to inform us it was our money, jet LA chose the package and we never saw the money, nor amount paid.

They initially, messed us around for months with no support arriving when scheduled, until they seconded an LA education worker, who falsely claimed, that IB had a red mark on her stomach, and other lies, and disappeared, only a week after Issy had for the first time, put on her outside clothes, and had gone out for a walk.

I now understand why the only other company worker who appeared family stated ‘I don’t like working with education’ and revealed ‘They are rounding them up and making pin cushions of them’

The sixth attempt was when the COP knocked on our door and the next day told us Issy would be removed from our house in her MCA ‘best interests’, if we did not agree any order.

We needed support, so ‘Got Friends together’, one worker Gail, from internet
We privately paid.

But our private efforts resulted in an apparent seventh attempt to find safeguarding issues to exclude us from Issy’s life.

Gail, our only support worker, didn’t want to continue to support after only 2 weeks, no indication she was unhappy, her excuse was loss of tax credits, an unknown lady suggested by agency owner , we refused. Gail came back supporting.
We found Burton street day centre for Issy.

Plan by Social Services, to get her up,’ mentors’ to be sent into kitchen, to bring Burton Street to Issy.

But no explanation, as to how this would encourage IB out of the house, and, how they would get IB to engage with such workers.

Issy went out walking with me and photos taken by Gail put on Friends Together Facebook, were removed by the Social Services.

By April Gail had become a stepford care worker , formal with prescribed communication.

What do you drink ? How does Eleanor get on with Issy ? –
worn bath flannels removed from bathroom and she disappeared.

When we informed social worker, Gail rang had had a migraine for 2 weeks at the beginning of June 2015.

‘Friends Together’s owner informed our social worker

’ No concerns have been raised by any staff member with regards to Isabel’s choice not to engage with them and where interaction has occurred Isabel has appeared happy and contented’

But 5 months later on contacting Gail,sent a very different report by email on the day of his meeting with SHSC on the 15th October.

I spoke to Gail on Tuesday night about how she felt working with the family. She said that she Felt that Finola regularly ran interference when she was interacting with IB, that Finola was sarcastic towards her and that Finola was at her happiest when Gail was doing housework/decorating rather that working with Isabel’

A never before stated lie, which did not save Friends Together being put into special measures by the CQC.

X the lady worker who had previously managed to get Isabel out, contacted by Facebook, was then privately paid by us for care and got Issy walking 3 times round close on her first visit in August 2015.

Meetings with our social workers recommenced where our social worker denied any contact with X but could not explain why X was only available for social services meetings and on the odd occasion cared in a stepford manner for Issy .
It was stated by social worker that she, not us, was the only person who had a relationship with Issy.

She stopped attempting to take Issy out.

We decided only to employ her without social workers being in the house and she was unavailable

Issy has never been out since except for one walk up our drive.

Was all this costing millions, making huge profit and not in Issy’s ‘best interests’

All care is now prescribed for removal

No hope for removed- polypharmacy and death

The Risperidone Scandal

Written nearly 5 years ago, and this drug is still the main treatment for ASD/LD as it zombifies, to allow ever more profit from ‘care’ enforced by State.

The number of deaths it has caused in the UK is unknown. Deaths are not investigated as certified from ‘natural causes’.

From MENCAP 4 years ago 3 a day were dying.

Billions has been paid in US for its damage in court actions,

but it continues to be used in UK as we have no lawyers, experts or courts all are controlled by a State that promotes its use.

See affect on my 10 year old daughter and use as ‘treatment’ after £80,000 CAMHS assessment CENTRES,with millions NHS money spent to build assessment centres in Sheffield like Ruby Lodge CAMHS.

When will we wake up to how dangerous NHS for profit, is to us and our children.

The use of this drug is enforced in UK BY Care and MCA order .

IT costs NHS billons and causes untold torture and physical damage and death yet we can do nothing…………



The above was published by the American Federal Drug Agency in 2008.

It shows the adverse side effects, of the anti-psychotic drug risperidone, trade name risperidol, since licencing.

Well over $5 billion, in damages, and fines has been paid to plaintiffs, state, and local government agencies by the manufacturer.

Please read in link the legal actions, against Johnson &Johnson in respect to Risperidone damage.

In   the UK, we do not have an insurance based system of healthcare, so  such actions are effectively impossible.

Read here the shocking expose of history of Risperidal in USA, and effect on children.

I was unable to find similar information as obtained from FDA, from the UK Medicines & Healthcare Regulatory Agency (MHRA).

Our UK’s system of censured, patient led, ad hoc yellow card warnings, and under used coroners inquests, make it difficult to even record a drug’s adverse.

As a…

View original post 2,297 more words

Sorrento: Sant’Anna Scuola di Lingue

My daughter’s blog post on her recent two week language course and her many experiences worth a read particularly on Sorrento

Living The Art Life

Sorrento, or rather ‘Sirento’, named after the ‘Sirens’ -mythical women/bird hybrid creatures who lured sailors with their sweet song to their peril as foretold in Homer’s epic, the ‘Odyssey’. Whose neighbour city, Pompeii was destroyed by Mt Vesuvius 2,000 years ago, offers a wealth of History.

My earliest memories were in Sorrento, from my holiday there with my family when I was two. The pinocchio puppets, innumerous alleys scintillating with the glow from little stalls and shops, and simpatico Italians all imprinted on my little dawdily mind instilling in me a fondness for the place that had prompted my return at the age of 20.66424467_873526553014747_6868097338498351104_n

Recently, I attended a language course at the Sant’Anna institute which is situated in a Program_3529_Photo__d2c8relatively secluded yet still rather central speck away from a lot of the summer bussle of Sorrento, in a tranquil place known as Marina Grande.

The initial orientation meeting marked a…

View original post 1,507 more words