‘Independent Living’ –Disabled Penned for Profit

 

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If you asked anyone, where, they most wanted to live, and where, they would feel the safest, and happiest.

All would reply, if they could, within the bosom of their family.

This is why, a Private Members Bill, was put forward by Alf Morris, a Labour MP.

And despite opposition, by both Labour, and, a new Conservative government, became, the Chronically Sick and Disabled Act 1970.

It was the only, such Act in Europe, and, was heralded, the Magna Carta of the disabled.

The Act, placed a duty on Local Authorities, and NHS, to provide, in modern money, up to £164,000 per annum, for the social, and medical care, of the disabled.

If, a Local Authority, did not provide sufficient respite, house adaptations, medical equipment, care etc, parents/disabled, could  sue them,to pay for these  services.

This allowed, the disabled, to live, where they had always lived, with the friends, and family, they had known, and who had known them, since birth.

It also, prevented inadequate, unaccountable monopoly services.

Allowing families, and disabled, to obtain independent support, that fitted theirs, and the disabled’s needs.

The disabled could remain seen in the community, not, as they are now, herded in lines by chatting care workers.

Sadly, if parents found it impossible to cope, as they grew older, then, they could set up a trust fund, to pay state funds, to an independent provider, of their own choice, to care for their loved one.

But, 30 years on, under Tony Blair, the embryo of ‘Independent Living ’, was conceived, in academic publications.

Research, projected the figures, of older parents, who would be unable to cope, the disabled’s EU Right to ‘Independence’, was high jacked.

Housing away from their families became a priority for charities, LAs, and government.

https://books.google.co.uk/books?id=QY9Qp6JNL8UC&pg=PA1935&lpg=PA1935&dq=JAYNE+KNIGHT+AUTISM+MENCAP&source=bl&ots=O1ozxTtVYB&sig=2RYrzI_ELah1vdl0W6RCvTFGiYM&hl=en&sa=X&ved=0ahUKEwjEof2XjJbOAhUIIsAKHfumASQQ6AEIITAB#v=onepage&q=JAYNE%20KNIGHT%20AUTISM%20MENCAP&f=false

All disabled charities, MENCAP, SCOPE, NAS, sang in unison, that ‘most disabled’ wanted independence, and, had a right to it,

Independence’, was perfunctorily construed, as  living away from parents, in  their ‘own’ home, regardless of  how many lived in this ‘home’, and, 24 hour supervision.

And, all a disabled person’s decisions, being made by the care provider.

This has been  renamed recently to ‘community living’.

A huge, profitable, largely unaccountable market, was there,  for the taking.

In 2010/11, the largest component of local authority expenditure on residential services for people with learning disabilities was on residential care placements (£ 1.55 billion), followed by supported and other accommodation (£483 million) and nursing care (£75 million). Supporting People expenditure in 2010/11 was £149 million.

(Source: People with Learning Disabilities in England 2011

https://www.gov.uk/government/statistics/mental-health-and-learning-disabilities-statistics-monthly-report-final-feb-2015-and-provisional-mar-2015

 

 

The disabled were a goldmine, waiting to be mined.

Providers of independent living, could, not only claim, the huge amounts of money, made available from the government, under The Chronically Sick and Disabled Act, but also, the disabled’s state benefits, Disability Living Allowance, Mobility, Housing and Council tax Benefits, and Independent Living Fund.

And, better still, whilst the Local Authorities, again, on the back of cost cutting, did not provide specialist disabled care, the independent providers, were still allowed, to claim for such care, under the Act, on the basis, of the need, and severity, of each individual’s disability.

This gave a huge profit margin, at the disabled’s expense, as they received basic, non-specific care.

Worse still, the worse the disabled’s needs were made, the more, that could be claimed.

This was not a recipe for care, but persecution.

With enforcement by the Court of Protection, under the Mental Capacity Act,

‘Independent’ Living,  is now, effectively, the only option provided by Local Authorities, to a disabled adult.

in 2010/11, the largest component of local authority expenditure was on private, commissioned by LA, often enforced residential care placements (1.55 billion) for people with learning disabilities, followed by supported and other accommodation (83 million), and nursing care (75 million).

Supporting People expenditure in 2010/11 was 149 million.

(Source: People with Learning Disabilities in England 2011

https://www.gov.uk/government/statistics/mental-health-and-learning-disabilities-statistics-monthly-report-final-feb-2015-and-provisional-mar-2015

Yet, see the map above, for the statistics of those still living with parents at 35, and not independently.

The Daily Mail lead on 5/11/16 that 25% of adults live with parents.

Yet our most vulnerable, who need their family most, are removed at 18, to 24 hour surveillance, not independence.

All overnight respite, and, day centre provision has been closed, on the excuse of cost cutting.

As services for disabled adults, are diversified, into this highly lucrative, ‘independent’ living industry.

The ‘Right’ to live ‘independently’ the only independence being forceful removal from family is the only ‘right’ promoted

https://rightsinreality.wordpress.com/2015/11/19/talk-to-housing-and-support-alliance-independent-living-conference/

Who would want a right to be encaged, all  choice removed, and forcefully medicated ?

Disability charities, have found it a godsend, as a much needed, reliable source, of permanent income.

And, international venture capitalists, pension funds, are investing in this new profitable sector.

Parents, wishing to keep their beloved, disabled children at home, have found it, effectively impossible.

They can no longer sue for the support; they are entitled to under the Chronically Sick and Disabled.

As, if they could afford the lawyers, and took the risk, of the Local Authority’s legal bill, the Authority would show, they were providing such support, through this independent living provision.

The Local Authorities, are ruthlessly enforcing such provision, by enforcement under the Mental Capacity Act, accusing loving parents, of incapacity, abuse, and neglect.

These parents are, not only, refused adequate support, and respite, but accessed covertly, as if they were, parenting a normal child.

All in breach of theirs, and their child’s human rights, Equality Act,  as discriminatory, and the Autism Act 2009 guidelines.

All disabled, now, effectively, belong to the state.

A state, that allows them no choice, and, no independence.

The disabled’s life, in  independent living provision, is prescribed, controlled, watched, risk assessed, and, most of all, commercially aware.

No longer are they protected, and happy, in the bosom of their family.

They are unseen, at the mercy, of any itinerant, poorly paid zero hour carer.

And with no escape.

They cannot return home.

They are only allowed out to prescribed venues, heavily guarded.

Families contact is controlled, and often, cut out completely.

The disabled become an audit statistic,  relied upon, to pay  owners, managers, venture capitalists, and shareholders.

We do not even have figures, of the number of disabled encaged.

And this is called ‘valueing’ people.https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/250877/5086.pdf

And, there is little, if any accountability, for the providers’ extortionately expensive services, or, the misery, and death, the disabled suffer in such provision.

We can only guess at it, from reports, that three learning disabled, die  needlessly a day.

Disability charities have removed the disabled, and their family’s voices, and replaced them by meaningless propaganda, sound bites, self-preservation, and slick websites, as they put their own recycled profit interests, above their beneficiaries.

Tiny Tim, would not now, be allowed to remain in the bosom of his family, because he is worth too much.

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The Mental Capacity Act, can make anyone, a prisoner of the state.

cropped-big-brother-is-watching-1984_jpgThe Mental Capacity Act 2005, not only qualifies, as the most socially draconian Act, in modern history, but also, exceptionally, created its own court.

Why?

To purportedly protect the rights of the vulnerable.

A surprisingly laudable reason for a government.

Particularly, with no media pressure,  scandals, petitions, or campaigns, that  warranted any legislation, let alone, such a monster of oppression.

Whilst now 8 years  on,  there is huge pressure, and an urgent need to protect our vulnerable from a plethora of  scandals, Winterbourne, statistics that 3 learning disabled, die needlessly per day, and, concerned relatives, if not  excluded, resorting to spy cameras.

If, this Act were about protection, it is a catastrophic failure.

So, why was the cost and time of this Act, thought so necessary, it was pursued for years, by two politically polar governments, and implemented, despite, continual House of Lords objections?

And, why did its need, ignore the fact, that  the inherent High Court jurisdiction, Enduring  Powers of Attorneys, the doctrine of necessity, and, The Office of Public Guardian, had already,  adequately, protected the vulnerable,  for centuries.

And still do, except in the UK.

Far from protecting the vulnerable, the Act has served to encage them, and make them, far more vulnerable.

So what was, the purported reason for  the Act ?

Amazingly,  little.

A government concern, that due to the ‘unstructured’ nature of  protection, decisions, vulnerable people could make for themselves, might be being  made by others.

And, if   a person became  incapable, of making a decision, others, should be prevented from making this decisions without the vulnerable’s, considerable involvement.

The fact that today,  such an implausible respect, for an individual’s autonomy, has, through the subversive implementation of the Act, resulted in the total removal, of a vulnerable person’s autonomy, sadly, reveals the government’s real agenda.

The very concerns, the government sought to remedy, are now given flesh, by the Act.

It  is being used, not only, not to involve vulnerable in decisions  concerning them, but it also, allows LAs/ care providers, to make all the vulnerable’s decisions for life.

Incapacity’, is needed for the jurisdiction of the Court of Protection.

It is the gateway, to an individual’s  every future decision being made by the state.

Allowing a vulnerable adult, unlucky enough, to need  ‘support’,to be made a captive consumer, of any state care, without reprieve, escape, or complaint.

A person’s worst nightmare.

Every decision made for you, by strangers, whose overriding interest is profit .

And, the MCA has been drafted, to allow potentially, anyone’s, decisions to be made for them.

As it provides, any state agent, care/support worker, social worker, nurse, GP, psychologist, counsellor, alzeimer friend, even neighbour, can assess, whether an individual is capable.

If they appear to be, mentally impaired, as a result, of a non exhaustive, all embracing list- learning disability, mental health problem, brain injury, dementia, alcohol or drug misuse, effects of treatment/medication, or in fact any other illness or disability.

Not only, is the list of ‘assessors’, effectively anyone, the reasons for  ‘incapacity’ is limitless.

Already, psychiatry/mental health, is farcically extensive, having created  375 mental disorders, diagnosed on a symptoms based per se basis.

How vague, and subjective, are these extensive impairments ‘learning disability’, ‘any other illness’ and the ‘side effects of medication’ ?

The Act,  has been drafted, to allow anyone, who comes into contact with a member of the public,  to assess them, as incapable of making decisions.

Beyond, terrifying, and amazing, is the  power, it gives the state and their informers.

The ability to remove anyone’s autonomy by stealth, and deem them a non person, for profit.

See latest rulings from Mr Justice Charles on Deprivation of Liberty Orders

http://www.lawsociety.org.uk/news/press-releases/ruling-highlights-rights-of-vulnerable-people-in-deprivation-of-liberty-hearings/

Worse than  Orwell’s ‘1984’ monitors.

The state ‘us’, is given the right, to assess the ‘them’; without the ‘them’ even knowing,  and the ‘them’ are not even given the right to challenge the assessment.

And, the courts, then remove all a person’s decision making rights, by illegal, blanket, general assessments, in a secret court.

The Act, is not  protecting our ‘vulnerables’ rights, but  removing them.

And, as the state decides, who is ‘vulnerable’,  and it could be you.

 

Hell

hell_forever_and_ever

What if process ruled

And all were controlled

And all were in secret

And all were enrolled

Means  justified the end

No one trusted a friend

Words were as read

Truth tangled and dead

And all was a market

Where scavengers ate

Hungry for more from an innocent’s plate

The laws were the tools

The public the fools

The ‘us’ made ‘them’

As all became spies

And all lived in fear

Of  all their  own lies

And all were in Hell

But  thought they were wise

Lets give some false hope and promise a local bespoke package…..won’t that be funny!

More on the inhumane treatment of the disabled and autistic by the authorities/courts/state, charged, and paid to protect them.

Please read this post by Thomas Rawnsley’s Mum, Paula .

Cry, and do something about it.

This is what his parents were told by the authorities, when Thomas was removed, and  died from their ‘care’ and ‘treatment’.

In situations such as this the trust would always work closely with the family and other health care providers to ensure that an individual’s needs are met in the best way possible,” she said.

“We understand that transition into another care setting can be distressing for all involved and our staff are trained to advise on the support families can access.”

Such chillingly impersonal. paternalism.

Thomas, will have earned, at least £3,000 a week, for his independent living provider, and, over £4,000 per week, would have been being paid at the same time, to the owners of the Adult Treatment Unit.

So, for those weeks, before his death, it is likely, as the LA would have been contractually bound to continue to pay his independent living provider, over £7,000 pounds per week, was being paid out of the public purse, to contain, drug , effectively torture, and kill, a vulnerable, defenceless very young (20) adult.

So this is not about LA cuts, or lack of resources.

This is about making huge profits, out of the deemed ‘disabled’.

And why, 3 learning disabled, still die needlessly per day.

And, why there is no other option given to parents, other than enforced removal of their young vulnerable adult children to independent living,and encagement, for huge profit.

Spring

IMG_0390It is spring, the gardener is back.

He has observed Issy through the windows, and, in the garden.

I had briefly mentioned our predicament.

But as usual, he makes no enquiry of her.

I ask how his Christmas went, he returns the curtesy.

The social necessity of a favourable reply irritates.

‘It wasn’t that good’, his ‘oh’ expression, encourages me to continue,

‘ Issy might be taken; she is worth £4,000 a week’.

His head cocks slightly, but his fixed richter grin, does not falter.

I go back in.

Furious, amazed, humiliated.

No words express, invisibility.

He boasted he was a devote Christian.

‘See how they love one another’, must be reserved for the chosen.

I email the social worker, to check if they are coming, they say yes.

Both arrive, as usual on Wednesday.

They ask what day time activities we’ve arranged for Isabel.

I had emailed the only day centre provision that was closeish.

Isabel is generally in a better mood, and Angel Eyes has managed to read and colour with her.

She rushed down the path with me to pay the window cleaner, but is still reluctant to put her coat on and go out.

All is spring.

All is uncertain.

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