A Voice Crying in the wilderness…no medical attention for autistics ?

Last week, I received a two page reply to my official complaint, from the social worker’s boss, all whitewashed.

She did not notify my GP, who then, wrote a letter to me, asking me to make an appointment, because I had ‘a cough’, despite her stating  in our meeting, she had, when the GP in his letter had said ‘workers’ had.

Now the ‘cough’ was not mentioned, it was  because I ‘looked unwell’.

When, and how she knew this, as she had only meet  me once, on her visit to sort out the spying education workers 2 months before the GPs letter..

She stated, the abuse in Isabel’s residential school had, as we already knew, been discussed at Strategy Meetings.

Chaired by an Independent Safeguarding Officer,

’the outcome being that the marks, ( all 48 of them) were not thought to be non-accidental. Our Sheffield Child Protection Co- coordinator liaised fully at the time’.

No mention  of the safeguarding meeting in 2011, which had not concluded this in the circumstances as occurring just after a major restraint, few bruises ever being found normally on Issy..

And,  the minutes in 2011 noted these 48 bruises  were not  even mentioned, at Issy’s Statutory  Review Meeting, later the same day of the restraint incident, after which the body map recorded them.

So as usual, and as evidenced by Isabel’s wrecked life.

A list of important titles had ‘liaised’.

The boxes had been ticked.

The system works.

The truth is irrelevant.

Any absurdity is accepted.

All whitewashed.

I wrote a detailed reply to her letter.

As her letter concluded stage 1, I requested it go onto Stage 2 – maybe that is the ‘independent’ investigator?

How could he/she, be more important than the Strategy Meeting/Safeguarding Authority who concluded all self harm in 2013 ?

As I have found, over the past 14 years, there is no point in discussions, complaints, or, objections.

It is merely a stressful ie all the time finding the forms etc , anguish and frustration of meetings, psychological oppression/frustration of lies and getting no where.

And worse still the frustration and horror that you and your vulnerable child are completely at their mercy.

And complaints, can, it appears, be  deliberately dragged out, and, halted by court proceedings.

Process is King, and appears to be stamping relentlessly, on the face of truth, and, humanity.

Those with absolute power can do, and say, what they like, no matter how big the lie, or, poor the care.

Even if a care agency, residential school, independent living facility is closed down, which is unknown, unless by forced media disclosure, after covert surveillance, such as Winterbourne, another equally abusive institution, will replace it.

Winterbourne was the symptom, not the disease.

Last year CareFirst 24, was closed down by the UK Boarder Agency, for employing illegal immigrants- let’s not kid ourselves immigration has anything to do with the EU, or diversity, it’s just the cheapest workforce, which has nothing to do with austerity, but maximum profit.

But, whilst agency services, and workers are unaccountable, and transient, their huge profits, are real.

So much so, that venture capitalists invest their pension funds.

As is the horrendous suffering, and death of 1,200 learning disability people, who died last year.

And will continue to die needlessly.

No prosecutions, no inquests, no serious case reviews, just profit.

Isabel continues to refuse to go out, and is not eating properly, although dry at night, she appears to be deliberately weeing on the the toilet floor.

Thankfully, she has shown little real agitation, and sleeps at night, but is increasing difficult to get up, and now at 12.50pm, although awake, she is still in bed.

Due to my husband’s absence at work, he had booked workers for this week.

The workers as always, on entering ask, as they have been told to, how am I?

Again,  how do you answer that, and any negative answer could be used against you.

I brief them on Isabel, but they make no comment.

Even if I witter on about her lack of appetite, still no comment.

I have just entered the kitchen, both are sat in the chair talking, as usual, they look up with attentively, but say nothing.

For the third time this morning, I witter on self-consciously, that I’ve put some more hot water in the bath, but don’t know how to get Isabel up, am worried she might be ill, still no comment,. ( have they heard me ?).

Becoming more frustrated, I ramble, what’s the point of ringing the doctor, as no one cares, (there has been no follow up to the last 6 doctors’ visits), eventually, a worker feels forced to respond, with a ,

‘She’s just having a lie in’.

The last doctor asked,did we have a scales, and,advised we record her weight.

No more.

A strange reaction, to what appears to be a continuing tummy bug.

But, if  Issy does start to lose weight, which is inevitable, if not eating,and throwing up.

A sign of parental neglect.

This same GP, a partner in the practice had then peered intently into my face, appearing to  assess me for signs of distress, mental illness.

Any possible signs of  potential parental incapacity/ abuse.

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‘Education’ meetings.The second Education Package

Two weeks after her boss, we had our social worker in the kitchen.

She had been rebranded, barely recognisable from previous visits.

Before bombastic, be suited, with short dark hair, now be dressed, people pleasing, with long fringed, Cleopatra styled auburn locks, and, the dulcet tones of a jackanory counsellor.

I’d seen it happen before, to Issy’s residential care manager.

Again, neither the reason for meeting, nor, my complaints were referred to.

Not too many long silences, or at least, they felt less oppressive, under this new collaborative regime

She admitted our particular care agency, ‘were perhaps, not the most suitable’, and asked why we had chosen them.

But then answered her own question with, I suppose you weren’t given the choice.

And from whom could we choose, as her boss, had to approve the service.

I suggested we clear the workers out of the kitchen for a few weeks.

As they had become largely superfluous.

And, were becoming, infuriatingly stepford.

She asked, if we’d met yet, with the man coordinating Issy’s supposed ‘education package’.

We hadn’t.

She went into see Issy’s bedroom; surprisingly Issy took to her, and demanded to be tickled.

So maybe she’s not so bad.

And after all, she is only doing her job.

And that was that.

Again we did not know the purpose of her visit.

A few days later, after ‘an opportunity to meet’ email.

The second ‘education’ package  LA coordinator was in the kitchen.

A genteel cross, between a senior manager, and Jesuit priest.

He said, he had been told little about Issy.

Why not?

We had the previous education package report, care plans, children in need meeting notes, core assessments, adult services domain forms….

But what was the point in asking?.

So for the millionth time, I outlined her history.

Weary, from the proven futility of my ramblings.

Issy came in for juice several times.

The gentlemen made the right sounds, and expressions, but said, little.

And thanked us for sharing ‘our story’, which he ought to have known as Issy’s future education commissioner.

And as he already, knew  just the lady, who could help, who herself had an autistic son, and, would put her in touch.

And felt sure, she would  get Issy out of the house again.

He assured us, he was not connected to the previous education package.

Omitting to say this lady’s company’s office, was the same address, as the previous education package.

He made no comment, SEN statements no longer existed.

And fudged Issy ever attending school .

He offered a facility of a ‘lodge’ nearby, which Issy could use two days a week as a home from home, and, take walks around the area.

And asked us to visit it the next day.

He left, having spent nearly two hours in the kitchen, cleared of care workers, in anticipation.

The next day we drove up to the facility, a former care taker’s house, of the special school, which Issy was, not now, funded to attend.

We met the manager of the facility, although there appeared little to manage, as it was empty, and, within an hour, we were back in the kitchen with the care workers.

A week later, after another ‘opportunity to meet’ email, the lady he spoke of entered our kitchen.

She said the genteel man had told her little of Isabel.

Again why not, but again not asked, and again our story was repeated.

The lady was measured, and said little.

She could get 2 PAs in tomorrow, but Issy needed proper handling, with music and dance therapy.

With people who would need time to build up hers and our trust.

How one wondered?

She said, ‘it would not be cheap’.

She said, if we were agreeable, she would get back to the genteel man, to propose this, and, left after nearly two hours in the kitchen.

It would appear the government, has a duty to educate those, termed to have’ special needs’, but not  via schools.

At great expense to these children, and, their families.

And in breach of their statutory duty to educate them.

The only route for these ‘special needs’ children, was the ticked boxed nonsense of ‘independent skills’ training, provided by a feeding frenzy of packages, funded by the 73 million allotted to the LA, and then expensive agency encagement, away from their family.

Where the ‘education package’. could tick along in secret, to drugged inmates, until they are 25.