A PCP as with Issy is employed by a charity usually MENCAP, as here, but Charity paid by Social Services/NHS so PCP’s contract dependent on these funds so they pay the Piper, and it must fit the public SS/NHS remit.
Here I illustrate how – we are a desperate family in need of help here is what we got and we pay through taxes to be so targeted and invaded.
Letter sent to SHSC Trust re PCP for Issy
We were told a PCP, would be part of the CARE SERVICES AGREEMENT, but this was not mentioned at the first CSA meeting, and, the PCP only arrived at second one, without any prior notification to us .
PCP, Has made two one hour visits to our home 1/4/16-8/4 with development worker.did not see Issy, as she was asleep, and, declined to see her in the bedroom.
On first visit pcp said,
‘I don’t know any history of what has happened’.
Yet, she is to represent/ be the voice of the person- Issy in the ‘the plan’.
And more crucially PCP, did not appear to know what this plan was. Admitting she does not view care plans.
X has, after a written request to cARE SERVIVES COORINATOR stated that the plan is to get Isabel out of her home and to Burton Street for activities.
We feel therefore that this PCP should have been informed, of at least ,the crucial parts of Isabel’s history, ie that she will not leave the house, and why, is suffering from PTSD she was not, and nor did she want to discuss these matters, nor did she mention their devastating impact on Isabel in her draft report/assessment.
We have been told, by the CSA team, and the SS, that the plan, is to get Issy, out of the house, and to Burton street centre, for daytime activities, and, on request this was confirmed in writing by SHSC.
But, this plan, was not mentioned by the PCP.
And, when asked about it, she knew nothing about the plan to get Issy to Burton Street, and the activities that where available there.
Nor, of the fact, that Issy, has refused to go out walking, except, for a few occasions around the close, since April 2014, nor the reason, apparently being told by education support, that she cannot live at home.
Nor, that she refused, to go back to her NAS placement in 2013, because of her abuse there.
Nor, did the PCP, have sight of Issy’s care plan, nor knew of her activities, or interests, or severe trauma, PTSD, she is being treated for.
When we told the PCP, that all Issy’s, now previous activities, had been detailed in education, care plans, expert reports, regularly, particularly, over the past year to the CSA coordinator she demanded the names of the people this information had been given to, we duly obliged with them.
So, we did not know why PCP, was in our home asking us any question she wanted, and she was unaware of matters that were crucial to Issy, affecting her., and therefore any plan.
Except she is one of the assessments that the court has ordered, but we do not know what she was assessing.
The PCP’s questions appeared to be targeted to find insufficient parental attention, stimulation in the home, routine, interests and activities.
Rather than, as the PCP, told us, ‘To paint a picture of Issy’,
She asked specific questions, rather than really engaging with what we were saying.
For example, after we had told her, that Isabel had not been out for over a year, in answer to her question, ‘Does Issy like going out?’
Later, when we were discussing what Issy ate, she asked ,
’Did you say you used to go out for meals ?’ .
’Do you go out for meals now?’.
She then asked where does Issy eat.
A complained of social services core assessment in 2014 stated wrongly, that we eat, as a family round a table, but make Issy eat on her own in the lounge.
NHS psychiatrist in March 2015, had asked a similar question, and commented on the fact she would not like crumbs in the lounge.
This shows, that PCP, did not listen to, an incredibly important fact for Issy, that she was frightened to leave the house, and, did not enquire into why, when told, yet appeared to elude, to a false emotional abuse allegation, that we force Issy to eat alone in the sitting room, whilst we eat together in the kitchen, by asking, did she go out for meals with us, and that it was alright to eat alone, ignoring the fact that Issy before her trauma had eaten with us when this was possible.
When we pointed this out to her, she just said,
‘Well some people like to eat on their own’,
and did not follow up our reply, that Issy used to eat with us on holidays and outings, but had stopped, since her abuse by NAS and trauma.
And, one of the questions she asked was,
‘Does she have lots of new books coming in?’.
Not what types of books, or, standard of reading, or, if she still reads.
Another, ‘How important is it to Issy to have a routine?’
‘ And what would happen if it were taken away?’
Inferring her routine had been taken away, as why would she ask this question?
We then received a copy, by post, of her report written in the first person as if Issy had written it.
It is shown in bold below.
‘I like walking and can walk long distances. I have walked from our homes to Meadowhall and back, my Dad thinks its about 7 miles each way. Closer to home I have also walked in Chelsea Park, in Endcliffe Park to Forge Dam and to town. Check this. I have a good sense of direction and know where I am once I am familiar with the route. I will just link arms and walk and walk and walk, an hour is nothing to me.
This was written from information, that Issy, had even once walked once to Meadowhall with care workers, but obviously, would have stopped off for lunch, and shops on way, and that once she had walked somewhere, she did appear to know routes, as she would pull you in the direction she had previously been taken..
But this report, gives the impression that Issy, at 16, surrenders herself ‘just link arms’, and walks and walks and walks,’ an hour is nothing to me’, suggesting she has no sense of time for hours on end.
Together with,‘ and know where I am once I am familiar with the route’,
suggests Issy is walking for hours and miles, not knowing, where she is, which would be destabilising for most people, but, could be deemed, particularly abusive to an autistic, who generally likes known routes, and familiar surroundings.
And, to walk 14 miles, in less than 6 hours, would be excessive for anyone, and, conjures up images of not stopping, and enforced abusive fatigues.
We pointed all this out to PCP on her second visit and she just said,’Its really nice if someone likes to walk’.
In the past I have used public transport to get to activities.
In the past I would go swimming regularly.
Issy swam, four times in 18 months, of returning home.
I like to read this is something I will sit and do with people. In the past I would read alone, I would do it quickly then put the book down. Now I mainly do it to be with Mum and Dad. I have a collection of Ladybird books that I like. When we are reading if I don’t recognise the words, you can read them to me, I will memorise them and repeat them to you. I can also write if you say the letters phonetically.
This information was compiled from the fact, when Issy was 6/7, she could even read a book on her own, but chose not to, has not done so since..
But, preceded by,’ Now I mainly do it to be with Mum and Dad.’
Suggests, Issy, reads on her own, and, mainly now reads, as a means ‘to be’ with her Mum and Dad.
The inference being, she is so desperate, to be with her parents, she only reads, to be with them, and, this is her only means of being with them and as she no longer reads is not with them- parental neglect evidence.
We pointed this out to the PCP, on her second visit, and she merely replied, ’I was a nice thing to say that she wants to be with Mum and Dad’.
Despite the fact, it was not said by us, is not true, as Issy has always read with her Mum and /or Dad, whenever she wants, and, can be with us, whenever she wants.
I spend time watching DVD’s, I like ones like Castaway and Spiderman. When I was younger I liked ones like Bob the Builder, I would describe what was happening, commenting on things like Wendy’s earrings.
If I met you I would also comment on details about what you were wearing, your earrings or jewellery. My Mum links this with my autism and focussing on the small things, she says I am fascinated by people. In the past I’ve spent time sitting in cafes and watching as people go past.
It is not only Issy’s Mum, who links this with her autism, but, is a characteristic of certain autistic people, which is all the mother said.
It, gives the impression, that Issy, is being stereo typed by her own mother, and not being treated as an individual.
And is superfluous, and Issy herself, would not know, or think this or say it.
And, it is the only time, that the report/assessment, considers the effect of Issy’s autism on her activities, and behaviour.
My Dad says I am very intuitive about people, I make my mind up about who I like quite quickly.
When I am anxious I will ask a series of questions and expect you to give me the answer . I will ask where my Dad is, then you tell me he has gone to get fish and chips. My Mum and Dad say I know he is not doing this and is at work or something , but this is what I need to hear.I ask more questions and we might get to the actual answer or this will be enugh and I will happily move on.
I LIKE HAVING MY ARMS TICKLED .I will instigate this by walking up to you and putting my arm out. Or show my back and let you tickle that. I want you to gently tickle me up and down my arm.
I am not a fussy eater . I will eat all and everything. I like savoury things best, Gala pies, chicken pies, curry and rice, but I really like cheese and crackers. I like to drink coffee.
‘all and everything’, suggests Issy, literally is eating everything, and all, that is there, as, if she stuffs herself, and does not discern between different foods, nor, know when to stop eating.
And, that her eating/nutrition, is therefore, in no way being controlled.
What was actually said , was Issy will eat anything. Why was this not simply stated? Or left at her not being a fussy eater.
When I am in the kitchen I like things done in a certain way. I will be precise about getting the things out for a cup of coffee laying them out in the right place but ten I will want to do it as quickly as possible. I believe everything has a place and should be in it, when they are in the wrong places I will replace them and restore order. I don’t like clutter.
‘I will replace them and restore order.’
This was not said, or true.
What was said, was, Issy puts orange juice/beakers/milk back after using them, puts any rubbish in the bin, puts sponge from sink on draining board in a precise spot .
It paints a picture of a disorganised, disordered home environment, which, would be abusive to Issy, particularly as an autistic.
I have a good sense of danger in the house. I understand the risk around hot pans on the stove for example. I never do anything that would result in me being hurt.
We said that Issy has never hurt herself at home. This is spun to Issy saying,
’ I never do anything that would result in me being hurt’.
The use of ‘would’ and ‘never’, gives the impression,that Issy, thinks that nothing she does in the home, would ever, result in harm to her. Which is a dangerous assumption, particularly, dangerous, as she is autistic.
As this information has come from her parents, it also implies, that they think Issy, would never do anything, that would result in her being hurt, and shows, Issy is not being safeguarded properly.
‘My Mum says I understand everything’.
This was not said, and, again is a dangerous assumption of an autistic person, in view, of their problems with communication, and, again as it is being assumed by her parents, would mean, insufficient care, was being taken to ensure, that Issy understood matters being said to her.
‘ I am very mischievous’. This suggests Issy is always mischievous, and excessively so.
I will angle my foot to try and trip you up, then walk away laughing’.
This has been seen to be done by Issy only twice, and, the last time was 6 years ago.
This presents the behaviour as happening now and often, and, would made Issy a danger to others.
My Mum says I like slap stick humour, if you sneeze I will giggle, or if you trip up it will make me laugh .Mum says I will take the rise; I do things to get a reaction, this implies she is not getting reactions from her normal interactions, so getting insufficient attention, switch the lights off or flush the toilet too much. I also like to throw things out of the window; so much my Mum and Dad have to lock the lower ones to keep our belongings in the house. But for all this disruption my Mum would still describe me as having a brilliant sense of humour.’
This is an exaggeration, of a few incidents, that took place, now over a year ago, when Issy threw some CDs, books, photos out of her bedroom and kitchen windows. Those in her bedroom, have now been unlocked at the bottom for nearly a year, and, Issy has not thrown anything out or attempted to for a year.
It paints a picture of a constant behaviour of throwing ‘our belonging’ out of the house, ‘so much so’, that we need to permanently lock all windows, causing ‘all this disruption’. When there was little ‘disruption’, and, it only happened 3 times, and not now for over a year.
But for all this disruption my Mum would still describe me as having a brilliant sense of humour.
Suggests that Mum thinks such behaviour acceptable, and, just part of a’ brilliant sense of humour’, and has done nothing to stop it, or, given boundaries to halt major household ‘disruption’, would be still continuing if the windows were not locked.
My Mum and dad say I am quietly keeping myself to myself, or being happy and laughing.’
This is misleading, and does not take into consideration Issy’s disturbed emotional behaviour now, her PTSD, fear of leaving her home, reluctance to engage with others, and her problems during periods.
It does not mention these matters, and the most important thing that Issy wants, is to remain with her mum, dad and sister Eleanor .
It does not mention her relationship with her parents and sister, and why Issy’s main questions repeatedly are, where is Daddy and Sister Eleanor?.
It also does not consider the effect of her autism, PTSD, or her belief, that if she goes out, she will never come back, not any medical issues on Issy’s behaviour.
These matters, were not picked up on, by PCP’s second and last visit.
And, when I explained, that sometimes Issy’s behaviour changed for example, she acquired a stammer on reading, or made noises like a saw or drill, so her behaviour could change.
Her response was a complete overreaction, as she said,
‘So you can’t gauge what she is going to do, she is a very spontaneous person’.
Again spinning small matters, to produce possibly serious potential risk factors, as these are unknown.
We are therefore, very concerned, as to the real motive of the PSP engagement/assessment of Issy, as it does not appear to be, as she said to ‘paint a picture of Issy’.
Well, certainly not, as she is at the moment, and in any event Issy’s interests, activities, food, clothing, reading etc, as stated, are all matters of record, gone through now by psychologists, education, psychiatrists, social workers, care workers, courts now for years.
It would appear, from what we have stated, that the PCP wants to paint a picture of activities, interests in the past, and contrast them with her present ones, without explaining, why they are in the past, her behaviour as very disruptive, and, and she as neglected by her parents, and abused by having no routine .
We have always engaged and trusted the agencies of the state with the utmost openness, because we want to help our daughter feel better, and get her back to her old self , and going out.
Yet to date, pcp, nor anyone, has discussed how we can do this, which is what the SHSC and Social Services state is the object of their support.
I would be grateful if you could forward this to ALL CONCERNED
In the most mendacious fashion this PCP was eliciting evidence of parental neglect, lack of routine and abuse at family home.