Spring

IMG_0390It is spring, the gardener is back.

He has observed Issy through the windows, and, in the garden.

I had briefly mentioned our predicament.

But as usual, he makes no enquiry of her.

I ask how his Christmas went, he returns the curtesy.

The social necessity of a favourable reply irritates.

‘It wasn’t that good’, his ‘oh’ expression, encourages me to continue,

‘ Issy might be taken; she is worth £4,000 a week’.

His head cocks slightly, but his fixed richter grin, does not falter.

I go back in.

Furious, amazed, humiliated.

No words express, invisibility.

He boasted he was a devote Christian.

‘See how they love one another’, must be reserved for the chosen.

I email the social worker, to check if they are coming, they say yes.

Both arrive, as usual on Wednesday.

They ask what day time activities we’ve arranged for Isabel.

I had emailed the only day centre provision that was closeish.

Isabel is generally in a better mood, and Angel Eyes has managed to read and colour with her.

She rushed down the path with me to pay the window cleaner, but is still reluctant to put her coat on and go out.

All is spring.

All is uncertain.

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More Lies, to steal Issy, and cover up inadequate, spying education services .

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Beyond  fed up.

Can’t  say depressed, as it would be used against me.

I now have to try, to get Issy back to the position, she was in, before, the ‘red mark, the size of a fist’ lady, abandoned her.

And, lodge another official complaint.

And do this, inbetween, the waves of horror, and nausea, that wash over me, when I envisage Issy’s fate.

Which are even more intense, when she is near.

The latest letter, one of the many documents, I have found, almost impossible to read.

Is from, the assistant head of the LA services.

The one, who recently rang weekly, and, informed me, why the education package, fist lady and co, had disappeared.

She was the funding lady, in the kitchen, who informed us, the LA, would provide  education ( Measured Lady),with ‘our pot of money’, for ‘personal services’.

We paid handsomely, as no doubt did the public purse.

The measured lady, had said, it ‘wouldn’t be cheap’,

For what ?

4 months of meetings arranging it, a no show hardly for 2 weeks, by one PA.

And then to be spied on, lied to,  and, about, and finally accused of assaulting our daughter.

All behind our backs.

This services manager, insists, she rang the GP.

But the GP, gave the adult services social worker’s name.

The Service Manager, ( her boss),had dealt with our complaint, by choosing, ‘not to look at the ‘record’ first’.

And, then sent us a letter, not about our complaint.

But her ‘concern’, at Isabel appearing naked in the kitchen, on the way to her bath.

This funding lady’s letter, gave the reasons, why ‘education’ had disappeared.

The reason they have given is that they find Finola’s expressions of points of view and the manner that this takes place, leaves them feeling vulnerable. They believe their actions are discredited by Finola when either one of them is not in your home, they feel this is undermining and makes them anxious to be around Finola’.

What points of view? The ones on the articles, brought weekly by the Lodge Lady ?

The ones being groomed from me ?

Am I, not allowed to voice dissatisfaction/frustration, at the appalling way, Issy/we, have been treated, in my own kitchen ?

‘Vulnerable’ to what?

Most of the time, I am working in the lounge.

In what way, am I undermining them?

What ‘actions’ have they taken ?,

Other than tickle Issy, blow bubbles, and play music, alone in her bedroom, largely ignored.

Neither worker, was even given Issy’s care plan, or, apparently, any information about her.

They observe that when Finola is expressing her points of view Isabel gets distressed, she cries and rocks in her bedroom and whilst this is pointed out to Finola it does not stop the negative verbal outpouring towards all services’.

Isabel does not observe my ‘points of view’.

They are made in the kitchen with door closed, when Isabel, is in her bedroom, with  her door closed.

As this makes it impossible for them to distress Issy,   how could  it have been pointed  out to me ?

‘The personal assistants would like to have suggested to Finola on at least one occasion that this expression of frustration is halted but do not feel able to say anything to Finola which might cause further tension. They feel scared. This has led them to take the view that they no longer feel safe in the household’

If, they would like to have suggested it once, but were too scared.

How then, did they dare, to point out, my my views were upsetting Issy?

These workers, had  never mentioned my negativity, instead encouraging  it, with articles, and stories about care scandals.

You will be aware that this is a further agency expressing their concerns regarding the challenges faced in offering direct care to Isabel in the home, advising they are planning to withdraw their services’

A further agency ?.

Over 18 months, we have had some 25 different workers in the kitchen from  a single large agency.

No one, worker, or agency, had ever mentioned any ‘concerns’.

We were never given the reason, for this agency’s  withdrawal  in October last year.

In fact this very services manager had  asked us why they had withdrawn in our funding meeting in October.

And an email from our social worker, saying they had terminated their (very lucrative £50 per hour) contract.

Even she had said, they were’ not perhaps the most appropriate agency’.

The social services could not prove what they are saying.

But it appears they don’t have to.

How then could I prove this is all lies?

Other than, the fact it was totally improbable,

And, not mentioned before.

Remember this agency was paid over £100,000, £24 per hour for their services.

So, what do we have here.

A service manager, who has provided an inadequate service, is eliciting  evidence, from support staff, to show neglect, and abuse.

To cover up inadequate, spying, making up serious assault allegation, service provision, to facilitate, the removal of Isabel to earn £ 4000 per week, in secret, drugged,  abused encagement.

The evidence being;

1/ Social Services cannot support mother at home, as workers refuse to work with mother, as they are undermined, and scared.

2/ Mother is emotionally abusing Isabel, by distressing her with her opinions, and continuing to do so, in the face of this distress,even after, it has been pointed out to her.

And the  truth?

Irrelevant.

Rip off of Disabled Care and Education

Over the past two years, I have been deceived, and manipulated.

But most of all, ignorant, of the Local Authorities, and Government’s policies, for the mentally disabled.

Through my experiences, and being a lawyer, I have researched, the law, and practice, of the despicable, clandestine, ruthless policies, initiated, by our last government.

Now implemented by our present, with the help of charities, care agencies, courts, and Local Authorities.

They, not only exploit, our most vulnerable, that should, in a civilised society, be our most protected, but, use our money to do so.

So in this post, I would like to share with you, how this is happening, so at least, parents can be forewarned.

Naively, I thought what our government meant, by privatisation of welfare, was personalised budgets, where families would be provided with lists of carers.

Rather like rated.dot. Com carer, and be able to choose, and employ the right ones, with the help of an administration charity.

But I now realise, personalised budgets, were always doomed to fail, as logistically, there is no effective system, to find carers.

With a maximum of 7.50 per hour, and the LA bureaucratic red tape, the system, is no more than a sop, to real privatisation.

The term, has been hijacked, by the personalised services  money, being paid to spying support packages, over which the consumer has no control.

Our government’s privatisation, is privatised monopoly corporate care agencies, run for maximum profit , cultish, on message, employing, a sea of itinerant, zero hour workers often immigrants.

Or, small ad hoc care agencies, and education packages, on a commercially aware basis, desperate for your ‘pot of money’, paid to them, and controlled by the Local Authority.

‘Education’, has  been privatised, under EHCs, for those with special needs, after 16.

SEN statements no longer exist, replaced by ad hoc, on message public/ private partnerships, combining social care with ‘independent’ skills training to encage.

After 16, there are no longer schools.

Or respite centres, as a home from home.

Or day centres, to meet up with chums.

Do not let anyone, try to convince you this is about cost cutting.

This is about redirecting, the money, we pay in taxes, to fund our public services, into large corporate monopolies, some owned by venture capitalists, outsourcing companies, or self preservatory charities, on a ‘sustainability’ basis, recycling profits tax free ,who service the social care, and independent living industry.

It is an orchestrated rip off, not only of our taxes, but of our statutory rights.

These corporations, are basically out sourcing companies ie employment agencies, easily disposable, and unaccountable; they can rip off and disappear, and reappear, under another name.

‘Independent living’ for life, is in secret, there are no spy cameras, complaints are futile, and, the Care Quality Oversight a tick box exercise.

So social ‘care’ is the perfect business model.

Our government’s privatisation has already ripped off probation, prison and court translation service by SERCO, and soon our child protection service, and courts.

In breach of the disabled, and their families human rights to a family life, and freedom from oppression, and inhumane treatment, Carers Act, Equality Act, Autism Act, and Education Act.

But, as these rights, cannot effectively be enforced, they can be ignored.

Encagement, under the Mental Capacity Act 2005, is the biggest, and most draconian weapon.

Since August 2013, applications to the court of protection for deprivation of liberty orders by LAs, have risen over 60%, but not, the number of judges.

Who continue to complain of impossible case loads.

Courts, are effectively forced, to rubber stamp applications, relying on the presumed paternalism of the LA, that ‘independent’ 24/7 supervised living, will always be in a person’s ‘best interests’.

To maximise profit for the Local Authority,‘incapacity’ is being too liberally, and, therefore illegally applied.

It is generally accepted, that the MCA, is not doing what it was intended to do, or is it?

We have the terrible conflict of interest, that the more severe the disability, the less the capacity, and the more the need to encage, and the greater the profit from ‘care’.

Making it not in the LA’s interests, to provide adequate care, for the disabled.

As the more distressed, a vulnerable person is made, by their ‘care’, or removal from home, the more evidence, the LA get of their’ incapacity’,so its win win.

My daughter is a prime example.

Since 2013, £200,000 had been spent on her.

A million, on her 5 yr 6 month NAS home, despite her being a third of the time, at home/holiday.

Her education regressed, her teeth rotted, faeces impacted, she suffered PTSD, had had no school,nor any overnight respite away from home.

Care and education, has made my daughter, ripe for processing under the Mental Capacity Act.

SEN has been replaced by a 75 million government fund, to provide bespoke ‘education’ packages

Anyone, and everyone, can set up such packages, but will have to be in with the LA to be paid.

Their quality appears unaccountable, as the LA commission the service, it has a vested interest, in finding it fit for purpose, and would be liable, if it were not.

The parents have little say, the threat, of loss of access to their children silences them, and, complaints are futile.

Legal action, for breach of statutory duty, without legal aid and the risk of court and LA costs, is impossible.

Education provision, does not appear subject to any oversight.

My own experience of such education packages, was not good.
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We were lead to believe, that my daughter at 16, would attend a named local special needs school, and a teacher from the school assessed her.

I assumed under SEN.

A teacher from our local special needs school, attended our home in June 2013, for what was ‘termed’ an assessment of Issy.

But consisted of my filling her in, on the dire regression in her reading and writing, her one and a half million ‘special needs’ provision had produced.

She said nothing as to how, where, or, what our daughter would be taught.

I had asked, would it be in her school building, she replied not usually, inferring lack of space.
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Then,in the September’s Children in Needs Meeting, I was introduced to a man from XY, I was not told his function, and thought him a general overseer, and actually nicknaming him, the ‘umbrella man’.

At the end of this meeting, he discussed Isabel’s ‘education’, which he said would commence mid October, with an assistant teacher from the said local school, and, an existing agency care worker.

I thought Isabel was being phased into the named local special needs school,eventually attending fulltime until 18/25.

Instead, her education consisted of a twice weekly, 10.45.-3 pm, increased to 3 in January, outings.

Issy had lunch in a cafe, visits to a farm, two visits to the local school, and swimming.

The assistant teacher, showed me a picture of her classroom, and, I noticed there were computers stacked on the floor.

She provided Issy with a large cloth calendar with weather symbols, books from the local library, handcraft materials, but all had to be stored in our house, often it appeared the ‘classroom’, was not available, and locked.

I later found out, by looking at the address of the education provider’s office, that her ‘classroom’, was in fact a spare office in their headquarters.

And, a worker told me, Issy was often unhappy there, and office staff had complained of her noise.

There was no evidence of scholastic improvement, her ‘report’, stating she had acquired skills, she already had,like putting hat and coat on, carrying own bag, table manners, this package, supposedly, preparing her for her future ‘ independent’ living.

Making her even more profitable.

This ‘education’ was also used, to obtain evidence of parental incapacity, and/or neglect.

I was told, by a worker, that  the education workers,were spying on me, and discussing me in Costa coffee, after their education sessions, with their education package manager.

The education manager man asked me, ’Do you want us to continue to support Isabel ?’.

Confused I replied,’ You have a statutory duty to do so’.

Weeks later, he asked again.

I said, ‘You ’ve already asked me that’.

He said, ;Yes but you didn’t give me an answer’.

I said.’ is there any other option’.

He said, ‘He didn’t think so’.

The documentation sent, before our April Children in Need Meeting, said funding was in place until 2015 for this education package, but needed the parents’ consent.

Which, was why, he had pressed for my consent.

I withdrew my improperly implied consent, at a children in need meeting in April 2014.

The manager then took his workers, and left us without any support, or, Issy any ‘education’.

The same education package provider, has an internet site, and operates a drop in, for all parents with teenagers with behavioural problems, in confidence.

Desperate parents, reveal their problems, which, can then be used by social services, to show you cannot control and/or your parenting is abusive and/ or neglectful, and in your child’s best interests to live independently, and you  cut out of his life for ever, as an abusive/incapable/neglectful parent.

There is a conflict of interests here.

Your social worker will offer your child/ adult psychological help; this can then feed into their lack of capacity, and best interest’s reports, needed for a deprivation of liberty order.

Your social worker, will ask, as mine did, if you are depressed, anxious, and offer you psychological help, and you will be assessed.

And, as psychologists, are paid by the state, and want to continue to be paid, it is likely, their report will not be in your favour.

Depression, and anxiety, and by now, no doubt paranoia, can be easily diagnosed.

If you start suggesting illnesses, your unable to communicate child might have, they could add fabricated illness disorder, the newly named Munchausen.

Meanwhile, your on message GP, will want to examine you to ascertain present, or future health issues, that could affect parenting capacity, weight, age, diabetes, cholesterol, and, any conditions, you do actually have.

There is a similar modus, used, to obtain care orders, and as with the care courts, all is done in secret.

If you go to the media, you could be imprisoned for contempt, and, you will be gagged for life.

Where is the Cavalry ?

I post on Monday the 13th October .

Issy still in bed.

She was up most of the night.

Yesterday, she arose late, with bloody footprints all over the hall.

We felt relieved that her anguish over the past few days, had a natural cause.

It is now 9 days, since the agency staff walked out.

And, still no sign of support.

My poor husband, has to work all day on little sleep.

I am a little fearful, as these times of the month, and, so far Issy has refused her ibuferon.

The autistic mute, who wrote,‘Through The Eyes of Aliens’, describes how horrific periods were for her, all her nerve endings felt, as if, on fire.

I mention this to the social services etc, but gain little reaction,

medical help, is not part of their ‘remit’.

And GPs are many, itinerant, illusive, work by computer.

And, support is an encagement policy, for which, it would appear, my health, and, Issy’s neglect and self- harm, are the only boxes to be ticked.

The long awaited meeting with the genteel education package manager, and Measured Lady,was held last Thursday.

A funding LA manager also attended.

As usual, little of substance was said.

And, as usual, I was left wondering, why we needed yet another meeting.

The LA funding/service manager introduced herself, and, then persisted in asking why agency had withdrawn their support.

We persisted in telling her, we didn’t know.

But  omitted to ask, why, as the service manager, she didn’t know.

She explained personal services funding twice.

‘We will give you a pot of money, which you can use to support Isabel’.

I explained, I knew the mechanics, thought it preferable, to itinerant, unaccountable to us, agency support, but on going on the internet, had only managed to find, one wheelchair bound man, seeking a carer for the LA’s maximum payment of 7.50 per hour, and worried how I could find workers per se.

I  asked, why, the LA had paid our ex agency, more than 4 times this hourly rate.

But she just replied ‘I know’.

The genteel education package man, explained that he, and Measured Lady, were putting a package together, for our consideration, and, would let us have their proposals.

I  thought that was the purpose of this meeting, but thought there little  point in saying so.

It was now 3 months, since he, and the Measured lady, had become involved in Issy’s life.

And 6 months, since Issy had effectively stopped engaging with the previous, agency care package,

The Measured lady said, she had, ‘just the right person’.

I asked if she was fit, and liked walking, she replied yes, as she was a dancer.

No one asked about Issy.

Issy was up dressed, hair washed, and, wandered into the kitchen for juice, so I introduced her by name, to each of the circled throng.

She stared at them all intently, probably worried at her fate,

but, said nothing except ‘juice’.

The funding lady, must have been social worker trained, as she then asked, how Isabel had got the scratches on her arms.

I explained, we had been unable to cut her very sharp nails, due to her recent distress, and like me, she has rather dry skin, and also like me, liked nothing better than a good scratch.

But, I knew she would have been trained to note them, as self- harm, or, abuse.

I hoped for the former.

She asked no more about Issy’s eating, sleeping, or, distress.

My husband had to work away from home, and worried he may be called back, asked if some support could be put in place for Monday.

The funding lady seemed reluctant to find different agency workers, so the Measured Lady, said she would be able to get someone to come on Monday, but didn’t.

The funding lady, again described the mechanics of personalised services,  even using exactly the same words.

I replied, that in any event, the money would  be paid to the Measured lady, as it is her company, who employed the future support, and she agreed.

An hour had been spent in the kitchen, and they left.

Issy, was particularly agitated.

She was probably wondering why these, official looking people, were in the kitchen, and, so were we.

Creating a Safeguarding Issue, Patronage and ignoring Issy.

mopFriday 3rd October

It is 10 am. The now qualified social worker and regular,since April,male worker arrive.

Each worker, on arrival  asks,

’How are you?’

And, they did not disappoint.

Two such enquiries,  most days, for the past 18 months.

I  tried to pre empt/ avoid  this impersonal prescription with a spontaneous greeting-

Issy’s dressed and/or in the bath,/

‘Nothing strange or starling has happened’.

Ever hopeful, for an individualised reaction.

Ever dreading, the ritual.

But knew regardless of my reply,

‘How do you think I am ?’,

Cataclysmic’,

Issy’s been up all night ‘.

I would be ignored, and receive at best, a look of pained/irritated sympathy.

Or, at worst,  the question repeated in the kitchen.

This was  a box, that had to be ticked.

The social workers/ doctors/ etc. did the same.

My reply of ‘Cataclysmic‘ even incorporated  against me by our social worker in a  core assessment.

I’d sat in my kitchen now for months, with a Pilgrim’s Progress of workers, all with their stories.

I supported a worker’s partner’s rape trial, another’s partner’s cancer treatment,

they had shed tears.

I too had bared my heart and soul.

Voiced views on the dire state of our country, for hours, not knowing they were both, laughing, and, spying on me.

I considered them friends.

I was isolated.

I had given them clothes, Nintendo games, books, shoes, creams, bags, lent out shoes and dresses, only to have them throw hissy fits, and, never to know why, or to see them again.

I was at their mercy.

Two nice workers, had recently disappeared, and, as always, it was impossible to find out why.

I suspect, they did not want to be part of the final horror, of spy, and remove.

But, it was much worse  a betrayal, for Issy.

She still calls out, the departed’s names.

We were being processed by human beings, who themselves, were being  processed.

Anyway, back to Friday.

As I said,  the standard, how I was, but never  Issy.

I thought, I’d clear up the ringing the doctor, although, not mentioned by the social worker, who offered to ring, the day before.

I therefore, thought it best to announc, as Isabel had eaten, didn’t have a temperature, and appeared well,I wouldn’t be ringing the GP.

‘Fine’. Was her only response.

She then asked, if I wanted them to do anything.

The upstairs bathroom floor  still had urine on it, and, the floor was still dirty under Isabel’s bed ,so I asked her, if she’d mind doing these tasks.

Fearful to add, she’d had had all day yesterday to do them.

Not knowing, they would later be used, as evidence, of Issy’s unhygienic home conditions.

The social worker support, instructed the male worker, on half her rate, to clean the bathroom floor.

He duly brought the mop out.

On walking into the kitchen, I noticed she was going through the mops threds.

And remarked to me,

Finola,  you will have to buy a second mop. You can’t use the same one with faeces on from the bathroom, on the kitchen floor’.

But she could find no faeces on the mop, nor can I remember it, nor the bathroom floor ever having had faeces on it.

Taken aback by the comment and accusatory tone, I wittered on apologetically,

’Of course I would later that day’.

Then remembered, we had two mops.

And fetched the other brand new, unused one, from the same place as the other, and gave it  to her, with a,

Here you are, we have got one’.

She made no comment.

This was  the creation of a ‘safeguarding  issue’  at its best.

And, what must be what they train disability social workers in.

I felt pleased, I was able to thwart it so easily.

‘Mother using mop with faeces on, to mop the kitchen floor’.

But no doubt, they’ll find another tomorrow.

I pondered, if I now had to, daily date photo my mops, to prove  I had two and they were faeces free.

After all that, she didn’t mop the kitchen, although there from 10-4.

No one did.

I entertained them in the kitchen in the afternoon, with stories of my youth in Liverpool.

The social worker, more than half my age, said,

She loves being entertained by me’.

Another worker, said I could cook, ( neglect issue).

The trainee lady, the day before so silent and furious, had once hugged me, at length, telling me how ‘strong’ I was.

Aren’t I the lucky bunny.

And so endth another day at 4.00 pm, with as always, no comment about Isabel being still in bed.

Poor Issy……