I Smell a Rat……

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Angel Eyes is gone.

I smell a rat.

She said, she’d see me on Monday.

We’d had a great afternoon on Thursday, dying my hair.

But  her boss rang on Saturday.

Angel Eyes, couldn’t do anymore shifts, as she’d lose her tax credits .

Not even a single hour ?

Why then,was she the only worker offered.

When she and her boss arrived 5 days ago, in answer to my email?

And, why didn’t she/he, mention her tax credits, on offering her hours?

Or , she in  her long chats on Thursday.

More crucially, where do we go from here?

Only one other agency, got back.

And they too, could be nobbled.

I analyse, my conversations, with Angel Eyes.

She came on Tuesday, Wednesday, and Thursday.

I recall, she only started asking  odd questions on Thursday.

Lodge/Fist lady, had done the same, despite my garrulous outpouring of Issy information.

At the time, they had irritated, and upset me.

She had opened her arms to offer a hug

I’d asked why the lists of questions, she’d said, she wasn’t good at conversations.

I’d felt guilty.

I now, reflect on Angel Eye’s questions.

I feel like Miss Marble.

And annoyed, I am forced to be so paranoid.

But this de facto beleaguerment, is worse than fiction.

Do you like a drink?’

‘Are you frightened of Issy ?

‘All this is bound to put a strain on your relationship (with Seamus)’.

How does Issy get on with her sister Eleanor, oh, I have already asked you that one’.

All innocuous enough.

But now, indicative of a fishing brief..

I  think of the many poor homes, unable to buy  arrays of cleaning products, without space, clothes, bedding, and healthy food,surrounded by neighbours too willing to spy.

They are sitting ducks.

So Angel Eye’s boss arrived last night, to finalise the ‘package’.

He is now our ‘Measured Lady’.

I ask why our pot of money, cannot be given to us, to find support.

He blinds me with science, and stonewalling.

How can this be personalised services?

He shows me the CV a lady, sent to him in November, and emphasises, she works ‘independently‘, for an old couple.

He arranges a visit .

As usual, more time is wasted on administration, and, needless introductions, than support.

He spouts the standard tripe, of needing to find someone, we are happy with.

But, as with Measured Lady, there is no other candidate.

I don’t know what to say.

There, are the usual awkward silences.

I explain my dilemma.

But, the elephant in the room is ignored.

The lady is coming tonight.

The social  workers tomorrow,

For their weekly ‘surveillance’, as the package boss calls it.

Nice life.

Issy sleeps, and is happy.

Apparently, largely irrelevant, but a good little earner.

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More Lies, to steal Issy, and cover up inadequate, spying education services .

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Beyond  fed up.

Can’t  say depressed, as it would be used against me.

I now have to try, to get Issy back to the position, she was in, before, the ‘red mark, the size of a fist’ lady, abandoned her.

And, lodge another official complaint.

And do this, inbetween, the waves of horror, and nausea, that wash over me, when I envisage Issy’s fate.

Which are even more intense, when she is near.

The latest letter, one of the many documents, I have found, almost impossible to read.

Is from, the assistant head of the LA services.

The one, who recently rang weekly, and, informed me, why the education package, fist lady and co, had disappeared.

She was the funding lady, in the kitchen, who informed us, the LA, would provide  education ( Measured Lady),with ‘our pot of money’, for ‘personal services’.

We paid handsomely, as no doubt did the public purse.

The measured lady, had said, it ‘wouldn’t be cheap’,

For what ?

4 months of meetings arranging it, a no show hardly for 2 weeks, by one PA.

And then to be spied on, lied to,  and, about, and finally accused of assaulting our daughter.

All behind our backs.

This services manager, insists, she rang the GP.

But the GP, gave the adult services social worker’s name.

The Service Manager, ( her boss),had dealt with our complaint, by choosing, ‘not to look at the ‘record’ first’.

And, then sent us a letter, not about our complaint.

But her ‘concern’, at Isabel appearing naked in the kitchen, on the way to her bath.

This funding lady’s letter, gave the reasons, why ‘education’ had disappeared.

The reason they have given is that they find Finola’s expressions of points of view and the manner that this takes place, leaves them feeling vulnerable. They believe their actions are discredited by Finola when either one of them is not in your home, they feel this is undermining and makes them anxious to be around Finola’.

What points of view? The ones on the articles, brought weekly by the Lodge Lady ?

The ones being groomed from me ?

Am I, not allowed to voice dissatisfaction/frustration, at the appalling way, Issy/we, have been treated, in my own kitchen ?

‘Vulnerable’ to what?

Most of the time, I am working in the lounge.

In what way, am I undermining them?

What ‘actions’ have they taken ?,

Other than tickle Issy, blow bubbles, and play music, alone in her bedroom, largely ignored.

Neither worker, was even given Issy’s care plan, or, apparently, any information about her.

They observe that when Finola is expressing her points of view Isabel gets distressed, she cries and rocks in her bedroom and whilst this is pointed out to Finola it does not stop the negative verbal outpouring towards all services’.

Isabel does not observe my ‘points of view’.

They are made in the kitchen with door closed, when Isabel, is in her bedroom, with  her door closed.

As this makes it impossible for them to distress Issy,   how could  it have been pointed  out to me ?

‘The personal assistants would like to have suggested to Finola on at least one occasion that this expression of frustration is halted but do not feel able to say anything to Finola which might cause further tension. They feel scared. This has led them to take the view that they no longer feel safe in the household’

If, they would like to have suggested it once, but were too scared.

How then, did they dare, to point out, my my views were upsetting Issy?

These workers, had  never mentioned my negativity, instead encouraging  it, with articles, and stories about care scandals.

You will be aware that this is a further agency expressing their concerns regarding the challenges faced in offering direct care to Isabel in the home, advising they are planning to withdraw their services’

A further agency ?.

Over 18 months, we have had some 25 different workers in the kitchen from  a single large agency.

No one, worker, or agency, had ever mentioned any ‘concerns’.

We were never given the reason, for this agency’s  withdrawal  in October last year.

In fact this very services manager had  asked us why they had withdrawn in our funding meeting in October.

And an email from our social worker, saying they had terminated their (very lucrative £50 per hour) contract.

Even she had said, they were’ not perhaps the most appropriate agency’.

The social services could not prove what they are saying.

But it appears they don’t have to.

How then could I prove this is all lies?

Other than, the fact it was totally improbable,

And, not mentioned before.

Remember this agency was paid over £100,000, £24 per hour for their services.

So, what do we have here.

A service manager, who has provided an inadequate service, is eliciting  evidence, from support staff, to show neglect, and abuse.

To cover up inadequate, spying, making up serious assault allegation, service provision, to facilitate, the removal of Isabel to earn £ 4000 per week, in secret, drugged,  abused encagement.

The evidence being;

1/ Social Services cannot support mother at home, as workers refuse to work with mother, as they are undermined, and scared.

2/ Mother is emotionally abusing Isabel, by distressing her with her opinions, and continuing to do so, in the face of this distress,even after, it has been pointed out to her.

And the  truth?

Irrelevant.

LA Complaints Service Manager Meeting -Is the End Nigh ?

We lodged a formal complaint on the LA’s website in June.

Had two meetings, with our social worker, and, her boss.

The conclusion of which was a letter whitewashing our complaints.

I replied at length, and, asked for a stage 2 referral to the ‘independent’ investigator.

But, did not get to stage 2

Instead, in September, I received a letter from the LA  services manager,

‘I would like to take the opportunity to meet with you to discuss your complaint and to try and resolve any issues that you have’.

Two weeks ago, she arrived by black, soft- topped sports car, Porsche?, black be suited, in my kitchen.

We had managed to get Issy up, and almost in the bath, but the lady’s early arrival, spooked her, and, she retreated, naked, into her bedroom.

The lady began the meeting, by going through the complaints process,

despite my use of it, and, its presence on the internet.

And said, she had come,

to talk to some of our issues that we were still left with.’

We had been left, with all ‘ our issues’.

Physical, emotional abuse and neglect of Issy in her NAS School.

No support for the first 3 months on her returning home.

And then, no respite, no school, inadequate, spying support.

An ‘independent’ living ‘education’ package, that had traumatised Issy,

by telling her, she could not live with Mummy  and Daddy,

And resulted in her reignited PTSD, and refusal to leave the house.

My fabricated illnesses notified to GP by social services.

Incorrect, sexed up core assessments, portraying us, as abusive, neglectful, inadequate parents.

And, our support/education was now non-existent.

No support for over two months, and, an education package,6 months in the making,

Which had commenced two weeks ago, but only consisted of a PR, 2 days a week, who had hardly appeared.

The be suited lady announced, she was in our kitchen to see;

What can we do to reach a resolution?

What do you want as a good outcome from the complaints process?’ ‘What can I do to resolve your complaint ‘

‘What can we do as a service to make sure we can support you?’

Anything, as we had no support.

Surely, after nearly 2 years of meetings, core assessments, she should know what we want, and, what her services should have done, and, were now not doing ?

These, were thoughts only, as her out-pouring, was merely an explanation, of her function.

It was the usual, I speak, you speak, prescribed, communication.

But finally, the shocker,

‘I don’t know the detail. I have chosen not to look at the record’.

I felt, at this point, the need to point out, that this was a big mistake, if she, were here to investigate our complaints.

So dared to ask, Why  she had ‘chosen not to look at the record.

I wanted to come with an open agenda’.

I’ve come to listen to you as a couple, to be clear as to the outcome you want’.

After letters forms and two meetings she still did not know?

I have come to have a dialogue, with you before I can respond’.

She continued,

But a dialogue, is a two way process.

And, she had, ‘chosen not to look at the record’.

So how could her visit clarify, and resolve?

No, it was the usual.

We do all the talking. All is de novo.

All is futile.

We were expected to go through our complaints, together, with the latest ones.

All already gone through ad nauseam, with her subordinates, orally, and, in writing.

Our time, as always, wasted to justify ‘service’, and salaries.

Exasperated, we filled her in on our previous, and, only agency support,

but, trained to be ever positive, she interrupted with,
so the previous agency support worked well’.

Even our social worker, admitted, it was not ‘the most appropriate’, after Issy refused to go out.

This lady did not appear to know, it had broken down, or why,

or, even, that Issy no longer left the house with anyone.

But as per her two subordinates, in their complaints meetings,

She did know enough to suggest, ‘someone’, ‘do some work’ with Issy, to try to reassure her, she would return home, if she went out.

And, as we had already told her subordinates, obviously, this had been done by ourselves, and, several, different workers.

The team leader, in her complaints meeting, had remained silent, on the qualifications of this ‘someone’.

But our social worker had let slip, it was a psychologist.

Could this be the last piece of documentation, they needed for a deprivation of liberty order, to remove Issy from home?

When we pointed out, Issy had been traumatised, by the push into independent living.

She said,

‘So, you as parents, are now saying, at this moment in time, you don’t want her in independent living’.

It appeared, even ours, and Issy’s basic wishes, were unknown to her.

Or more likely, irrelevant.

What can I do in terms of the complaint investigation?

Continued, her rhetorical plea.

Investigate, one would assume.

After an hour of this, Issy emerged from her bedroom, opposite the kitchen, naked.

She spotted my coffee, through the kitchen glass door, came in, drank it, and retreated.

The lady asked,

Does Issy struggle to wear her clothes?’.

More exasperation.

‘No. She was just going into her bath when you arrived.’

As with the trainee social worker, a little knowledge of ‘autism’, did not go a long way.

She assumed autistics, and therefore Issy, had problems keeping their clothes on.

I explained, as I had done, on countless occasions, her bath time routine, and that she dressed herself afterwards.

But knew this was futile.

She had spotted, what she was looking for, an intervention issue.

Issy didn’t keep her clothes on, and we allowed it.

Just as her scratches, had been self-harm, or abuse, to the education funding lady.

The lady then left, saying she would respond in writing.

She did a week later, but not about our complaints, that letter, has yet, to arrive.

‘I do feel I need to raise again the issues that led to me ending our meeting earlier than anticipated, (it hadn’t) namely the fact that Isabel did come into the kitchen naked and your response to me when I asked the question if this was normal behaviour for Isabel (it wasn’t, she was getting in the bath), and if she struggled to remain clothed. I asked this question as I am aware of many young people with autism do have difficulty in wearing certain items of clothing. My question was not intended to be a criticism of your parenting, However it did concern me that neither parent attempted to encourage Isabel to dress, given there was a complete stranger in the home who had not met Isabel before and the potential impact of this upon her dignity’.

So, the LA Services Manager, charged with investigating our formal complaints, that social services, were deliberately creating evidence of abusive, and, inadequate parenting.

Had decided, our not encouraging, our autistic, upset daughter to dress, before she got into her bath, was evidence of emotional abuse, and, a protection issue.

And, the much pushed ‘work to be done on Issy’, to supposedly, get her out, was now to be enforced;

‘ I believe we need an urgent assessment of Isabel’s mental health to assist the LA in determining the best support package for Isabel and I have requested the Social Workers involved with Isabel discuss this in more detail with you so we can work together to achieve this.’

Confirming my suspicions, that the LA, were determined to assess Issy’s ‘capacity’,  which as, with our adult services assessment, and her NHS funding, was to be obtained by stealth, on a different pretext.

As, what other purpose could this ‘assessment’ serve?

Our social worker, could not find a care agency willing to support us.

So what ‘care package’, could this assessment lead to?

Only independent living, or, a mental hospital, or ATU.

A psychologist, and a psychiatrists assessments in 2012, when Issy was 7 stone, poo impacted, with two rotten teeth in her NAS school, had merely resulted in antidepressants, which made her worse.

And what would happen, if we did not allow such an ‘assessment’?

The letter continued;

’ Given the difficulties of our meeting (we were concerned that she knew nothing about our complaints, or are present lack of support, and had a naked daughter about to bathe).I would want to re-iterate that the LA are committed to working in partnership with parents and carers and our current intervention with your family is to provide appropriate support to maintain Isabel in your care, unfortunately this does not to be your beliefs are around our intervention. I would want to stress that the LA would only consider looking at a placement for a young person away from their family home if there is concern for that young person’s welfare and if parental engagement cannot be maintained.’

Plenty of choice there then….

This was a simple process, which would be completed.

Even if, it was, by the person charged with investigating our complaints.

Poor Issy, poor us.

Another photo, on yet another petition, never to laugh, or be free again, a tortured, captive cash, and pharma cow, with tortured, powerless parents.

Doomed to living hells for life.

But, what profit she would make, at least £3,500 per week, without the pharma, and therapy kickbacks.

And no one cares.

There’s a thought for Christmas……

The Love of Money…….

Since Isabel’s diagnosis, her state ‘support’, except for her  outings from May 2013 to March 2014.

Has been enforced containment in a NAS residential school £177,000 tax free for 9 months a year for 5 years,resulting in psychological, physical, educational, medical abuse, and neglect.

All was, and is, impersonal, bureaucratic standard letters, meaningless reviews with no attempt at humanity, changing stories,  covering up and lies.

Over 25 workers, have been in my kitchen.

Some daily for months, never without noice to be seen again.

Disappearing, without explanation.

I am not  allowed contact details.

How must all these itinerant ‘relationships’ affect a traumatised autistic teenager ?

We have been processed, through a ruthless, self-preservatory,  machine.

Issy has had 10 social workers, 3 independent reviewing officers, 4 speech therapists, 4 educational psychologists, 3 psychiatrists, 2 paediatricians,  1 CAFCASS Officer  and innumerable meetings, and reviews.

Which produced;

7 mouths respiridone medication, inappropriate, regressive, enforced ‘education’, 2 faecal impactions, 2 rotten teeth, a  48 bruise restraint,  PTSD, and now a refusal to leave her home.

Costing the public purse, well over a million.

Causing far far more problems, than her autism..

Had Issy been afforded proper medical treatment, education ( Brentwood the private German owned autistic school five minutes walk from home), and community support, from dedicated people, that  understood her, Issy would not be in the sorry state she is today, and, have suffered so much.

The  final straw, was an education package, telling her, she could not live with Mummy and Daddy.

This is the real scandal, and, the tragedy.

She would not have had, two faecal impactions, which both coincided with inappropriate care, one after ill- advised respite in her special needs school in 2006, the other in 2011, after a forced attendance, and a long wait at her GP’s practice, produced a meltdown, that necessitated a 48 bruise restraint.

The symptoms of these impactions,  ignored for years, and would remained so, had, it not been for our continued insistence they existed.

And our insisting our GP physically examine Issy’s stomach.

Issy’s NAS home also caused, and failed to notice her rotten molar and wisdom teeth.

And, fed an impacted child, ‘build up’ drinks which cause constipation.

We will never know, and no one will ever investigate, the permanent damage this neglect, may have caused poor Issy  physically and mentally.

And agencies/professionals refused to connect, the pain, and discomfort, of  impactions, to Isabel’s increasingly aggressive behaviour.

Instead, blaming her autism, to justify psychotic medication, an enforced 52 week inappropriate, school placement, and, a proposed 12 week CAMHS’s residential assessment, to enforce permanent psychotic medication.

This, enabled NAS, and CAMHS, to claim the maximum, from the public purse, and made Isabel’s ‘care’ easier to manage.

And off  social services books.

All was and is prescribed process in self interest and very much not in Issy’s interests.

In January 2013, had we not insisted on Issy coming home for the weekend, when her social worker said she was ‘too distressed’.

And a kind van driver, had not risked snow and ice, and, waited an extra 20 minutes, Issy would have been sent to a CAMHS Care Pathway Centre, Ruby Lodge for an assessment.

Social Services, and NAS had tried get our agreement to this for weeks.

Our permission, could then be dispensed with, by sectioning under the Mental Health Act.

To allow, £60,000 to be spent on, an illegal, as her IQ is well above 50, 12 week residential assessment.

In addition, to the £177,000, still being paid to NAS.

Issy would have been medicated with anti-psychotics for ever, despite it being licenced only, for short term severe behaviour.

This policy of sedation, chillingly promoted, in Ruby Lodge’s promotional materials, as the use of the

‘least restrictive alternative’, and,

Finding alternatives to restraint’.

With an outcome of,

A care plan that indicates the least restrictive alternative’,  ( powerful neurological suppression by anti psychotics ) to impact on ‘frequency, intensity and duration of challenging behaviour’.

Their discharge list including,

Medication/prescriptions to cover two weeks post discharge’.

Such Care Pathway centres, have been built all over the country.

Now ‘specialist hospitals’ in monopoly, enforced community living like Lifeways/ Cambian.

These centres/specialist hospitals are where Issy would be sent, if we, or the care workers were attacked, or Issy’s behaviour worsened, and we rang the police, the only option, we have ever been given by our GP, and social services.

The psychiatrist, who heads up this multimillion pound lodge complex, is no other, than the CAMHS psychiatrist, who prescribed Issy’s ‘off label’ Respiridone trial at 9, without our informed consent, as we were not told it was a trial.

She dismissed Issy’s side effects of crying, breathlessness and incontinence, as not side effects, as not on her list.

Issy had received no physical examination.

And when we had complained, we were served with a court care supervision application order.

One of side effect of anti-psychotic medication is constipation.

And at 7 stone, Issy still be being fed build-up drinks, 70 bottles were dumped in our kitchen on Issy’s return, cause constipation.

Issy’s impaction, was unacknowledged, and greatly acerbated, and now zombiefied, she would have been unable, to express her suffering, even by aggression.

It could not have been long, before she succumbed, to a long painful death, on her body filling with faeces, forcing her organs to close down.

As so many autistics have died before, unseen, unheard , no inquests, dying of ‘natural causes’, no serious case reviews,  very expensive state murders, silenced for ever.

Issy’s GP wouldn’t, and doesn’t visit residents for their £177,000 per annum.

When we complained of this, the Independent Reviewing Officer told us, it was our duty to arrange medical care at a distance of 25 miles.

We tried, but got nowhere.

A locum was prepared to visit the NAS home, but then left the practice.

One of the dedicated carers, who disappeared, before the final onslaught said, on my bemoaning enforced independent living,

‘She wouldn’t let them look after her dog, let alone her child’.

If Issy were a dog, the RSPCA would have prosecuted her state carers, yet it is the threat of care, and ‘best interests’ MCA orders, that have facilitated Issy’s abuse.

There can be no whistle blowers, and social and medical care goes unchecked, and is unaccountable.

The conflict of interest between, what is best for CAMHS, GPs and NAS,to make as much money as possible, and impose a government system  and what is in Isabel’s best interests, flaws the system.

The state, have complete control.

And, I dread the thought of Isabel’s future.

Physical medical examinations are perfunctory,  by a  nurse/practioner.

50% not even given this superficial observation, if deemed to refuse permission.

Medical conditions, and treatment are not a ‘domain’, in the adult services forms for independent/ now ‘community living’.

There is no central audit, or, control of this medication by anti- psychotic and mood enhancers.

The administration left to individual GPs and CAMH’s teams.

Administered without physical examinations.

No wonder 3 learning disabled die needlessly each day.

It is now three weeks, since the agencies workers, had a hissy fit, and the agency without reason, withdrew their contract.

And over two weeks, since the last email from our social workers, stating she had been unsuccessful in obtaining any other agency cover, again without reason.

No matter how poor, or abusive the service, the provider is paid up front, and there will be no reimbursement of the £200,000 spent on Issy since 2013, nor, the million spent before that, on her abusive NAS residential school.

Under s2 of the Chronically Sick and Disabled Persons Act 1970, £82,000 can be paid per annum for Issy’s social care, and under the Education Acts more than 50,000, even without SEN until she is 25, and some £73,000 from the NHS.

The funding for her £177,000 NAS school, split between the 3 authorities, and judging by the NHS ringing me last month, to request a home inspection for her continuing health care checklist, this is set to continue in independent living.

Yet, we, can only claim £200 in DLA and Carers Allowance per week, and personal services of 7.50 per hour and administration fee,if we could find our own staff.

Such is the huge financial incentive to encage Issy.

And  the potential for abuse and corruption.

Issy, is a huge cash cow.

And, the love of money, really is, the root of all evil.