Why are mental health patients herded to St. Andrews, in Northampton ?

Adults and children, are being, forcefully herded, under MHA section/’best interests’ MCA, from all over the UK, to St Andrews Northampton, on the pretext, of no local provision.

http://www.northampton-news-hp.co.uk/Europe-8217-s-largest-mental-health-facility/story-22905825-detail/story.html

The government policy is to phase out all NHS public mental health hospital admissions by 2017, so all will be private.

Anticipating this  multimillion pound units  were built at St Andrews to accommodate  hundreds of under 18s.

Here is a BIJ investigation into their under 18 provision of 110 beds each charging a minimum of £220,000 a year tax  free and parents forced to pay top up fees on top for basic facilities.

https://www.thebureauinvestigates.com/stories/2017-03-01/patients-at-major-mental-health-hospital-subjected-to-demeaning-conditions-say-families

St Andrews has the  largest under 18 mental facility in Europe.

Large means more efficient and therefore more profitable.

NHS England are paying this ‘charity’, £5,000, minimum, and yearly increasing, public money per week for each patient.

If under 25, more money can be claimed now under education funding.

Bi polar Sophie is a beautiful 21 year old ‘bi polar’ patient whose Mum  has a facebook and Petition to the PM for her release . Please sign.

https://www.change.org/p/rt-hon-david-cameron-mp-get-sophie-out-of-st-andrews-and-back-to-her-family?recruiter=250538761&utm_source=share_petition&utm_medium=facebook&utm_campaign=share_facebook_responsive&utm_term=mob-xs-share_petition-custom_msg

Read the sad story, of a mother miles from her 13 year old autistic daughter Maesie.

http://www.theguardian.com/society/2015/apr/09/children-mental-health-mother-campaign-daughters-side-hospital-unit#comment-50193694

Tom Costello, at 72, found himself being driven 100 miles from Hampstead, against his, and his family’s wishes, and detained illegally, for four months, because, St Andrews, was the only place, his difficulty, with the, most common form of dementia, could be contained.

A dementia spokeswoman commented, that such a patient, should be able to be treated at home.

http://www.camdennewjournal.com/news/2010/oct/%E2%80%98bring-our-tom-costello-home%E2%80%99

And, Tom would still be in St Andrews, but, for his family, and high profile.

http://www.camdennewjournal.com/news/2011/feb/tribunal-rules-tom-costellos-section-order-was-invalid-family-hope-he-may-be-able-come

Tianze, a high functioning autistic, poet, and piano player’s risperidol, was stopped at 16, when he started lactating, resulting in violent episodes.

When Tianze refused an assessment, he was forcefully removed, to Westlane Hospital Middlesbrough, 200 miles, from his home in Scotland.

He was to be sent to St Andrews, even further away, but campaigning, and publicity, appeared to have averted this move.

But, despite a tireless campaign by his parents, he was not returned to Scotland, and, they had to sell their home, and company, to live near him.

Tianze,is 18 next month, and despite a home care package, and promise of a return to the love of his family, another, adult hospital has been recommended.

http://www.fatherspledge.com/free-tianze.php

Leo Andrade-Martinez’s 17 year old son, was placed in St Andrews.

And, it took a very public, and political campaign, to move him to another more suitable hospital

http://www.huffingtonpost.co.uk/jo-worgan-/autism-and-parenting_b_5547357.html

What local provision, would be needed, for the learning disabled, self- harming, common dementia, the autistic, or, those suffering the after effects of a recent brain injury?

And how much of this behaviour is actually caused by the medication the patients are put on ?

Autism, is not a mental illness, but at most a development difference yet it has recently be placed with learning disability in the Mental Health Act.

What these people need and would cost far less is a local NHS short stay, medication, if necessary, and then to be returned home to their family, where they can be individually monitored by, an independent of, a recycled profit making cabal?

Since when, did a learning disability/autistism/head injury, allow sectioning, under the MHA, or, incapacity encagement for life under the MCA ?

And warrant, the building of Europe’s largest, 16-18 year old residential unit ?

http://www.standrewshealthcare.co.uk/our-services

Since, it was realised, huge, stable, unaccountable profit from public funds, could be made by the mental health industry.

It costs the NHS at least £5,000 per week often much more per patient, for St Andrews commissioned care, which from CQR. and inspections is understaffed.

https://finolamoss.wordpress.com/2015/08/25/how-many-deaths-in-st-andrews-northampton-who-is-accountable/

Here is a you tube video of a young autistic man sent from Spectrum to St Andrews, he describes the very painful restraints and encagement he suffered.

The National Audit Office produced a report, 4 years after the Winterbourne abuse was revealed by uncover media.

It reports,

‘The scale of the problem remains unchanged. According to the HSCIC census, there were 3,230 hospital in-patients with learning disabilities, autism and or challenging behaviour on 30 September 2014, with an average length of stay of 547 days and living an average 34.4km from home. In 2013, equivalent figures were 3,250 in-patients (though this may have been an underestimate), 542 days and 34.5km.

http://www.theguardian.com/social-care-network/2015/jan/29/winterbourne-view-two-years-on-report?CMP=share_btn_tw

Doctors take an oath, ‘to do no harm’.

Yet, those ‘treating’ patients in St Andrews, use largely unproven, unnecessary medication.

Producing, apparently, little other than sedation and greatly worsening the patients mental and physical condition and quality of life..

Side effects of medication, can cause great harm, and,result in mental illness, and even death.

The physical health of the patients is not monitored, other than a routine by nurse health check, which, if any resistance is shown, is tick boxed refused.

Even were deaths on similar medication, and symptoms on the same ward occur , these are not even discussed, or prevention taken to avoid further deaths.

https://finolamoss.wordpress.com/2015/08/19/deaths-at-st-andrews-mental-hospital-Northampton/

Long term patients, will be subject to similar health concerns, as if, they were not mentally disabled.

And, are in a far more vulnerable position, because, they cannot describe their symptoms, and, the effects of their medication.

The anguish of pain, is indistinguishable from mental disturbance.

And, often made impossible by medication.

They will be given no pain killers, and may spend years in excruciating pain.

As my daughter did, with poo up to her chest internally, treated with Risperidol.

How must those in St Andrew’s, who died in similar circumstances have suffered?

Such vulnerable patients, need extra vigilant ,medical attention, not nursing oversight, easily refused.

That is why last year a staggering 1400 learning disabled died last year, probably more this year.

Mencap dismayed by lack of progress to stop avoidable deaths of people with a learning disability

That is 3 a day.

And, at least £7,000 and up to £13,000 per week, is paid for their care, the NHS is certainly paying for it.guilty_jpg312_910284464x220

Dr Paul Lelliott, CQC’s Deputy Chief Inspector of Hospitals (lead for mental health), said:
“Overall we rated St Andrew’s Healthcare as Requires Improvement.
“Many of the children and young people admitted to St Andrew’s Healthcare have severe mental health problems and have a history of behaviour that has put themselves or others at risk. Despite that, we were surprised at the number of occasions when staff had resorted to physical restraint. The staff at St Andrew’s Healthcare must ensure that when restraint is used it is by the safest means to minimise the possibility of harm to the patient.
“St Andrew’s Healthcare has had difficulty recruiting nursing staff and many posts were vacant. It has been relying heavily on the on the use of agency and bank nurses “The service has given us assurances that it is making the necessary improvements and we have already witnessed some of these in action.
“People deserve to be treated in services which are safe, caring, effective, well-led, and responsive to their needs and this is what we look at when we carry out our inspections. We will continue to monitor this service closely and this will include further inspections.”

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The Risperidone Scandal

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The above was published by the American Federal Drug Agency in 2008.

It shows the adverse side effects, of the anti-psychotic drug risperidone, trade name risperidol, since licencing.

http://www.fda.gov/ohrms/dockets/ac/08/slides/2008-4399s1-04%20%28Risperidone%29.pdf.

Well over $5 billion, in damages, and fines has been paid to plaintiffs, state, and local government agencies by the manufacturer.

http://www.drugdangers.com/risperdal/

Please read in link the legal actions, against Johnson &Johnson in respect to Risperidone damage.

http://highline.huffingtonpost.com/miracleindustry/americas-most-admired-lawbreaker/

In   the UK, we do not have an insurance based system of healthcare, so  such actions are effectively impossible.

Read here the shocking expose of history of Risperidal in USA, and effect on children.

http://highline.huffingtonpost.com/miracleindustry/americas-most-admired-lawbreaker/chapter-2.html

I was unable to find similar information as obtained from FDA, from the UK Medicines & Healthcare Regulatory Agency (MHRA).

Our UK’s system of censured, patient led, ad hoc yellow card warnings, and under used coroners inquests, make it difficult to even record a drug’s adverse.

As a cross party UK political Mental Health Task force in 2016, advocates the medicalisation of mental ‘disorders’, now at 275 ,and risperidol or any antipsychotic is prescribed to children, here in 2018 is the latest position in USA on the corruption of child academic research and the connection to our third largest industry Pharma.

Read it and see the danger in UK under the government policies and insistence that a quarter of school children suffer a diagnosable ‘disorder’.

http://jeffreydachmd.com/defrocking-false-prophets-pediatric-psychiatry/

Physical illness and even death, also result in conditions created or contributed to by the use of Risperidone, for example chest infections and pneumonia http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3085099/

Long term autistic, and those with behavioural problems on Risperidone, are often described, as physically ill, and it is most likely that the drug is  causing this.

Just check out the side effects that could make healthy autistic/ leaning disabled/ mentally disordered, physically ill.

http://www.doublecheckmd.com/DrugDetail.do?dname=risperidone&sid=12966&view=e

Similarly, it is documented, that the drug itself, can cause psychosis and seizures .

In the UK, 2000 children, and 110 toddlers are prescribed Risperidone, despite these adverse effects and this has increased.

http://www.dailymail.co.uk/news/article-2651189/Children-young-FOUR-prescribed-antipsychotic-medications-amidst-fears-drugs-routinely-misused.

See multimillion scandal in USA, of Harvard Research  Professor who advised Johnson’ the drug manufacturer Company Executives http://www.nytimes.com/2009/03/20/us/20psych.html?_r=0

How his research could show effectiveness of Risperidone  in pre school children for ADHD, Bipolar, Psychosis.

How could anyone diagnose these disorders in 3 years olds ? And why would they want to ?

And, on what basis would they decide the treatment worked, and how could they determine the future adverse effects on toddlers?

10% of our total NHS budget is on psychiatric prescriptions.

74% of autistics, are on enforced risperidone or similar antipsychotic, despite its licence, for short term extreme behaviour, or psychosis

Some as young as 4, given this powerful chemical lobotomy/ neurological suppressive  as if  sweets with  school milk, and it is put into their fruit shoot drinks.

And ensures a ‘learning difficulty’ due to its proven effect on grey matter and brain shrinkage..

Research shows it  causes learning disability, psychosis, fits and unknown physical changes.

See comments of parents both in UK, USA and Canada

https://spectrumnews.org/news/risperidone-use-in-children-with-autism-carries-heavy-risks/

93% of Learning Disabled in institutions are routinely medicated with Risperidone or similar antipsychotics.

https://www.learningdisabilitytoday.co.uk/two_thirds_of_people_with_learning_disabilities_in_institutions_regularly_given_antipsychotic_medication_report_finds.aspx

Recent research in 2015 shows it is used to control behaviour  alone..

http://www.theguardian.com/society/2015/sep/01/antipsychotic-drugs-may-be-used-as-chemical-cosh-to-control-behaviour

And evidence, that cognitive behavioural therapy works as well as medication.

http://www.theguardian.com/science/blog/2014/mar/07/treat-schizophrenia-antipsychotics-drugs-cognitive-therapy

Children in  state care,  are given behaviour controlling drugs, mainly Risperidol, although Beverley Hughes, a former secretary of state for children, schools and families was unable to provide details of their use.

As they were “not collected centrally by the Department”. (Hansard 28/4/2009).

And are still not.

This despite 39 fatal NHS drug reports, citing the deceased, as having:

a “learning disorder or disability, behavioural disorder, autism, aspergers.” (Hansard 09/3/2010).http://www.newlawjournal.co.uk/nlj/content/disability-trap

Our MHRA is paid for by the pharmaceutical industry, and largely consists of ex pharmaceutical company experts.

And autistics will find it impossible to communicate side effects, let alone, have them acknowledged and recorded.

Only those that manifest physically, will be discoverable- drooling, restlessness, crying, poo incontinence, impaction, slowness, imbalance, stiffness of joints .

And state druggers, do not do physical examinations and care is by ad hoc, itinerant, prescribed workers.

Anti-psychotic medication is part of an accepted, enforced system of autistic care.

Which produces a huge lucrative, reliable, and increasing market,  and GP’s are now paid by interventions and prescriptions.

Parents and the autistics are given no effective choice.

If, 18 or over, the autistic is deemed ‘incapable’ of refusing treatment under the Mental Capacity Act, if under, parents are forced to medicate on threat of removal of their children by care orders.

Despite public warnings, from experts, at September 2015, this is still the position in the UK, and no one, is attempting to stop this abuse of our most vulnerable.

http://www.dailymail.co.uk/news/article-3219060/Chemical-cosh-scandal-Thousands-patients-no-history-mental-illness-needlessly-given-cocktail-anti-psychotic-drugs.html

The pharmaceutical industry is our third largest.

Profits support our economic growth, and, appear, more important, than its people commodities.

NICE guidelines, do not require a check, or even audit, of the amount, or type of drugs, used by state agencies.

And, are merely guidelines  which can and are ignored.

Prescriptions are at the discretion of individual GPs, and Children and Mental Health Service teams.

Managers of care homes are given a discretion under NICE guidelines, to administer drugs as necessary.

Regulations under the Mental Capacity Act 05 allow any clinical trial of any drug, or combination, on those deemed ‘incapable’ under the Act.

A godsend, to the pharmaceutical industry, as publication of trials, result in drug licences.

So, in this secret, silent, world of state enforced medicine, on those unable to communicate, how can side effects, even be observed, let alone, recorded?

Even when the side-effects kill.

In 2011, the privately run St Andrew’s mental hospital, in Northampton, only appear to have started investigating deaths, after 4 patients died, in less than 7 months.

And, the fourth patient’s, concerned family, instructed a lawyer.

The report to the Care Quality Commission, revealed, a recognised side-effect, of a 41, year old patient’s antipsychotic medication, a faecal impaction, had developed over many months, and, eventually forced his internal organs to shut down, and, an excruciatingly long, and painful death.

The report, had not been revealed in the first coroner’s inquest.

The coroner found systemic failings, contributed to the death, and the hospital’s failure to complete a physical examination, was a “missed opportunity”.

A physical examination, is basic medical care, of any patient.

But absolutely crucial, if you have a patient kept continually on high dosage antipsychotics, who is unable to communicate.

And, you are supposed to be ‘treating’, for a payment of £4,500 per week, tax free.

It is not just, a ‘missed opportunity’.

What is now being done in St Andrews, to avoid future deaths, of their 600 patients, detained under the Mental Health Act, worth 2.5 million per week, tax free?

: “Staff dealing with patients who are taking high-dose antipsychotics, polypharmacy [multiple medication] and in particular clozapine should be familiar with the side-effect profile and be alert to the possibility of a deterioration in physical health that may indicate a potentially serious or life-threatening adverse reaction or side-effect.”

How would such ‘staff’ notice ‘deterioration’, in heavily sedated, bed bound, mentally disabled patients?

With 4 deaths in 7 months, and the lives of 600, at stake, the very least the CQC should have done, was to make frequent medical assessments, mandatory.

The reason for these deaths, would not have, been discovered, or reached the media, had the deceased, not had a concerned family, able to instruct a lawyer.

Under the Mental Capacity Act, as opposed to the Mental Health Act Local Authorities can, and often do, stop all family contact.

The Court of Protection gags all information of the deaths or services of the adults under its protection via the MCA.

Why, in any event, is this drugged encagement, deemed ‘medical’ treatment?

Why are its providers, allowed to charge such extortionate amounts from the public purse, tax free?

And why, are these vulnerable, people, forced to live as tortured cash, and pharma cows for life?

In 2008, a large number of yellow card warnings, cited risperidone, as cause of death in the autistic, and learning disabled.

Today, with reports of 3 a day dying, this must now be far more.

In 2007, the only treatment offered for my daughter by the NHS, was risperidone.

The obvious reasons for her aggression, and unhappiness,a faecal impaction, and inappropriate school, deliberately ignored.

In 2007, I complained to CAMHS, of my then 10 year old daughters side effects, crying, incontinence, breathlessness, black rings under her eyes.

CAMHS informed, they could not have been caused by her risperidone, because they were not on their list of side effects.

On the back of such trials CAMHS assessment centres were built throughout UK providing 12 week assessment ‘pathways’ that only resulted in antipsychotic medication.Termed in literature as ‘control without restraint’.

My daughters unhappiness in her NAS residential school, and a second impaction, were then ignored again in 2012.

Despite, her impaction 3 years earlier, her aggression and a 48 bruise restraint trigger.

And her parents, spending over a year, flagging these up, to NAS, CAMHS, safeguarding authorities, and an independent reviewing officer, and demanding her physical examination.

Issy was not physically examined for an impaction.

Instead she was given anti- depressants, and build up drinks, both, known to cause constipation.

Issy’s PTSD, evidenced by distress, and, repeating the abusive comments of NAS carers, at that time in 2012  was used by CAMHS, NAS, and social services, as evidence of psychosis, to justify a 112 week assessment in a CAMHS care pathway centre, and permanent respiridone medication.

This horror would have happened, had Issy not herself, had enough, and been 16,  too old for a care order.

And, as, not a danger to herself, or others, difficult to section under the MHA, without our consent.

Refused to return to her NAS ‘home’, where, had she, it could not have been long, before she succumbed, to a long and painful death.

But CAMHS, by then, would have pocketed £60,000, and NAS, dependent upon how long Issy lived, £3,500 per week, tax free.

Thankfully, Issy saved her own life.

And,once home, we had her physically examined by our GP, and, cleared her denied impaction, and, removed two undetected, rotten teeth.

Her aggression ceased, except for the PTSD.

The figures in the FDA table above, speak for themselves.

74% of the adults, and 79% of the children affected, died, or were hospitalised, with life threatening reactions, some left permanently damaged.

With 7.8 million prescriptions of risperidol in 2007-8, the horror of the human suffering, these statistics, and Jansen’s 1. 72 billion civil claim settlements represent, is difficult to comprehend.

And for what, expensive chemical lobotomy sedation, with no long term gains?

Despite these shocking adverse effects being revealed by the Federal Drug Agency, the death, and, suffering wrought, by spin, incentives, and high octane sales, grew worse, not better.

Up until 2007, the Federal Drugs Agency had repeatedly warned Jansen against promoting Risperidone for children.

But were ignored.

Instead Jansen instructed its sales representatives to call on child psychiatrists, and children’s mental health facilities to aggressively market Risperdal, as safe and effective, for the symptoms of various childhood disorders such as attention deficit hyperactivity disorder, oppositional defiant disorder, conduct disorders, obsessive compulsive disorder, and autism.

And, then in 2007, the FDA, itself, despite the known side effects, approved risperidol, as effective, and reasonably safe for the studied indications in pediatric patients.

And thus ensured even more deaths and permanent damage as shown in the table above dated to 2008..

Eventually leading in 2013, to Johnson and Johnson, paying out 2.2 billon dollars, in one of the nation’s largest healthcare fraud settlements in U.S. history, for inter alia, the promotion for uses not approved as safe and effective, and payment of kickbacks to physicians, and to the nation’s largest care pharmacy provider.

http://www.justice.gov/opa/pr/johnson-johnson-pay-more-22-billion-resolve-criminal-and-civil-investigations

Think of the billions, that should have been paid out to parents in the UK, but our NHS system precludes this from happening.

The exposure of this fraud, was  forced by private health insurance company claims, not existing in our publically funded but now privatised  NHS.

Unlike the USA, we have no insurance companies acting for us, protecting themselves from claims of those medicated.

20 years ago the USA started, psychiatric drugging of their children, and now one in every 15 enters adulthood, with a serious mental illness.

And half of all those in foster care, are now on prescriptive medicines.

There is research, and anecdotal evidence from carers, that the use of respiridone can itself, cause psychosisin the autistic, justifying its continued use.

So the drug causes  a serious mental disorder you did not have, as an autistic, learning  disabled, ADHD, bipolar person.

In 2013, Janssen-Cilag, applied to the MHRA for a license for risperidone use for ‘irritability in autism’.

But then, the company refused to accept an extremely lucrative UK licence, as it was conditional upon safety monitoring.

The business risk, of monitoring safety, which should, in any event, be, the paramount concern, outweighed, a lucrative UK licence.

Yet, care pathway CAMHS assessment centres, have been expensively built, throughout the country.

They are the only option for the under 16 autistics, mentally disordered/disabled with behavioural problems.

So what is the National Autistic Society’s  advice, on the use of Risperidol ?

NAS website proclaims,

’There is a significant amount of research evidence to suggest that risperidone may be beneficial for the treatment of various problems faced by people with autism, including irritability, repetition and hyperactivity.’

Risperidone, is not licensed for irritability, repetition, or hyperactivity.

And, the NAS website link, into their Research Centre, contains little, or, no evidential support for NAS recommendation of Risperidone as the main/only treatment for autism, let alone a significant amount of research.

Even after 2008, when the European harmonisation of indicators of side effects, restricted its licence, to short term sytomatic treatment for persistent aggression.

Its long term use in children under 18, even for schizophrenia, or bipolar disorder, is not licensed.

There is not, a ‘significant amount of research evidence’, quite the reverse, two recent studies warn of the serious side-effects, http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4074627/.

Studies reported in the Lancet in 2008, show little effect on aggression over a placebo http://www.psychiatrictimes.com/articles/antipsychotic-use-questioned-developmentally-disabled

The risk of sudden heart failure, has already resulted in the black boxing of the drug, for the old http://www.drugdangers.com/risperdal/black-box-warning.htm.

Evidence from relatives however shows that similar antipsychotics and even Risperidone are still regularly administered in care homes for the elderly.

We must legislate for such a warning and the end of the standard use of this and other antipsychotics, on our young, most vulnerable, and, least in need of such medication.

NHS’s largest spend is n drugs for the central nervous system– mental health with a staggering £1.95 billion in 2011, the 0.1% ‘fall’ spin is due to removal of two patents.

http://www.pharmafile.com/news/172081/nhs-spending-drugs-fell-2011

 

 

 

 

The Love of Money…….

Since Isabel’s diagnosis, her state ‘support’, except for her  outings from May 2013 to March 2014.

Has been enforced containment in a NAS residential school £177,000 tax free for 9 months a year for 5 years,resulting in psychological, physical, educational, medical abuse, and neglect.

All was, and is, impersonal, bureaucratic standard letters, meaningless reviews with no attempt at humanity, changing stories,  covering up and lies.

Over 25 workers, have been in my kitchen.

Some daily for months, never without noice to be seen again.

Disappearing, without explanation.

I am not  allowed contact details.

How must all these itinerant ‘relationships’ affect a traumatised autistic teenager ?

We have been processed, through a ruthless, self-preservatory,  machine.

Issy has had 10 social workers, 3 independent reviewing officers, 4 speech therapists, 4 educational psychologists, 3 psychiatrists, 2 paediatricians,  1 CAFCASS Officer  and innumerable meetings, and reviews.

Which produced;

7 mouths respiridone medication, inappropriate, regressive, enforced ‘education’, 2 faecal impactions, 2 rotten teeth, a  48 bruise restraint,  PTSD, and now a refusal to leave her home.

Costing the public purse, well over a million.

Causing far far more problems, than her autism..

Had Issy been afforded proper medical treatment, education ( Brentwood the private German owned autistic school five minutes walk from home), and community support, from dedicated people, that  understood her, Issy would not be in the sorry state she is today, and, have suffered so much.

The  final straw, was an education package, telling her, she could not live with Mummy and Daddy.

This is the real scandal, and, the tragedy.

She would not have had, two faecal impactions, which both coincided with inappropriate care, one after ill- advised respite in her special needs school in 2006, the other in 2011, after a forced attendance, and a long wait at her GP’s practice, produced a meltdown, that necessitated a 48 bruise restraint.

The symptoms of these impactions,  ignored for years, and would remained so, had, it not been for our continued insistence they existed.

And our insisting our GP physically examine Issy’s stomach.

Issy’s NAS home also caused, and failed to notice her rotten molar and wisdom teeth.

And, fed an impacted child, ‘build up’ drinks which cause constipation.

We will never know, and no one will ever investigate, the permanent damage this neglect, may have caused poor Issy  physically and mentally.

And agencies/professionals refused to connect, the pain, and discomfort, of  impactions, to Isabel’s increasingly aggressive behaviour.

Instead, blaming her autism, to justify psychotic medication, an enforced 52 week inappropriate, school placement, and, a proposed 12 week CAMHS’s residential assessment, to enforce permanent psychotic medication.

This, enabled NAS, and CAMHS, to claim the maximum, from the public purse, and made Isabel’s ‘care’ easier to manage.

And off  social services books.

All was and is prescribed process in self interest and very much not in Issy’s interests.

In January 2013, had we not insisted on Issy coming home for the weekend, when her social worker said she was ‘too distressed’.

And a kind van driver, had not risked snow and ice, and, waited an extra 20 minutes, Issy would have been sent to a CAMHS Care Pathway Centre, Ruby Lodge for an assessment.

Social Services, and NAS had tried get our agreement to this for weeks.

Our permission, could then be dispensed with, by sectioning under the Mental Health Act.

To allow, £60,000 to be spent on, an illegal, as her IQ is well above 50, 12 week residential assessment.

In addition, to the £177,000, still being paid to NAS.

Issy would have been medicated with anti-psychotics for ever, despite it being licenced only, for short term severe behaviour.

This policy of sedation, chillingly promoted, in Ruby Lodge’s promotional materials, as the use of the

‘least restrictive alternative’, and,

Finding alternatives to restraint’.

With an outcome of,

A care plan that indicates the least restrictive alternative’,  ( powerful neurological suppression by anti psychotics ) to impact on ‘frequency, intensity and duration of challenging behaviour’.

Their discharge list including,

Medication/prescriptions to cover two weeks post discharge’.

Such Care Pathway centres, have been built all over the country.

Now ‘specialist hospitals’ in monopoly, enforced community living like Lifeways/ Cambian.

These centres/specialist hospitals are where Issy would be sent, if we, or the care workers were attacked, or Issy’s behaviour worsened, and we rang the police, the only option, we have ever been given by our GP, and social services.

The psychiatrist, who heads up this multimillion pound lodge complex, is no other, than the CAMHS psychiatrist, who prescribed Issy’s ‘off label’ Respiridone trial at 9, without our informed consent, as we were not told it was a trial.

She dismissed Issy’s side effects of crying, breathlessness and incontinence, as not side effects, as not on her list.

Issy had received no physical examination.

And when we had complained, we were served with a court care supervision application order.

One of side effect of anti-psychotic medication is constipation.

And at 7 stone, Issy still be being fed build-up drinks, 70 bottles were dumped in our kitchen on Issy’s return, cause constipation.

Issy’s impaction, was unacknowledged, and greatly acerbated, and now zombiefied, she would have been unable, to express her suffering, even by aggression.

It could not have been long, before she succumbed, to a long painful death, on her body filling with faeces, forcing her organs to close down.

As so many autistics have died before, unseen, unheard , no inquests, dying of ‘natural causes’, no serious case reviews,  very expensive state murders, silenced for ever.

Issy’s GP wouldn’t, and doesn’t visit residents for their £177,000 per annum.

When we complained of this, the Independent Reviewing Officer told us, it was our duty to arrange medical care at a distance of 25 miles.

We tried, but got nowhere.

A locum was prepared to visit the NAS home, but then left the practice.

One of the dedicated carers, who disappeared, before the final onslaught said, on my bemoaning enforced independent living,

‘She wouldn’t let them look after her dog, let alone her child’.

If Issy were a dog, the RSPCA would have prosecuted her state carers, yet it is the threat of care, and ‘best interests’ MCA orders, that have facilitated Issy’s abuse.

There can be no whistle blowers, and social and medical care goes unchecked, and is unaccountable.

The conflict of interest between, what is best for CAMHS, GPs and NAS,to make as much money as possible, and impose a government system  and what is in Isabel’s best interests, flaws the system.

The state, have complete control.

And, I dread the thought of Isabel’s future.

Physical medical examinations are perfunctory,  by a  nurse/practioner.

50% not even given this superficial observation, if deemed to refuse permission.

Medical conditions, and treatment are not a ‘domain’, in the adult services forms for independent/ now ‘community living’.

There is no central audit, or, control of this medication by anti- psychotic and mood enhancers.

The administration left to individual GPs and CAMH’s teams.

Administered without physical examinations.

No wonder 3 learning disabled die needlessly each day.

It is now three weeks, since the agencies workers, had a hissy fit, and the agency without reason, withdrew their contract.

And over two weeks, since the last email from our social workers, stating she had been unsuccessful in obtaining any other agency cover, again without reason.

No matter how poor, or abusive the service, the provider is paid up front, and there will be no reimbursement of the £200,000 spent on Issy since 2013, nor, the million spent before that, on her abusive NAS residential school.

Under s2 of the Chronically Sick and Disabled Persons Act 1970, £82,000 can be paid per annum for Issy’s social care, and under the Education Acts more than 50,000, even without SEN until she is 25, and some £73,000 from the NHS.

The funding for her £177,000 NAS school, split between the 3 authorities, and judging by the NHS ringing me last month, to request a home inspection for her continuing health care checklist, this is set to continue in independent living.

Yet, we, can only claim £200 in DLA and Carers Allowance per week, and personal services of 7.50 per hour and administration fee,if we could find our own staff.

Such is the huge financial incentive to encage Issy.

And  the potential for abuse and corruption.

Issy, is a huge cash cow.

And, the love of money, really is, the root of all evil.