Rip off social care.. the plight of the disabled family.

ghost

Friday 6th March

All is very bizarre,

All is very dire.

We, as always, are kept in the dark, until, whatever happens, happens.

As you can imagine, in between my waves of nausea, and caring for poor Issy, I have been kept, very busy, coping with officialdom.

I await the arrival of the other lady from the agency, who attends the social services’ weekly ‘surveillances’.

We had our 5 th ‘surveillance’, with our 2 social workers, two days ago, the sixth, next week, is the psychologist’s visit, to declare Issy a vegetable, and, observe her emotional state, and, no doubt, ours.

We are not told, nor dare ask, not that any definitive answer would be given, how long the ‘surveillances’ go on for.

It is now 11. 00 am, the lady was due at 10. 00am, so I assume, she is not coming.

She didn’t.

We have no timetable of hours.

Angel Eyes , has supported for three weeks, from 10-4 Monday, 10-3 Thursday.

We received an invoice, from the agency, for £710.50 for 50.75 hours support for February, at £14 per hour, yet Angel Eyes, is paid £8 per hour, and, no traveling expenses.

And, has to put her time sheets  online.

She also, appears, to organise support, and, inform us.

Personal ( direct payment ?) services, the basis, I assumed, this agency was paid on, allows £7.50 per hour, and a £30 per month administrative fee.

A little over half, of the agency invoice.

Adult services wouldn’t pay the £710.50, as the agency, is not approved by them

But, as the LA pay, are the source of all future lucrative, reliable business,and the piper that calls the tune.

The agency boss, assured us, he could have, our ‘pot of money’, held by the previous education package, (‘fist lady’ and co, no show), transferred over to his company.

Remember, the only alternative support, we were offered, was  ’ Fist Lady’, and,  new friend……

So, what can we do to be reimbursed this, and future support?

Sue the Local Authority, if we can find  the forms, pay the court fee, cope with the hassle, -service, posting etc, and  pay for the extra support, to attend court, and risk the LA’s legal costs, if we lose, which would be more, than the £720.

Courts are now profit making, and provide no legal advice, just an expensive, time consuming answering machine  service.

We have already paid out, £900 on officialdom.

No, we have no law, as, it cannot be enforced.

And complaints mechanisms are shut down on a court application.

So are living in the wild  west.

Just a reminder; the new agency support, is in lieu of Issy’s education, social care, respite, and NHS care.

Another reminder; we have had no overnight respite, other than, the three nights blogged in July 2014, and 3 evenings, in over 2 years.

The adult services lady told us, the insisted on, by social services agency  support, of 2 workers in the kitchen for  7 months, was to ‘interact’ with Isabel, as she fleetingly appeared in the kitchen for juice and food, and not to help me with cleaning  or even Issy’s personal care.

No one  knows, the role ‘support’ has, is it education, personal care, respite ?

Nor indeed, if they will turn up, or, leave, never, to be seen again.

Nor, more crucially,what the lies/spin, they report back to social services.

Do note, under the Chronically Sick and Disabled Act 1981, up to £82,000, can be claimed, legally, just for Isabel’s social care, and,a similar amount, from the NHS.

If Issy is in residential state care  over £4,000 will be paid to her private provider.

Hence, the push for Issy’s independent, away from family living, so this statutory entitlement,  in addition to  her benefits- housing, mobility, DLA, ILF, CA,can be claimed.

Clearly venture capitalists, have realised the autistic are a gold mine.

But has, or will, all this public money, help Issy ?

It hasn’t so far.

In fact it has caused her problems.

She is  still suffering, reignited post traumatic disorder, from her abuse in NAS care, exacerbated, by the fear of leaving her home, and, not returning, created by her first ‘education’ package, who informed her, she could not live with Mummy and Daddy.

As l write , Issy is echoing the words of the same NAS key worker, in the worker’s actual voice, replete with Yorkshire vowels, and, sneer.

Issy must have said to her, ‘Where is Mummy and Daddy?’,

the worker repeats this question, as Issy echoes, in the workers mocking voice,

‘Where’s Mummy and Daddy’, followed by a bellow of,

They’re not interested’.

What has been done about this abuse?

Nothing, as denied and usefully to justify antipsychotic medication, interpreted, as Issy  hearing voices.

Her 48 bruises in NAS residential school we declared and recorded for all time as self harm.

A National Autistic Society  claiming  £ 60,000 per annum, up until 24/5/2013, from the NHS, according to an NHS letter to me, despite the fact Isabel returned home, on the 29/1/2013, where she has never received any NHS care.

In addition, a further £60,000, for her education, as education and NHS paid 2/3rds of the £177,000,  ‘tax free’ per annum, paid to the National Autistic Society School as a charity.

There was no deduction the third of the year Issy was with us.

We paid NAS pocket money, and towards clothes.

All paid until May 2013, three and a half months, after Isabel returned home on 29 the January .

So much for cost cutting, value for money, and helping the disabled, and their family.

During these years, we were paid £20 per week Disability Living Allowance.

And still only this amount, for 4 months after Isabel had returned to live at home.

Isabel now receives £125 ( reduced to£105) DLA, and I receive £77 carer’s allowance ( reduced to £62.50p), no free nappies, no beds, no nothing….. Just the privilege now, of paying, through the nose,  for agency care.

Here are the statistics of number of hours of unpaid care by family.http://www.carersuk.org/news-and-campaigns/press-releases/facts-and-figures

Why can family carers not even claim any of their time caring, and worse still any  LA support is deducted from the disabled’s DLA.

Who’d  want to be a disabled family in this country, think of our plight, when ‘Pudsey Bear’ and ‘Children in Need’ come begging.

The door bell rings.

My heart leaps.

It’s difficult not to be paranoid, when you are secretly and silently surrounded.

But it’s just the nice post lady, a kind, familiar face.

And my fifth letter, 4 from the NHS hospital, and 1 personal one from the GP, about my failure to attend a Diabetic Eye Screening Appointment.

I have not got diabetes; even my 2 GP results 2 years ago were insufficiently raised.

I have no symptoms, but what does that matter.

Truth is irrelevant.

The box has been ticked.

Issy  in nursery

Standard Capacity Assessments, Stephen Hawking would fail, without his box.

The mental health industry is awash with captive consumers, who have never even engaged with their capacity assessment under the Mental Capacity Act.

This is illegal but this is how it happens.

Let us explore, what happens, on the day your loved one, is declared effectively, a vegetable and loses his right to make any decision. for the rest of his life.

The psychologist/ assessor, the MCA does not stipulate who can assess capacity it appears anyone can, will attend the autistic and or learning disabled young adult or confused granny.

And, most likely be ignored.

The autistic may take an interest in their name, name tag, earrings, lipstick, pen, but then go back to their DVD, computer, or, just want juice.

The assessor may say words to the effect,

I have come to see whether, or not you want to represent yourself in court, so that your best interests/ what is best for you in the future, can be decided by an important person, called a judge’.

The first decision, an autistic, learning disabled or granny must be found ‘incapable’ of making.

The autistic will remain unresponsive with blank eyes, that hide so much, as would the author of, ‘Through The Eyes of Aliens’ a highly intelligent, mute autistic.

Who, most likely could be found ‘incapable’ had she not written an academic book.

By now, the vulnerable person, who rarely sees people will be feeling threatened by a stranger in his personal space asking him a question, which means little to a non- autistic.

He will want to be alone to comfort himself in the autistic world, where he alone resides.

So he will tell him to go away, get out of his room and become agitated.

The assessor will leave as his training is ever  risk  averse and he knows nothing, of this particular autistic’s behaviour or habits.

What will happen then?

The MCA Code of Practice provides;

4.57 There may be circumstances in which a person whose capacity is in doubt refuses to undergo an assessment of capacity or refuses to be examined by a doctor or other professional.

In these circumstances, it might help to explain to someone refusing an assessment, why it is needed, and  the consequences of refusal.

But threats, or attempts to force the person to agree to an assessment are not acceptable..

No one can force an assessment, unless, there are serious concerns about mental health, and the Mental Health Act can be invoked, as he is a danger to himself, or others’.

As by s1 MCA and the common law a person is capable and has autonomy over what happens to him.

But here is the shocker…

A person can be assessed as lacking capacity to refuse or agree to a capacity test.

As 4.58 Code of Practice provides, 

  ‘If the person lacks capacity to agree or refuse, the assessment can normally go ahead, as long as the person does not object to the assessment, and it is in their best interests’.

But how, is it possible for a person, to lack capacity to agree or refuse  an assessment but still  have sufficient capacity to object to the same assessment ?

Isn’t ‘objecting’ the same as ‘refusing’?

This makes no sense.

And surely if he refuses to engage is this not ‘objecting to the assessment’?

He has a right to refuse/object, as  he is presumed  capable under the Act.

But, despite this, the Code provides, ‘the assessment can then normally go ahead’.!

But, what is this ‘assessment’ that now goes ahead and what is it based on?

And, as consent, from a  capable person, must be obtained, to any assessment, this assessment would be a trespass to the person.

To say nothing of a breach of his human rights.

And, if it did go ahead, is effectively non existent.

As it, and the  assessment of the person’s incapacity to consent could  only be based under the MCA the functional test.

And, this,  in the circumstances,  as no questions have been asked of the assessee can only be based on, the autistic’s  general presentation and the condition , which is illegal, under the MCA.

And where does this fit in with s1 MCA which declares that there is a presumption of capacity until proved otherwise.

And highly discriminatory so likely illegal under the Equality Act.

And, in breach of the guidelines set out in statutory form in the Autism Act 2009, which would allow a judicial review of any assessment.

Also, this could only be a functional assessment, based on, the autistic’s failure to engage.

Also based on the autistic’s condition and presentation.

Ilegal under the MCA.

In fact this test, would not even. provide evidence, of suspected/alleged incapacity, let alone, amount to a formal capacity test, accepted by the court of protection, as rebutting evidence to  remove the presumption of capacity, given at common law, and in the Act.

In any event, the MCA capacity test per se, is not, applicable to the autistic mind, and is meaningless to the autistic.

And, thus proves nothing.

We also have the problem that many rightly believe autism is not an ‘impairment of the mind’ and therefore not covered by the MCA.

Yet, worryingly, and illegally, the Standard Assessment of Capacity Record to be completed by the Local Authority guidance allows for such assessments as it commences as follows;

The assessment should end if the person is unable to progress through the functional test. For example if a person cannot understand the decision they will not be able to retain it, weigh it in the balance or meaningfully communicate a decision’.

To obtain a Capacity Order, from the Court of Protection, the Local Authority need to show suspected incapacity by, stating the functional test, is satisfied.

Again, in respect to autistics, the suspicion, is normally based on the autistic’s condition, and presentation, and assessments, based on such evidence, are  not allowed, per se.

The guidance then continues,

The important point is to provide evidence that you have put the decision that needs to be made to the person,. and what their response is using direct quotes and or a description of their reaction.

If they cannot due to the level of impairment process the information there is nothing to be gained by continuing’.

Wow.

Local Authorities, do not even have to administer the functional test, to render a person incapable.

So back to our autistic/granny being assessed, the assessor can read out the questions, be ignored, and then state in his Record of Assessment Form, that the response was silence, and render this person, incapable of making any decision for the rest of his life.

And  it appears, from the guidance to the Standard Assessment Form, there is nothing about the fact, the assessment must be conducted under the best possible circumstances for the asssessee, having regard to, his state of mind, physical ease, to enable, the maximum possibility of capacity being found, as required by s1 MCA.

All  the assessor needs to show, by ticking the boxes on a standard form, is that a meaningless process, has taken place.

How easily assessors earn their money.

How shocking, effectively anyone, but particularly the autistic, could lose the right, to make any decision, for life on the basis of an illegal, meaningless, non assessment.

Even, Stephen Hawking, had he not been fitted with a voice box, would, it appears, have been deemed ‘incapable’.

memespp

But not if you are autistic.

Danger of EHCSs, and, Abuse of MCA Capacity for Adult Service Funding

blog-pictureSo let us explore, what appears, to be the Local Authorities practice, in relation to capacity assessments, since, the lucrative, ‘independent/community living’, away from family living industry was created.

Anyone, suspected of ‘incapacity’, all autistic, learning disabled, and, mentally disordered.

Including, potentially, anyone in need of ‘special’ education.

Funded under Education, Health, and Care statements.

Which unlike SEN, make the social services responsible for ‘protecting’ a child’s ‘welfare’.

So now, all ‘special needs’ children, are deemed  in need of the protection.

Discriminatory of parents and children,in breach of the Equality Act, and,s 8 Human Rights Act.

Strengthening a disabled’s  status, as a ‘child in need’, under the Children Act, see my article NLJ ‘The Disability Trap’.

EHCS,  also allow care, health, and educations distinct roles to overlap.

And,  their funding to be mixed and transparency even more obscured..

SEN/EHCS, do not apply to private schools.

So, the rich, can avoid, state intervention, and, are, allowed, their legal rights.

ECHS, do not fund schools after 16.

Instead, schools are replaced, by ad hoc education packages,consisting of skills for independent living, until 25..

These, combine support  at home.

And, these ‘education’ providers, unknown a family, will be charged  to notify social services, who approve them, of any ‘intervention issues’.

At 18, Adult Services fund everything.

As, the only  LA policy now, is life in  for profit, private residential care units.

All decisions are removed from the disabled, and their family by the MCA 05.

By showing  ‘incapacity’ to make  decisions.

So, the LA will insist,  a capacity test is carried out, before, providing any adult services.

So social services, will suggest, your young adult child see a psychologist.

This ‘seeing’ includes a capacity test, but, you are unlikely to be made aware of this and there appears, no duty on the local authority to inform you.

It can also provide, evidence of emotional abuse/neglect, to cut you out of your child’s life.

If you  ask for clarification of such assessments, and/or feel them unnecessary, the Local Authority, will apply to the Court of Protection, for an interim order under s 48 Mental Capacity Act 2005.

This application will be served, 24 hours before the court hearing.

Social services witness statements, in support, are not on oath, so not subject to the Perjury Act.

Matters to support this court intervention, can include any reported hearsay, from any source, care workers, GP, educators etc.

The first you may  know  of these ‘concerns’, will be 24 hours before the hearing.

No one is under a duty to discuss  concerns with you first and under a tightly prescribed, managed service will be told not to..

Despite Social Workers and Mental Capacity Act Codes of Conduct, and, the Human Rights Act.

The Local Authority will ask  the court for a list of expansive orders.

Including, any assessment and/or inspection, they wish.

If you do not agree, you may be warned your child could be taken that night.

So, you are given little choice.

This,  is all an abuse of the MCA, and its five overarching principles, and its Code of Conduct.

The MCA provides, ‘capacity’, must be assessed specifically, in terms of capacity to make a particular decision, at the time it needs to be made.

The LA,  will allege incapacity, in respect to the following decisions,

To litigate the proceedings

To make decisions about where they should live

To make decisions about the care they receive

To make decisions about the contact they receive from family members.

Clearly, only the first two, are in fact particular decisions, the others involve several particular decisions, should they have a bath, wash hair, brush teeth, depilate their arm pits etc.

Similarly, family members, are many decisions, to see mother, father, sister, brother, granny.

Remember the MCA provides an assessment should only take place,

‘At the time it (the decision) needs to be made’

But these decisions do not need to be made, at this, particular time.

Just because a person is 18, and now funded by adult services, a capacity test per se, is not allowed by MCA.

In relation, to the last three decisions, the disabled person, will have been making these decisions, all their life, whether to have a bath, sleep in thier home,  see their granny.

How can they suddenly become incapable of making these decisions, and, the LA make them for them for them, under the MCA?

How can an assessment be justified, when these disabled, have already made these decisions in the past.

And by making them, shown their ‘capacity’ to make them, just because LA funding, requires it?

In relation, to the remaining decision, capacity to litigate, no one, unversed in law, would have such capacity, and, in any event, it is not be necessary, if the other capacities  are present.

The MCA, was not drafted for the convenience of funding, only, independent living provision at 18, and enabling this by illegal removal from the family home.

The MCA was drafted, to protect a person, by allowing another person, to make a decision for them, in  the least restrictive way, and, as they thought, that person, would have made it, in that person’s best interests, if thought, that person, had become in capable of making that particular decision, and, it needed, to be made.

The MCA, was not drafted, to declare people ‘incapable’, and, allow all their future decisions to be made for them, for profit.

Or was it ?

The Age of The Scavenger.

Z9320472-Scavengers_on_a_carcass-SPL

We live in the age of the scavenger.

Frightened, greedy, insecure, in debt.

http://www.msn.com/en-gb/money/video/uk-personal-debt-almost-equivalent-to-2012-gdp/vi-BBssmxO?ocid=spartandhp

You, your children, partner, parents, its prey.

And, you will be powerless.

Here, is how they do it.

Scavengers know, that control, secrecy, surveillance and connection are essential.

They are smiling, plausible, psychopathological shape-shifters.

They work through social workers,  GPs, hospitals, police stations, health visitors, counsellors, neighbours, teachers, protection officers, care agencies, community groups, charities.

Through secret networkers and leadership.- common purpose.

All are  controlled by the state, work in secret and illegally share all ‘information’ through Multi Agency Safeguarding Hubs, agencies and community action groups.

Even our most trusted charity The Samaritans, is now controlled by the state, and details of the desperate  revealed to the authorities for forced lucrative private mental services interventions.

http://www.telegraph.co.uk/news/2017/06/01/fears-move-samaritans-pass-details-vulnerable-cases/

Even our suspicious, isolated, secretive, scared public, are social wardens.

Seeking state approval, money and power.

And many volunteer in NHS, police, schools,  community care desperate to please for employment.

The targets, as with all vultures are the vulnerable in need.

The poor, sick, old, disordered.

And, scavengers,  need to continually find new prey.

So they create vulnerability.

By 375 mental disorders, behavioural problems, increased poverty, more autistics, diabetics, and alzheimers.

And woo, through awareness campaigns, prevention,health checks, counselling, kindness, social groups, and, concern.

They target, objectifise, and subject their prey to the most solicitous, form of covert surveillance.

With 6 million itinerant carers, data bases, centralised medical, MASH, education, and social records .

Fishing expeditions are launched, to gain the ‘evidence’  they need.

This is build up on a  perfunctory, cumulative basis to fit the crime.

The crime, is always vague, expansive, and subjective.

And now even pre-emptive.

Those ‘at risk’ only targeted.

Neglect , controlling behaviour, emotional abuse,  sexual assault from innuendo, a drink is alcoholism, a scratch self-harm, forgetfulness incapacity,And any innocuous activity, is made to tick the box.

And, before you discover their surveillance, they use the law to swoop.

And then, it’s too late.

All they need now, is a rubber stamp.

All becomes unstoppable process.

Reality is suspended.

Mental Capacity Act interim  orders, will be the first you know, that you will lose your loved one.

Emergency protection care orders, your baby.

You will get no help.

All are frightened.

The system is inquisitorial, and so clogged up, and systemically bias it can do little.

Any allegation is accepted, without proof.

Justice, itself is  a scavenger,  it needs to be profitable.

The lawyers, scavenge the desperate, impotent, and ignorant.

And facilitate an inquisitorial process.

That cannot be beaten.

Those paid to protect the vulnerable, official solicitors, and CAFCASS officers, do the same.

They have no option, but to believe, the state always acts,  in a vulnerable person’s ‘best interests’.

Even though, that ‘best interest’, will make billions for the state.

The appalling conflict of interest, the elephant in the court room, is ignored.

All can act with impunity, as all is unaccountable, and in secret.

The commodity is adopted, the Local Authority pockets £30,000, and/or  £1000  per week for the fostering industry,£4,000  for the care home .

Those tick boxed ‘incapable’ imprisoned for life.

Every decision made for them by their private provider for ever more profit.

At the mercy of a secret, unaccountable care provider.

An audit statistic, worth on average  £3,500 per week.

In its first 3 years to 2010, the Court of Protection, took control, of assets worth over  £2.3 billion.

And, in its first 18 months received 3,000 complaints, all in secret.

Potentially, more than 2 million, could lose their liberty under the Mental Capacity Act.

Without their Magna Carta right to be tried by their peers.

Dementia, Carers Act, the latest facilitates to harvest.

GPs, now paid to assess dementia risk by stealth, on routine check ups.http://www.dailymail.co.uk/news/article-3409468/How-medical-history-hold-key-dementia-risk.html

https://www.gov.uk/government/publications/dementia-post-diagnostic-care-and-support.

And, the child care industry, has increased its numbers, from 32,000 in 2009, to 82,000.

Read this PhD on forced adoptions published in 2016 http://repository.essex.ac.uk/17072/1/Sam%20Davey%20Thesis%20Final%20Final.pdf

We do not know the numbers of old, autistic and learning disabled, encaged, unseen, in residential private profit ‘care’.

And at September 2016 The Alzheimer’s Society reported Deprivation of Liberty Orders from the Court of Protection are at an all time high.

https://www.alzheimers.org.uk/site/scripts/news_article.php?newsID=2665&utm_source=feedburner&utm_medium=feed&utm_campaign=Feed%3A+org%2FdNPt+%28Alzheimer%27s+Society+%27Latest+News%27%29from the Court of Protection are at an all time high.

At September 2016 Altzeimer Society reported all time high in Deprivation of Liberty Orders

https://www.alzheimers.org.uk/site/scripts/news_article.php?newsID=2665&utm_source=feedburner&utm_medium=feed&utm_campaign=Feed%3A+org%2FdNPt+%28Alzheimer%27s+Society+%27Latest+News%27%29

So, it certainly pays, to scavenge.
many stories since we can trust no one all are scavengers all act illegally as law can’t be enforced. we are not protected. we are in cowboy and indian land with no gun
https://www.msn.com/en-gb/news/uknews/exclusive-nhs-secretary-is-mistakenly-charged-£56000-for-£169-romantic-weekend-in-budapest-but-barclays-refuses-to-help-leaving-her-paralysed-with-debt/ar-AAH8QWM?ocid=spartandhp

More Lies, to steal Issy, and cover up inadequate, spying education services .

bigstock-magglass

Beyond  fed up.

Can’t  say depressed, as it would be used against me.

I now have to try, to get Issy back to the position, she was in, before, the ‘red mark, the size of a fist’ lady, abandoned her.

And, lodge another official complaint.

And do this, in between, the waves of horror, and nausea, that wash over me, when I envisage Issy’s fate.

Which are even more intense, when she is near.

The latest letter, one of the many documents, I have found, almost impossible to read.

Is from, the assistant head of the LA services.

The one, who recently rang weekly, and, informed me, why the education package, fist lady and co, had disappeared.

She was the funding lady, in the kitchen, who informed us, the LA, would provide  education ( Measured Lady),with ‘our pot of money’, for ‘personal services’.

We paid handsomely, as no doubt did the public purse.

The measured lady, had said, it ‘wouldn’t be cheap’,

For what ?

4 months of meetings arranging it, a no show hardly for 2 weeks, by one PA.

And then to be spied on, lied to,  and, about, and finally accused of assaulting our daughter.

All behind our backs.

This services manager, insists, she rang the GP.

But the GP, gave the adult services social worker’s name.

The Service Manager, ( her boss),had dealt with our complaint, by choosing, ‘not to look at the ‘record’ first’.

And, then sent us a letter, not about our complaint.

But her ‘concern’, at Isabel appearing naked in the kitchen, on the way to her bath.

This funding lady’s letter, gave the reasons, why ‘education’ had disappeared.

The reason they have given is that they find Finola’s expressions of points of view and the manner that this takes place, leaves them feeling vulnerable. They believe their actions are discredited by Finola when either one of them is not in your home, they feel this is undermining and makes them anxious to be around Finola’.

What points of view? The ones on the articles, brought weekly by the Lodge Lady ?

The ones being groomed from me ?

Am I, not allowed to voice dissatisfaction/frustration, at the appalling way, Issy/we, have been treated, in my own kitchen ?

‘Vulnerable’ to what?

Most of the time, I am working in the lounge.

In what way, am I undermining them?

What ‘actions’ have they taken ?,

Other than tickle Issy, blow bubbles, and play music, alone in her bedroom, largely ignored.

Neither worker, was even given Issy’s care plan, or, apparently, any information about her.

They observe that when Finola is expressing her points of view Isabel gets distressed, she cries and rocks in her bedroom and whilst this is pointed out to Finola it does not stop the negative verbal outpouring towards all services’.

Isabel does not observe my ‘points of view’.

They are made in the kitchen with door closed, when Isabel, is in her bedroom, with  her door closed.

As this makes it impossible for them to distress Issy,   how could  it have been pointed  out to me ?

‘The personal assistants would like to have suggested to Finola on at least one occasion that this expression of frustration is halted but do not feel able to say anything to Finola which might cause further tension. They feel scared. This has led them to take the view that they no longer feel safe in the household’

If, they would like to have suggested it once, but were too scared.

How then, did they dare, to point out, my my views were upsetting Issy?

These workers, had  never mentioned my negativity, instead encouraging  it, with articles, and stories about care scandals.

You will be aware that this is a further agency expressing their concerns regarding the challenges faced in offering direct care to Isabel in the home, advising they are planning to withdraw their services’

A further agency ?.

Over 18 months, we have had some 25 different workers in the kitchen from  a single large agency- Reed.

No one, worker, or agency, had ever mentioned any ‘concerns’.

We were never given the reason, for this agency’s  withdrawal  in October last year.

In fact this very services manager had  asked us why they had withdrawn in our funding meeting in October.

And an email from our social worker, saying they had terminated their (very lucrative £50 per hour) contract.

Even she had said, they were’ not perhaps the most appropriate agency’.

The social services could not prove what they are saying.

But it appears they don’t have to.

How then could I prove this is all lies?

Other than, the fact it was totally improbable,

And, not mentioned before.

Remember this agency was paid over £100,000, £24 per hour for their services. workers £7,50 an hour

So, what do we have here.

A service manager, who has provided an inadequate service, is eliciting  evidence, from support staff, to show neglect, and abuse.

To cover up inadequate, spying, making up serious assault allegation, service provision, to facilitate, the removal of Isabel to earn £ 4000 per week, in secret, drugged,  abused encagement.

The evidence being;

1/ Social Services cannot support mother at home, as workers refuse to work with mother, as they are undermined, and scared.

2/ Mother is emotionally abusing Isabel, by distressing her with her opinions, and continuing to do so, in the face of this distress,even after, it has been pointed out to her.

And the  truth?

Irrelevant.

Education Report, ‘A Red Mark The Size of a Fist’

4508491-Small-and-powerful-fist-on-a-white-background-Stock-PhotoIt is Thursday 29/1/2014.

What a long, long, week.

As if being up at nights for months, with no personal care, or respite for over 2 years wasn’t enough.

I am now being tortured by the social services.

The snow is thick, my husband had to take the bus to work.

Issy was up at 11.00am, and eventually after much effort in the bath.

And, I managed to get photos of her stomach..

It would appear, all those in need of support, are at the mercy, of any itinerant, zero hour, or, unpaid placement stranger,apparently, desperate, to do the State’s dirty work.

A friend in London told me, carers in care homes, demand ‘protection money’, from relatives.

What a disgusting moral compass is now the norm.

The snow has conspired, to make even walks down the drive scary, Issy doesn’t like slippyness.

Just before noon, the ‘funding lady’, our social workers manger’s manager rang me.

The last thing my psyche needed after Issy’s bath at a moment when she was demanding never ending juice and I was alone.

With the usual infuriating, social worker prescribed conversation,

How are things?’.

You surely must know how things are’. I replied.

You will know more than me, about what’s happening’.

The nice affable lady, did not turn up on Tuesday two days ago, and the Lodge Lady hasn’t today’.

‘We received no prior, or post notification, or indeed, any communication from anyone.’

Except from our adult social services social worker, and GP, demanding to see a non- existent lump on Issy’s tummy’.

This is the ‘intensive, specialist, highly expensive service’, provided to an autistic girl, not yet out of the trauma, the state, for the second time, threw her in’.

The funding lady, then tells me, I have ‘strong opinions’, and, the workers had not felt ‘comfortable’ in the house.

I countered.

They had not mentioned or looked as if they were ‘uncomfortable’.

Let alone why .

Its non- stop coffee, tea and chats, magazines, and two books on autism lent, and, never  returned.

And, they do what they want with Issy.

I have spent the last two years, having all my cupboards rearranged, without asking, and my washing machine broken.

Being a complete tit, I have given away dresses, shoes, coats, tops, CD radios, face creams, shears, masses of legal advice etc. mainly to the lady, who had the first hissy fit.

10 Nintendo games to another worker who befriended Issy, groomed me, and after an outing with him, Issy  repeatedly asked,’ Why do men like having willies up their arse?’.

He was never seen again, as not offered ‘education’ work, (more money and security).

Poor Issy has been so let down, by the itinerancy of workers, but, her fate would be much worse in ‘independent’ living.

And,Lodge Lady ( the latest since November education support worker), had arrived daily, with a Private Eye, or, internet article, or, own experience of a care scandal, to elicit/encourage my ‘strong opinions’.

I remind the funding lady,

‘as zero hour workers, every worker can be specifically chosen, and prescribed’.

She retorts, ‘they are all individuals’.

So the inference is  the 30 +  previous agency workers,  must all have felt ‘uncomfortable’…. For 18 months…. but this, was the first I’d heard of it.

She tells me the affable, independent of the state, with a conscience lady, does not want to support Issy anymore.

So why did she choose Monday, without  warning to leave ?

Why did she make me chutney and chat so freely never mentioning her ‘uncomfortability’.?

It was a  loss,  as she loved the autistic, and Issy liked her.

But she had said ominously, she, ‘had nothing to do, with ‘education’’.

Now, we know why.

I assume, she didn’t want to get involved in their dirty tricks, of the lucrative, independent of family living, industry.

I noticed the nice  workers disappeared.

One, had a two week mystery illness, just when the trainee and social workers, were moving in for the kill, but, had a hissy fit, never to return.

I suspect, their reputable international agency, were worried about bad PR, from this blog.

Their head office, monitors the net, and had picked up my mention of their name, as a zero hour employer, in a Guardian comment, and, had banned me, from naming them on social media.

Such is the self- preservation, of our all-powerful, privatised monopolies.

The funding lady asked, if I  would consider, having Lodge Lady, and a new worker.

I told her to read my blog, and then objectively decide, whether, she would.

She replied she didn’t read blogs.

Issy was demanding juice, the bath was run….  I did not need this.

I mentioned all this.

Which she must have already been aware of from Issy’s shouts.

Eventually, I forced an exit.

But the phone rang 20 minutes later.

She had read my blog.

And  some points were incorrect.

It was not the Adult Social Worker, who had rung the GP, but her.

So much, then for her asking last week, what she could do, to rebuild my trust in the social services.

But, did not explain why the GP, had given the social workers name.

Nor why, the same social worker, rang us earlier reporting the lump.

Nor, why  this was so important.

Secondly, she said the blog incorrectly stated the support worker, had not discussed her concern, when she had.

I said, read the blog again.

The worker had pointed  out a non-existent bulge.

And then, when I, and the affable lady, had said it was pre period swelling, had said no more about it during the 4 hours that remained of her shift.

She had not pointed out,‘ a red mark, the size of a fist’ as was reported to the GP.

I couldn’t bear this  cross examining sophistry any longer.

And Issy needed attention.

Why was no one concerned about her ?

‘For the mother of God’, I cried.

And Issy on cue, decided the phone had to go back in its place, and grabbed it.

That night, I reflected, on what the GP had actually, been told.

I had been distracted by the impaction discussion, and the bulge comment.

I  analysed the reported ‘concern’,

‘A red mark on the side of Issy’s tummy, the size of a small fist’.

I realised, it  wasn’t  describing a bulge,

It  painted, a shocking picture, of abuse.

It could not be accidental, self-harm, or, neglect.

It was on  soft tissue.

It could only be…………… a punch.

And, as small, my fist,  as the primary carer, and most alone with Issy.

Wow…..

How might this be made to appear in court documents;

An education worker, who had formed a good relationship with Issy over several weeks of support, and, had just managed to get her out of the house for the first time in 9 months, noticed a red, fist sized mark on the side of Isabel’s stomach.

She pointed it out to her mother, who ignored her.

So she reported it to the social services, who rang the parents, but they would not let them see Isabel, so they rang the GP, but the parents also refused the GP’s request to come to their home and examine her.

The GP, now very concerned for Isabel’s safety, arrived at their home, he was verbally attacked by the mother, didn’t manage to  examine Isabel, as she refused to undress, or cooperate.  (but did see her running around happy not in pain).

The mother then refused any more support, or engagement with the social services’.

I had walked right into that one…..

If I did nothing, as photos can be air brushed, this would be taken, as irrefutable evidence of a vicious assault.

And we would be cut out of Issy’s life for ever.

The LA would have their £6,000 +a week, cash and pharma cashcow, the Lodge Lady a career path, a loving devoted mother  destroyed, and a father heartbroken, never to see their child again unsupervised.

And Issy doomed to live in an abusive hell, alone.

Such is evil.

Such is morality.

Such is adult state protection costing millions

And  the danger of care/education workers.

I rang the GP, apologised, and, asked him round to try to re -examine Issy…..

He arrived but did not touch her stomach only viewed for marks

Yet recorded later in Issy’s medical notes that there was no hot bulge on her stomach.

Summary

Education workers mentions Issy’s stomach bulges on one side

other workers agrees with me that due to her due period.

Not mentioned again by Education Worker to me during rest of her shift

Education Worker notifies social worker ‘Issy has red mark size of small fist on her stomach’

SW rings GP attends , observes Issy’s stomach but does not touch her.

Yet records in notes hot bulge at side of stomach with no explanation/follow up

Neither worker is ever seen again.

LA Complaints Service Manager Meeting -Is the End Nigh ?

We lodged a formal complaint on the LA’s website in June.

Had two meetings, with our social worker, and, her boss.

The conclusion of which was a letter whitewashing our complaints.

I replied at length, and, asked for a stage 2 referral to the ‘independent’ investigator.

But, did not get to stage 2

Instead, in September, I received a letter from the LA  services manager,

‘I would like to take the opportunity to meet with you to discuss your complaint and to try and resolve any issues that you have’.

Two weeks ago, she arrived by black, soft- topped sports car, Porsche?, black be suited, in my kitchen.

We had managed to get Issy up, and almost in the bath, but the lady’s early arrival, spooked her, and, she retreated, naked, into her bedroom.

The lady began the meeting, by going through the complaints process,

despite my use of it, and, its presence on the internet.

And said, she had come,

to talk to some of our issues that we were still left with.’

We had been left, with all ‘ our issues’.

Physical, emotional abuse and neglect of Issy in her NAS School.

No support for the first 3 months on her returning home.

And then, no respite, no school, inadequate, spying support.

An ‘independent’ living ‘education’ package, that had traumatised Issy,

by telling her, she could not live with Mummy  and Daddy,

And resulted in her reignited PTSD, and refusal to leave the house.

My fabricated illnesses notified to GP by social services.

Incorrect, sexed up core assessments, portraying us, as abusive, neglectful, inadequate parents.

And, our support/education was now non-existent.

No support for over two months, and, an education package,6 months in the making,

Which had commenced two weeks ago, but only consisted of a PR, 2 days a week, who had hardly appeared.

The be suited lady announced, she was in our kitchen to see;

What can we do to reach a resolution?

What do you want as a good outcome from the complaints process?’ ‘What can I do to resolve your complaint ‘

‘What can we do as a service to make sure we can support you?’

Anything, as we had no support.

Surely, after nearly 2 years of meetings, core assessments, she should know what we want, and, what her services should have done, and, were now not doing ?

These, were thoughts only, as her out-pouring, was merely an explanation, of her function.

It was the usual, I speak, you speak, prescribed, communication.

But finally, the shocker,

‘I don’t know the detail. I have chosen not to look at the record’.

I felt, at this point, the need to point out, that this was a big mistake, if she, were here to investigate our complaints.

So dared to ask, Why  she had ‘chosen not to look at the record.

I wanted to come with an open agenda’.

I’ve come to listen to you as a couple, to be clear as to the outcome you want’.

After letters forms and two meetings she still did not know?

I have come to have a dialogue, with you before I can respond’.

She continued,

But a dialogue, is a two way process.

And, she had, ‘chosen not to look at the record’.

So how could her visit clarify, and resolve?

No, it was the usual.

We do all the talking. All is de novo.

All is futile.

We were expected to go through our complaints, together, with the latest ones.

All already gone through ad nauseam, with her subordinates, orally, and, in writing.

Our time, as always, wasted to justify ‘service’, and salaries.

Exasperated, we filled her in on our previous, and, only agency support,

but, trained to be ever positive, she interrupted with,
so the previous agency support worked well’.

Even our social worker, admitted, it was not ‘the most appropriate’, after Issy refused to go out.

This lady did not appear to know, it had broken down, or why,

or, even, that Issy no longer left the house with anyone.

But as per her two subordinates, in their complaints meetings,

She did know enough to suggest, ‘someone’, ‘do some work’ with Issy, to try to reassure her, she would return home, if she went out.

And, as we had already told her subordinates, obviously, this had been done by ourselves, and, several, different workers.

The team leader, in her complaints meeting, had remained silent, on the qualifications of this ‘someone’.

But our social worker had let slip, it was a psychologist.

Could this be the last piece of documentation, they needed for a deprivation of liberty order, to remove Issy from home?

When we pointed out, Issy had been traumatised, by the push into independent living.

She said,

‘So, you as parents, are now saying, at this moment in time, you don’t want her in independent living’.

It appeared, even ours, and Issy’s basic wishes, were unknown to her.

Or more likely, irrelevant.

What can I do in terms of the complaint investigation?

Continued, her rhetorical plea.

Investigate, one would assume.

After an hour of this, Issy emerged from her bedroom, opposite the kitchen, naked.

She spotted my coffee, through the kitchen glass door, came in, drank it, and retreated.

The lady asked,

Does Issy struggle to wear her clothes?’.

More exasperation.

‘No. She was just going into her bath when you arrived.’

As with the trainee social worker, a little knowledge of ‘autism’, did not go a long way.

She assumed autistics, and therefore Issy, had problems keeping their clothes on.

I explained, as I had done, on countless occasions, her bath time routine, and that she dressed herself afterwards.

But knew this was futile.

She had spotted, what she was looking for, an intervention issue.

Issy didn’t keep her clothes on, and we allowed it.

Just as her scratches, had been self-harm, or abuse, to the education funding lady.

The lady then left, saying she would respond in writing.

She did a week later, but not about our complaints, that letter, has yet, to arrive.

‘I do feel I need to raise again the issues that led to me ending our meeting earlier than anticipated, (it hadn’t) namely the fact that Isabel did come into the kitchen naked and your response to me when I asked the question if this was normal behaviour for Isabel (it wasn’t, she was getting in the bath), and if she struggled to remain clothed. I asked this question as I am aware of many young people with autism do have difficulty in wearing certain items of clothing. My question was not intended to be a criticism of your parenting, However it did concern me that neither parent attempted to encourage Isabel to dress, given there was a complete stranger in the home who had not met Isabel before and the potential impact of this upon her dignity’.

So, the LA Services Manager, charged with investigating our formal complaints, that social services, were deliberately creating evidence of abusive, and, inadequate parenting.

Had decided, our not encouraging, our autistic, upset daughter to dress, before she got into her bath, was evidence of emotional abuse, and, a protection issue.

And, the much pushed ‘work to be done on Issy’, to supposedly, get her out, was now to be enforced;

‘ I believe we need an urgent assessment of Isabel’s mental health to assist the LA in determining the best support package for Isabel and I have requested the Social Workers involved with Isabel discuss this in more detail with you so we can work together to achieve this.’

Confirming my suspicions, that the LA, were determined to assess Issy’s ‘capacity’,  which as, with our adult services assessment, and her NHS funding, was to be obtained by stealth, on a different pretext.

As, what other purpose could this ‘assessment’ serve?

Our social worker, could not find a care agency willing to support us.

So what ‘care package’, could this assessment lead to?

Only independent living, or, a mental hospital, or ATU.

A psychologist, and a psychiatrists assessments in 2012, when Issy was 7 stone, poo impacted, with two rotten teeth in her NAS school, had merely resulted in antidepressants, which made her worse.

And what would happen, if we did not allow such an ‘assessment’?

The letter continued;

’ Given the difficulties of our meeting (we were concerned that she knew nothing about our complaints, or are present lack of support, and had a naked daughter about to bathe).I would want to re-iterate that the LA are committed to working in partnership with parents and carers and our current intervention with your family is to provide appropriate support to maintain Isabel in your care, unfortunately this does not to be your beliefs are around our intervention. I would want to stress that the LA would only consider looking at a placement for a young person away from their family home if there is concern for that young person’s welfare and if parental engagement cannot be maintained.’

Plenty of choice there then….

This was a simple process, which would be completed.

Even if, it was, by the person charged with investigating our complaints.

Poor Issy, poor us.

Another photo, on yet another petition, never to laugh, or be free again, a tortured, captive cash, and pharma cow, with tortured, powerless parents.

Doomed to living hells for life.

But, what profit she would make, at least £3,500 per week, without the pharma, and therapy kickbacks.

And no one cares.

There’s a thought for Christmas……

Education, Health and Care Statements- Emperors clothes ?

EHCPSEN, special educational need statements have now been replaced by EHCs, Education Health and Care Plans..

This seemingly superficial mnemonic change hides a multitude of sins.

Funding for special needs day schools after 16 no longer exists.

EHCs are not subject to OFSTED or tribunal challenge and providers are untested, unregulated, and unassessed.

The Local Authority fund, whatever ‘provision’ they choose, and, they alone, decide its adequacy.

A clear conflict of interest, and, recipe for corruption, and, inadequate provision.

As Care is now part of special education needs statement social services are involved in a child’s education reinforcing the treatment of autistic/LD as automatically ‘children in need’ because of parental neglect/incapacity/abuse.

The LA can intervene, at any time, and remove your child by court order to care if under 16, if over to ‘independent’/community living.

So the draconian power of the state is by virtue of the Children and Families Act 2014, now incorporated into education, and, can be used to silence any criticism, or dissent.

At 16  special needs schools are  replaced by ad hoc unregulated ‘education’ packages, that teach only, ‘independent’ living skills which most already have ie eating properly, helping cook, getting drinks, sorting clothes, throwing out rubbish.

My daughter’s ‘education’ skills were inter alia table manners, carrying a bag, mixing a cake, getting her own coffee and juice, all things, she could already do, if she wanted to.

‘Independent’ living is heavily risk and health, and safety assessed to avoid legal claims and maximise profit.

And requires residents, to be supervised at all times,  so most of these skills will never be used or indeed needed except to make support cheaper and more profitable.

So at 16, all special needs teenagers are deprived of everything a school, and its community have to offer, and taught ‘skills’, they already have, until they are 25.

All deeply patronising, and discriminatory to those deemed to have ‘learning difficulties’.

And a good tick box, unaccountable source of income.

Norman Lamb’s consultation on the implementation of the strategy for adults with autism in England, published earlier this month promotes this system, by providing money, to train the trainers and create, and teach ‘employability’ skills.

An industry, has already been created on the basis of these ‘emperors clothes ’ and is set to increase.

It would appear from these initiatives;

Disability,  will create jobs, but not for the disabled.

Spends money, but not on schools.

Isabel, is now on her second ‘education’ package.

It is now 8 weeks, since our ‘education’ package meeting, I posted about in, ‘Where is the cavalry?

The owner of the provider company, asked to meet us again  the Monday after that meeting.

She asked,

‘What we thought of the meeting?’

I replied it served no purpose.

She made no comment.

She continued with questions about Issy’s care and communication, my advice, the same as in our 2 hour meeting in August, only this time she took notes.

It occurred to me, but apparently not to anyone else, that Issy’s care plan might be useful, so I provided it.

She had neither asked for it or been provided with it.

Three months ago, both the LA education manager, and this measured lady, confessed to knowing little about Isabel, and, it would appear, nothing had changed.

Why, still no sharing of children in need meeting minutes, care plans, education report, or liaison with Issy previous education package manager.

She left promising to send her ‘proposed plan’.

It arrived via email two days later.

It was less than one side of A4, and consisted of 3 stages, the first concluded,

‘ we are not able to make a reasonable long term plan, as we don’t yet have IB’s voice to influence and shape such a plan’.

The third concludes,

‘Our aim is to build sufficient trust and confidence to encourage IB to start getting out of the house and to start attending Yewtree House. At this stage will aim to make another, longer term plan which will be shaped by IB’s voice’.

This plan, gave no inkling, as to how, she proposed to do this, or even the hours, or tasks, the PAs, would undertake, nor in what way we, as promised, employed them, nor mention of the ‘pot of money’, the LA funding lady, had repeatedly told us, this lady, held on our behalf.

And it had taken 7 and a half months and 9 hours of meetings to get it.

And, it appeared, excepting, to allow Isabel’s voice the same as the previous ‘education’ package.

But, instead of an agency worker, and an assistant teacher, and the package’s office, we had 2 PAs, and, an empty Lodge.

And how,

‘is a longer term plan going to be shaped by ‘Isabel’s voice’?

And what was that plan?

LA funding, facilities and policy, appeared to allow, only one future plan, the suggestion of which, appeared to have forced Isabel into her bedroom for the past eight months.

Was Issy’s her voice, still not loud enough?

The lady, who owned the education package company, insisted on introducing her two PAs, necessitating, two more meetings in the kitchen.

Despite in  August, exclaiming,

‘I could get 2 PAs in tomorrow, but things had to be done properly, and it won’t be cheap’.

Our social worker had emailed, without being asked, that the PAs were not CQC approved, restraint trained, nor risk assessed , so could not be left alone with Issy, nor support me with Isabel’s personal care.

Why not ?

The measured lady, arrived in the kitchen, with the first PA, we were not informed, if she was, as stated in the plan.

’The person who would be stepping into the role of senior PA is highly skilled in intensive inter reaction’

The Measured Lady greeted us with the usual,

‘How are things?’

My husband shrugged his shoulders, with a

‘What can you say’.

She looked bemused, but, made no comment.

Our proposed, ‘Mary Poppins’, was slight, quiet, appearing in her mid twenties, and, wonderfully unobtrusive.

I told her she had a heavy burden resting on her shoulders.

But she remained silent.

She declined coffee, so I made some without asking, for her boss.

As no one spoke, or asked, I wittered on about Isabel… in bed, lack of appetite.

The slight ‘Mary Poppins’ to be, confessed she knew nothing about Issy.

There’s a surprise.

Their silence forced more wittering by me, lack of any medical care, 3 such Isabel’s dying needlessly a  week, but still no reaction.

The slight lady asked if she could go into Isabel’s bedroom, so I took her in, and, not wanting to interfere with her, hopefully, magical powers, I left.

She returned to the kitchen, several minutes later, without comment.

Surely a good sign ?

Later, she went in again, this time without asking, a really good sign.

I hoped.

Two days later, the second PA was in the kitchen.

Some bad news, from the measured lady.

Our proposed ‘Mary Poppins’, had, on her first visit to Issy’s bedroom, sat on her bed.

Aptly, singing along to Issy’s Mary Poppin’s DVD.

Issy had probably told her to go, as she  did sometimes but then had pulled her hair which Issy rarely did.

Maybe this incident never happened it was an excuse as this young lady did not want to be part of spy and remove?

The truth can never be known.

A new PA had to be found.

All our meetings, Issy’s background, which she was ignorant of.

And common sense, had not stopped her sitting on Issy’s bed on a first meeting, and staying.

Our remaining PA was to come on Mondays and Tuesdays, but, no specific times or hours, were mentioned.

I suggested later in the morning, so the remaining PA, a sophisticated, polished, extremely affable young lady, promised to see me at 11 am, the following Monday.

She arrived at 11.20, and Issy was up.

Having been up all night.

She stayed in the kitchen, I made her a coffee, and chatted.

Issy came in three times for juice, and the PA left.

On Tuesday, she arrived later, about 12, and stayed just over half an hour, Issy was not up.

She said, she’d come on Friday, with the beads, she threads, which Issy might want to join in with.

The measured lady, rang on Thursday, asking if we could meet the next week, to discuss how things were going.

I updated her, and, that her PA was coming tomorrow. She said good.

But the PA did not arrive on Friday, so I thought she must have meant Monday, but she didn’t arrive on Monday either, and there were no phone calls.

She eventually arrived at 3.30 on Tuesday, with no mention of Monday, or Friday, nor why she was so late.

Issy, was still in bed, so she sat on her bedroom floor for half an hour, Issy told her to go, and she left.

On Monday the PA arrived at 12.40 pm and stayed 40 minutes, chatted over a coffee, and stood in Issy’s bedroom, whilst I tried unsuccessfully, to get her up.

She asked, if it was OK to come again around 7.00 pm sometime, but not which day.

I said she could drop in, whenever, she wanted to.

But she didn’t drop in not even on her designated Tuesday.

On Wednesday, within hours of us, relaying this to the social services complaint investigator, in a meeting about our formal complaint in June, the LA education coordinator, emailed me.

He had spoken to the measured lady that Monday, and,

‘She tells me that there has been some progress and the support worker is starting to build a relationship with Isabel.

Our aim is to introduce staff from Lodge, and eventually use this, as a base for Isabel’s learning.

Please let me know if you think we are able to accelerate this process or have any suggestions on how we may be more effective’.

In reply, I emailed back the specific times and outcomes of the PAs visits.

He emailed back.

’Thank you for the update and I will discuss with (measured lady). What do you consider to be most appropriate times to be engaging with Isabel at present?’

Such, is special needs ‘education’.