Parents of Autistics have no rights, and are unfairly blamed, Private Corporate Parents have all rights and are unaccountable

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Britain, is a desperately depressing place, if your child is autistic or learning disabled.

As you look at your beloved son or daughter, as you cuddle, and struggle, and sacrifice, remember, your time together is short, and limited by the state.

Remember to, you cannot protect them, from that state,

And, that state affords them no protection.

LB, Connor Sparrowhawk drowned in a bath, whilst having an epileptic fit, in an NHS Assessment and Treatment Unit, costing over £7,000 per week, ( now private £13,000), 4 staff to every 5 patients.

http://www.theguardian.com/society/2014/mar/19/connor-sparrowhawk-death-nhs-care-unit-slade-house-learning-disabilities

Despite, a highly publicised, two year long campaign and hundreds of thousands of public money spent investigating, no one will, or can be held responsible.

Stephanie Bincliffe, died at 25, weighing 25 stone in her sleep of heart failure.

The known side effects of her  anti- psychotic medication, weight gain, water retention, sedation, and, heart strain, were not mentioned.

Stephanie, spent the last two, of her 7 year, at least £5,000 a week,’ treatment’, in a padded cell, without being allowed out to bathe or toilet.

No effort made, to curb her weight, reduce her medication, for the two million, paid to the private company ‘treating’ her.

Her crime?

To be born an autistic cash cow, and  at 18  attacked a stranger, we do not know her reason, in a supermarket.

Shockingly the coroner found no neglect just failure to provide a care plan to reduce her weight.

The effect of her weight and her polypharmacy of medication on her death was not investigated.

The horror was revealed in June 2017 on national BBC News

So such ‘treatment’ will continue and be hidden better, as the industry grows and PR is perfected.

https://markneary1dotcom1.wordpress.com/2014/11/25/no-neglect/

http://www.theguardian.com/society/2014/nov/24/hospital-autistic-woman-weight-gain-inquest

A similar fate, befell 20  year old Thomas Rawnsley, in an enforced under MCA, private Cambian Community Living ATU charging over £5,000 per week.

At 17, living at home Thomas was medicated, became violent, was sectioned and then forced to live in a supported living unit, where he was physically and mentally abused by his ‘carer’.

This abuse, and resultat  PTSD made him difficult to ‘care’ for, so he was medicated.

With such a high dosage, a chest infection, made it impossible for him to breath .

And his brain, starved of oxygen, stopped his heart.

His mother, cannot reveal details of his Coroners Inquest, or this LA commissioned care, as Thomas, was subject to the secret Court of Protection.

https://finolamoss.wordpress.com/2015/02/11/corruption-and-abuse-of-autistics-for-profit/

http://www.drugdangers.com/Risperdal/

Many, many more deaths unknown.

3 daily,torture, and, unbearable suffering, has, and is being hidden, simply because, it occurs, in a multimillion pound, unaccountable, allowed to charge what it likes, industry.

And, all the ‘investigations’, are by the very establishment, who commissioned, created, support and profit from this industry.

So, they will use everything in their power, to hide the truth, and, not to blame drugs  or,  state care. https://finolamoss.wordpress.com/2015/01/01/the-risperidone-scandal/

And the deaths, suffering, and, abuse will continue.

Unlike the USA, we do not have, an insurance based health and social care.

Although even in US private equity investment running disabled institutions has caused abuse see this https://newrepublic.com/article/125477/profit-abuse-homes-profoundly-disabled

But   in the UK, we have no insurance company, with a financial interest, fighting for the vulnerable.

And private actions  by parents are effectively impossible.

As parents, risk all assets even if the could find lawyers and experts.

Parents,  therefore, have  no means to ensure, profit hungry, private companies, ‘care’ for their children for life, let alone, allow them any quality of life, in now, the only adult services provision, of supported/independent living ?.

And the consumer of these services is declared legally incompetent by the very court,the Court of Protection that enforces the commissioned services of the LA.

Here, is the only  information, I could find, on the rights of parents of autistic adults from the National Autistic Society Website.

http://www.autism.org.uk/living-with-autism/at-home/caring-and-planning-for-the-future/parents-of-adults-with-autism-your-rights.aspx

it is considered inappropriate  for parents [ but not for corporate, profit making, parents] to make decisions on behalf of their children by this time in their lives’ [18, even if  they have the mental age of a young child ]

NHS and Community Care Act 1990, says:

“The individual service user and normally, with his or her agreement, [not needed, if Mental Capacity Act ‘incapable’, as most autistics illegally are] any carers [ we assume this means parents,, not paid support ?]  should be involved throughout the assessment and care management process. They should feel that the process is aimed at meeting their wishes.”

This means that care managers should consult parents when carrying out an initial assessment, and in recommending a PLACEMENT ( so your 18 year old cannot stay at home?)


but after that,  your rights as parents are not clear.

at any time, you are not happy with the services provided and feel that they are not suited to your child’s needs, you can complain either through the complaints procedure [ internal, so parents will get nowhere, and, risk all access to their child ] at your ( how are they still yours? ) child’s placement


or through the local authority [as they are commissioning agents, parents, will get no where, as the LA could then be sued], if they are funding the care

That about sums up, parents rights, and, theirs, and their child’s future.

Parents have no rights.

Nor, do the disabled service users.

So enjoy your children while you can.

Transition starts at 16.

Strangely,  NAS do not mention,  parents can obtain an Lasting Power of Attorney, allowing  them, to make decisions on behalf of their children, for the rest of their lives.

Or until the Court of Protection, overrides it.

Nor, your child’s right under the UN Article 12 Rights of the Disabled Convention, not to have all his decisions removed, because of his disability.

Or, his right to decide, where he lives, and be supported there.http://www.un.org/disabilities/default.asp?id=279

And, his right to make his own decisions, and, not to have them illegally removed under the Mental Capacity Act  , and made by profit making private residential care provides in secret. http://www.un.org/disabilities/default.asp?id=272

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‘Independent Living’ –Disabled Penned for Profit

 

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If you asked anyone, where, they most wanted to live, and where, they would feel the safest, and happiest.

All would reply, if they could, within the bosom of their family.

This is why, a Private Members Bill, was put forward by Alf Morris, a Labour MP.

And despite opposition, by both Labour, and, a new Conservative government, became, the Chronically Sick and Disabled Act 1970.

It was the only, such Act in Europe, and, was heralded, the Magna Carta of the disabled.

The Act, placed a duty on Local Authorities, and NHS, to provide, in modern money, up to £164,000 per annum, for the social, and medical care, of the disabled.

If, a Local Authority, did not provide sufficient respite, house adaptations, medical equipment, care etc, parents/disabled, could  sue them,to pay for these  services.

This allowed, the disabled, to live, where they had always lived, with the friends, and family, they had known, and who had known them, since birth.

It also, prevented inadequate, unaccountable monopoly services.

Allowing families, and disabled, to obtain independent support, that fitted theirs, and the disabled’s needs.

The disabled could remain seen in the community, not, as they are now, herded in lines by chatting care workers.

Sadly, if parents found it impossible to cope, as they grew older, then, they could set up a trust fund, to pay state funds, to an independent provider, of their own choice, to care for their loved one.

But, 30 years on, under Tony Blair, the embryo of ‘Independent Living ’, was conceived, in academic publications.

Research, projected the figures, of older parents, who would be unable to cope, the disabled’s EU Right to ‘Independence’, was high jacked.

Housing away from their families became a priority for charities, LAs, and government.

https://books.google.co.uk/books?id=QY9Qp6JNL8UC&pg=PA1935&lpg=PA1935&dq=JAYNE+KNIGHT+AUTISM+MENCAP&source=bl&ots=O1ozxTtVYB&sig=2RYrzI_ELah1vdl0W6RCvTFGiYM&hl=en&sa=X&ved=0ahUKEwjEof2XjJbOAhUIIsAKHfumASQQ6AEIITAB#v=onepage&q=JAYNE%20KNIGHT%20AUTISM%20MENCAP&f=false

All disabled charities, MENCAP, SCOPE, NAS, sang in unison, that ‘most disabled’ wanted independence, and, had a right to it,

Independence’, was perfunctorily construed, as  living away from parents, in  their ‘own’ home, regardless of  how many lived in this ‘home’, and, 24 hour supervision.

And, all a disabled person’s decisions, being made by the care provider.

This has been  renamed recently to ‘community living’.

A huge, profitable, largely unaccountable market, was there,  for the taking.

In 2010/11, the largest component of local authority expenditure on residential services for people with learning disabilities was on residential care placements (£ 1.55 billion), followed by supported and other accommodation (£483 million) and nursing care (£75 million). Supporting People expenditure in 2010/11 was £149 million.

(Source: People with Learning Disabilities in England 2011

https://www.gov.uk/government/statistics/mental-health-and-learning-disabilities-statistics-monthly-report-final-feb-2015-and-provisional-mar-2015

 

 

The disabled were a goldmine, waiting to be mined.

Providers of independent living, could, not only claim, the huge amounts of money, made available from the government, under The Chronically Sick and Disabled Act, but also, the disabled’s state benefits, Disability Living Allowance, Mobility, Housing and Council tax Benefits, and Independent Living Fund.

And, better still, whilst the Local Authorities, again, on the back of cost cutting, did not provide specialist disabled care, the independent providers, were still allowed, to claim for such care, under the Act, on the basis, of the need, and severity, of each individual’s disability.

This gave a huge profit margin, at the disabled’s expense, as they received basic, non-specific care.

Worse still, the worse the disabled’s needs were made, the more, that could be claimed.

This was not a recipe for care, but persecution.

With enforcement by the Court of Protection, under the Mental Capacity Act,

‘Independent’ Living,  is now, effectively, the only option provided by Local Authorities, to a disabled adult.

in 2010/11, the largest component of local authority expenditure was on private, commissioned by LA, often enforced residential care placements (1.55 billion) for people with learning disabilities, followed by supported and other accommodation (83 million), and nursing care (75 million).

Supporting People expenditure in 2010/11 was 149 million.

(Source: People with Learning Disabilities in England 2011

https://www.gov.uk/government/statistics/mental-health-and-learning-disabilities-statistics-monthly-report-final-feb-2015-and-provisional-mar-2015

Yet, see the map above, for the statistics of those still living with parents at 35, and not independently.

The Daily Mail lead on 5/11/16 that 25% of adults live with parents.

Yet our most vulnerable, who need their family most, are removed at 18, to 24 hour surveillance, not independence.

All overnight respite, and, day centre provision has been closed, on the excuse of cost cutting.

As services for disabled adults, are diversified, into this highly lucrative, ‘independent’ living industry.

The ‘Right’ to live ‘independently’ the only independence being forceful removal from family is the only ‘right’ promoted

https://rightsinreality.wordpress.com/2015/11/19/talk-to-housing-and-support-alliance-independent-living-conference/

Who would want a right to be encaged, all  choice removed, and forcefully medicated ?

Disability charities, have found it a godsend, as a much needed, reliable source, of permanent income.

And, international venture capitalists, pension funds, are investing in this new profitable sector.

Parents, wishing to keep their beloved, disabled children at home, have found it, effectively impossible.

They can no longer sue for the support; they are entitled to under the Chronically Sick and Disabled.

As, if they could afford the lawyers, and took the risk, of the Local Authority’s legal bill, the Authority would show, they were providing such support, through this independent living provision.

The Local Authorities, are ruthlessly enforcing such provision, by enforcement under the Mental Capacity Act, accusing loving parents, of incapacity, abuse, and neglect.

These parents are, not only, refused adequate support, and respite, but accessed covertly, as if they were, parenting a normal child.

All in breach of theirs, and their child’s human rights, Equality Act,  as discriminatory, and the Autism Act 2009 guidelines.

All disabled, now, effectively, belong to the state.

A state, that allows them no choice, and, no independence.

The disabled’s life, in  independent living provision, is prescribed, controlled, watched, risk assessed, and, most of all, commercially aware.

No longer are they protected, and happy, in the bosom of their family.

They are unseen, at the mercy, of any itinerant, poorly paid zero hour carer.

And with no escape.

They cannot return home.

They are only allowed out to prescribed venues, heavily guarded.

Families contact is controlled, and often, cut out completely.

The disabled become an audit statistic,  relied upon, to pay  owners, managers, venture capitalists, and shareholders.

We do not even have figures, of the number of disabled encaged.

And this is called ‘valueing’ people.https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/250877/5086.pdf

And, there is little, if any accountability, for the providers’ extortionately expensive services, or, the misery, and death, the disabled suffer in such provision.

We can only guess at it, from reports, that three learning disabled, die  needlessly a day.

Disability charities have removed the disabled, and their family’s voices, and replaced them by meaningless propaganda, sound bites, self-preservation, and slick websites, as they put their own recycled profit interests, above their beneficiaries.

Tiny Tim, would not now, be allowed to remain in the bosom of his family, because he is worth too much.

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