Britain, is a desperately depressing place, if your child is autistic or learning disabled.
As you look at your beloved son or daughter, as you cuddle, and struggle, and sacrifice, remember, your time together is short, and limited by the state.
Remember to, you cannot protect them, from that state,
And, that state affords them no protection.
LB, Connor Sparrowhawk drowned in a bath, whilst having an epileptic fit, in an NHS Assessment and Treatment Unit, costing over £7,000 per week, ( now private £13,000), 4 staff to every 5 patients.
Despite, a highly publicised, two year long campaign and hundreds of thousands of public money spent investigating, no one will, or can be held responsible.
Stephanie Bincliffe, died at 25, weighing 25 stone in her sleep of heart failure.
The known side effects of her anti- psychotic medication, weight gain, water retention, sedation, and, heart strain, were not mentioned.
Stephanie, spent the last two, of her 7 year, at least £5,000 a week,’ treatment’, in a padded cell, without being allowed out to bathe or toilet.
No effort made, to curb her weight, reduce her medication, for the two million, paid to the private company ‘treating’ her.
To be born an autistic cash cow, and at 18 attacked a stranger, we do not know her reason, in a supermarket.
Shockingly the coroner found no neglect just failure to provide a care plan to reduce her weight.
The effect of her weight and her polypharmacy of medication on her death was not investigated.
The horror was revealed in June 2017 on national BBC News
So such ‘treatment’ will continue and be hidden better, as the industry grows and PR is perfected.
A similar fate, befell 20 year old Thomas Rawnsley, in an enforced under MCA, private Cambian Community Living ATU charging over £5,000 per week.
At 17, living at home Thomas was medicated, became violent, was sectioned and then forced to live in a supported living unit, where he was physically and mentally abused by his ‘carer’.
This abuse, and resultat PTSD made him difficult to ‘care’ for, so he was medicated.
With such a high dosage, a chest infection, made it impossible for him to breath .
And his brain, starved of oxygen, stopped his heart.
His mother, cannot reveal details of his Coroners Inquest, or this LA commissioned care, as Thomas, was subject to the secret Court of Protection.
Many, many more deaths unknown.
3 daily,torture, and, unbearable suffering, has, and is being hidden, simply because, it occurs, in a multimillion pound, unaccountable, allowed to charge what it likes, industry.
And, all the ‘investigations’, are by the very establishment, who commissioned, created, support and profit from this industry.
So, they will use everything in their power, to hide the truth, and, not to blame drugs or, state care. https://finolamoss.wordpress.com/2015/01/01/the-risperidone-scandal/
And the deaths, suffering, and, abuse will continue.
Unlike the USA, we do not have, an insurance based health and social care.
Although even in US private equity investment running disabled institutions has caused abuse see this https://newrepublic.com/article/125477/profit-abuse-homes-profoundly-disabled
But in the UK, we have no insurance company, with a financial interest, fighting for the vulnerable.
And private actions by parents are effectively impossible.
As parents, risk all assets even if the could find lawyers and experts.
Parents, therefore, have no means to ensure, profit hungry, private companies, ‘care’ for their children for life, let alone, allow them any quality of life, in now, the only adult services provision, of supported/independent living ?.
And the consumer of these services is declared legally incompetent by the very court,the Court of Protection that enforces the commissioned services of the LA.
Here, is the only information, I could find, on the rights of parents of autistic adults from the National Autistic Society Website.
‘ it is considered inappropriate for parents [ but not for corporate, profit making, parents] to make decisions on behalf of their children by this time in their lives’ [18, even if they have the mental age of a young child ]
NHS and Community Care Act 1990, says:
“The individual service user and normally, with his or her agreement, [not needed, if Mental Capacity Act ‘incapable’, as most autistics illegally are] any carers [ we assume this means parents,, not paid support ?] should be involved throughout the assessment and care management process. They should feel that the process is aimed at meeting their wishes.”
This means that care managers should consult parents when carrying out an initial assessment, and in recommending a PLACEMENT ( so your 18 year old cannot stay at home?)
but after that, your rights as parents are not clear.
at any time, you are not happy with the services provided and feel that they are not suited to your child’s needs, you can complain either through the complaints procedure [ internal, so parents will get nowhere, and, risk all access to their child ] at your ( how are they still yours? ) child’s placement
or through the local authority [as they are commissioning agents, parents, will get no where, as the LA could then be sued], if they are funding the care
That about sums up, parents rights, and, theirs, and their child’s future.
Parents have no rights.
Nor, do the disabled service users.
So enjoy your children while you can.
Transition starts at 16.
Strangely, NAS do not mention, parents can obtain an Lasting Power of Attorney, allowing them, to make decisions on behalf of their children, for the rest of their lives.
Or until the Court of Protection, overrides it.
Nor, your child’s right under the UN Article 12 Rights of the Disabled Convention, not to have all his decisions removed, because of his disability.
Or, his right to decide, where he lives, and be supported there.http://www.un.org/disabilities/default.asp?id=279
And, his right to make his own decisions, and, not to have them illegally removed under the Mental Capacity Act , and made by profit making private residential care provides in secret. http://www.un.org/disabilities/default.asp?id=272