A Surprisingly Good Visit from NHS Mental Health

IMG_0391This day proved a welcome relief, in a life of no reliefs.

The psychiatrist, a tall, attractive Scottish lady, was extraordinarily human, unassuming, and affable.

And the psychologist, unlike some I’ve taught, and the one in 2007, did not observe, or judge me, and had personality.

And, usefully, busied herself with Isabel’s Progress File from Robert Ogden School.

So, all went well in the kitchen.

So well,  two hours flew by without coffee.

I cannot relay, how good it feels, to be respected, and deferred to.

It had never happened before.

I almost felt like a person, rather than the object of negative analysis.

Issy had been up most of the night and was still sleep.

The long awaited period was evident, when we eventually wondered into her bedroom, andwere told to get out.

As usual, no one appeared to know anything,  so were filled in on the chronology to date.

The psychiatrist asked about food preferences, medical allergies and medication.

Worryingly,the type of questions asked before an inpatient stay.

I hoped,they were standard, but then wondered why, the information was not obtained from Isabel’s medical records.

But such are the mysteries of information sharing protocols.

Annoying for us, and professionals

The only major worrying question, on reflection was,

‘Did Issy eat with us?’

My proven justifiable  paranoia, bounced me back, to our first education package, and a comment, I had made to a Reed agency education carer, who’d latterly became a spy.

It was innocuous enough, but, it appears anything, can be made to fit the agenda.

On describing Issy’s trauma, after her 48 bruise NAS restraint, I remarked, ’Issy  would no longer sit and eat with us at the table in our apartment lounge in Ireland’.

This appeared to have been seized upon, by the worker’s grilling ‘education’ boss, and  relayed to our social worker and spun in  our last core assessment to;

It has been observed by workers that the family tend to sit around the table together to eat while Isobel eats alone in the lounge’

I complained about this in April 2014, pointing out, it could not ‘have been observed by workers that the family tend to sit around the table to eat’ as;

a) No worker has ever seen us eat as a family.

And,

b) We do not ‘eat as a family’, except at Christmas and Easter; the drop leaf table in the kitchen being rarely used.

We eat from plates on our knees, in the lounge, watching TV, as we are soap fans,

And

c) Issy has never eaten in the lounge.  She  eats in her bedroom.

It had been made in a sectionheaded Comment on the young person’s needs in relation to family and social relationships, thus, the workers impossible observation, of our deliberate isolating of Issy, appearing evidence of  emotional abuse.

This being one of the very, if only specific questions asked of Issy, and coupled with ‘ I wouldn’t like crumbs in the sitting room’ was both infuriating and worrying.

As it appeared information we had tried to officially correct and was incorrect second hand hearsay, as no worker had ever seen us eat let alone at a table, had been relayed to a NHS psychiatric team charged with assessing  any  emotional abuse of Issy at home.

Excepting for this rather large ponderable,- where they working from a crib sheet ? all went well.

Angel Eyes appeared on Monday and Thursday.

And as usual was a star, and worked her socks off.

Issy has been up, and in a good mood, despite the period.

But wants to be permanently tickled.

But then, who doesn’t?

Danger of EHCSs, and, Abuse of MCA Capacity for Adult Service Funding

blog-pictureSo let us explore, what appears, to be the Local Authorities practice, in relation to capacity assessments, since, the lucrative, ‘independent/community living’, away from family living industry was created.

Anyone, suspected of ‘incapacity’, all autistic, learning disabled, and, mentally disordered.

Including, potentially, anyone in need of ‘special’ education.

Funded under Education, Health, and Care statements.

Which unlike SEN, make the social services responsible for ‘protecting’ a child’s ‘welfare’.

So now, all ‘special needs’ children, are deemed  in need of the protection.

Discriminatory of parents and children,in breach of the Equality Act, and,s 8 Human Rights Act.

Strengthening a disabled’s  status, as a ‘child in need’, under the Children Act, see my article NLJ ‘The Disability Trap’.

EHCS,  also allow care, health, and educations distinct roles to overlap.

And,  their funding to be mixed and transparency even more obscured..

SEN/EHCS, do not apply to private schools.

So, the rich, can avoid, state intervention, and, are, allowed, their legal rights.

ECHS, do not fund schools after 16.

Instead, schools are replaced, by ad hoc education packages,consisting of skills for independent living, until 25..

These, combine support  at home.

And, these ‘education’ providers, unknown a family, will be charged  to notify social services, who approve them, of any ‘intervention issues’.

At 18, Adult Services fund everything.

As, the only  LA policy now, is life in  for profit, private residential care units.

All decisions are removed from the disabled, and their family by the MCA 05.

By showing  ‘incapacity’ to make  decisions.

So, the LA will insist,  a capacity test is carried out, before, providing any adult services.

So social services, will suggest, your young adult child see a psychologist.

This ‘seeing’ includes a capacity test, but, you are unlikely to be made aware of this and there appears, no duty on the local authority to inform you.

It can also provide, evidence of emotional abuse/neglect, to cut you out of your child’s life.

If you  ask for clarification of such assessments, and/or feel them unnecessary, the Local Authority, will apply to the Court of Protection, for an interim order under s 48 Mental Capacity Act 2005.

This application will be served, 24 hours before the court hearing.

Social services witness statements, in support, are not on oath, so not subject to the Perjury Act.

Matters to support this court intervention, can include any reported hearsay, from any source, care workers, GP, educators etc.

The first you may  know  of these ‘concerns’, will be 24 hours before the hearing.

No one is under a duty to discuss  concerns with you first and under a tightly prescribed, managed service will be told not to..

Despite Social Workers and Mental Capacity Act Codes of Conduct, and, the Human Rights Act.

The Local Authority will ask  the court for a list of expansive orders.

Including, any assessment and/or inspection, they wish.

If you do not agree, you may be warned your child could be taken that night.

So, you are given little choice.

This,  is all an abuse of the MCA, and its five overarching principles, and its Code of Conduct.

The MCA provides, ‘capacity’, must be assessed specifically, in terms of capacity to make a particular decision, at the time it needs to be made.

The LA,  will allege incapacity, in respect to the following decisions,

To litigate the proceedings

To make decisions about where they should live

To make decisions about the care they receive

To make decisions about the contact they receive from family members.

Clearly, only the first two, are in fact particular decisions, the others involve several particular decisions, should they have a bath, wash hair, brush teeth, depilate their arm pits etc.

Similarly, family members, are many decisions, to see mother, father, sister, brother, granny.

Remember the MCA provides an assessment should only take place,

‘At the time it (the decision) needs to be made’

But these decisions do not need to be made, at this, particular time.

Just because a person is 18, and now funded by adult services, a capacity test per se, is not allowed by MCA.

In relation, to the last three decisions, the disabled person, will have been making these decisions, all their life, whether to have a bath, sleep in thier home,  see their granny.

How can they suddenly become incapable of making these decisions, and, the LA make them for them for them, under the MCA?

How can an assessment be justified, when these disabled, have already made these decisions in the past.

And by making them, shown their ‘capacity’ to make them, just because LA funding, requires it?

In relation, to the remaining decision, capacity to litigate, no one, unversed in law, would have such capacity, and, in any event, it is not be necessary, if the other capacities  are present.

The MCA, was not drafted for the convenience of funding, only, independent living provision at 18, and enabling this by illegal removal from the family home.

The MCA was drafted, to protect a person, by allowing another person, to make a decision for them, in  the least restrictive way, and, as they thought, that person, would have made it, in that person’s best interests, if thought, that person, had become in capable of making that particular decision, and, it needed, to be made.

The MCA, was not drafted, to declare people ‘incapable’, and, allow all their future decisions to be made for them, for profit.

Or was it ?

I Smell a Rat……

the-procession-of-the-trojan-horse-in-troy-1773_jpgLarge-615x290

Angel Eyes is gone.

I smell a rat.

She said, she’d see me on Monday.

We’d had a great afternoon on Thursday, dying my hair.

But  her boss rang on Saturday.

Angel Eyes, couldn’t do anymore shifts, as she’d lose her tax credits .

Not even a single hour ?

Why then,was she the only worker offered.

When she and her boss arrived 5 days ago, in answer to my email?

And, why didn’t she/he, mention her tax credits, on offering her hours?

Or , she in  her long chats on Thursday.

More crucially, where do we go from here?

Only one other agency, got back.

And they too, could be nobbled.

I analyse, my conversations, with Angel Eyes.

She came on Tuesday, Wednesday, and Thursday.

I recall, she only started asking  odd questions on Thursday.

Lodge/Fist lady, had done the same, despite my garrulous outpouring of Issy information.

At the time, they had irritated, and upset me.

She had opened her arms to offer a hug

I’d asked why the lists of questions, she’d said, she wasn’t good at conversations.

I’d felt guilty.

I now, reflect on Angel Eye’s questions.

I feel like Miss Marble.

And annoyed, I am forced to be so paranoid.

But this de facto beleaguerment, is worse than fiction.

Do you like a drink?’

‘Are you frightened of Issy ?

‘All this is bound to put a strain on your relationship (with Seamus)’.

How does Issy get on with her sister Eleanor, oh, I have already asked you that one’.

All innocuous enough.

But now, indicative of a fishing brief..

I  think of the many poor homes, unable to buy  arrays of cleaning products, without space, clothes, bedding, and healthy food,surrounded by neighbours too willing to spy.

They are sitting ducks.

So Angel Eye’s boss arrived last night, to finalise the ‘package’.

He is now our ‘Measured Lady’.

I ask why our pot of money, cannot be given to us, to find support.

He blinds me with science, and stonewalling.

How can this be personalised services?

He shows me the CV a lady, sent to him in November, and emphasises, she works ‘independently‘, for an old couple.

He arranges a visit .

As usual, more time is wasted on administration, and, needless introductions, than support.

He spouts the standard tripe, of needing to find someone, we are happy with.

But, as with Measured Lady, there is no other candidate.

I don’t know what to say.

There, are the usual awkward silences.

I explain my dilemma.

But, the elephant in the room is ignored.

The lady is coming tonight.

The social  workers tomorrow,

For their weekly ‘surveillance’, as the package boss calls it.

Nice life.

Issy sleeps, and is happy.

Apparently, largely irrelevant, but a good little earner.

Education Report, ‘A Red Mark The Size of a Fist’

4508491-Small-and-powerful-fist-on-a-white-background-Stock-PhotoIt is Thursday 29/1/2014.

What a long, long, week.

As if being up at nights for months, with no personal care, or respite for over 2 years wasn’t enough.

I am now being tortured by the social services.

The snow is thick, my husband had to take the bus to work.

Issy was up at 11.00am, and eventually after much effort in the bath.

And, I managed to get photos of her stomach..

It would appear, all those in need of support, are at the mercy, of any itinerant, zero hour, or, unpaid placement stranger,apparently, desperate, to do the State’s dirty work.

A friend in London told me, carers in care homes, demand ‘protection money’, from relatives.

What a disgusting moral compass is now the norm.

The snow has conspired, to make even walks down the drive scary, Issy doesn’t like slippyness.

Just before noon, the ‘funding lady’, our social workers manger’s manager rang me.

The last thing my psyche needed after Issy’s bath at a moment when she was demanding never ending juice and I was alone.

With the usual infuriating, social worker prescribed conversation,

How are things?’.

You surely must know how things are’. I replied.

You will know more than me, about what’s happening’.

The nice affable lady, did not turn up on Tuesday two days ago, and the Lodge Lady hasn’t today’.

‘We received no prior, or post notification, or indeed, any communication from anyone.’

Except from our adult social services social worker, and GP, demanding to see a non- existent lump on Issy’s tummy’.

This is the ‘intensive, specialist, highly expensive service’, provided to an autistic girl, not yet out of the trauma, the state, for the second time, threw her in’.

The funding lady, then tells me, I have ‘strong opinions’, and, the workers had not felt ‘comfortable’ in the house.

I countered.

They had not mentioned or looked as if they were ‘uncomfortable’.

Let alone why .

Its non- stop coffee, tea and chats, magazines, and two books on autism lent, and, never  returned.

And, they do what they want with Issy.

I have spent the last two years, having all my cupboards rearranged, without asking, and my washing machine broken.

Being a complete tit, I have given away dresses, shoes, coats, tops, CD radios, face creams, shears, masses of legal advice etc. mainly to the lady, who had the first hissy fit.

10 Nintendo games to another worker who befriended Issy, groomed me, and after an outing with him, Issy  repeatedly asked,’ Why do men like having willies up their arse?’.

He was never seen again, as not offered ‘education’ work, (more money and security).

Poor Issy has been so let down, by the itinerancy of workers, but, her fate would be much worse in ‘independent’ living.

And,Lodge Lady ( the latest since November education support worker), had arrived daily, with a Private Eye, or, internet article, or, own experience of a care scandal, to elicit/encourage my ‘strong opinions’.

I remind the funding lady,

‘as zero hour workers, every worker can be specifically chosen, and prescribed’.

She retorts, ‘they are all individuals’.

So the inference is  the 30 +  previous agency workers,  must all have felt ‘uncomfortable’…. For 18 months…. but this, was the first I’d heard of it.

She tells me the affable, independent of the state, with a conscience lady, does not want to support Issy anymore.

So why did she choose Monday, without  warning to leave ?

Why did she make me chutney and chat so freely never mentioning her ‘uncomfortability’.?

It was a  loss,  as she loved the autistic, and Issy liked her.

But she had said ominously, she, ‘had nothing to do, with ‘education’’.

Now, we know why.

I assume, she didn’t want to get involved in their dirty tricks, of the lucrative, independent of family living, industry.

I noticed the nice  workers disappeared.

One, had a two week mystery illness, just when the trainee and social workers, were moving in for the kill, but, had a hissy fit, never to return.

I suspect, their reputable international agency, were worried about bad PR, from this blog.

Their head office, monitors the net, and had picked up my mention of their name, as a zero hour employer, in a Guardian comment, and, had banned me, from naming them on social media.

Such is the self- preservation, of our all-powerful, privatised monopolies.

The funding lady asked, if I  would consider, having Lodge Lady, and a new worker.

I told her to read my blog, and then objectively decide, whether, she would.

She replied she didn’t read blogs.

Issy was demanding juice, the bath was run….  I did not need this.

I mentioned all this.

Which she must have already been aware of from Issy’s shouts.

Eventually, I forced an exit.

But the phone rang 20 minutes later.

She had read my blog.

And  some points were incorrect.

It was not the Adult Social Worker, who had rung the GP, but her.

So much, then for her asking last week, what she could do, to rebuild my trust in the social services.

But, did not explain why the GP, had given the social workers name.

Nor why, the same social worker, rang us earlier reporting the lump.

Nor, why  this was so important.

Secondly, she said the blog incorrectly stated the support worker, had not discussed her concern, when she had.

I said, read the blog again.

The worker had pointed  out a non-existent bulge.

And then, when I, and the affable lady, had said it was pre period swelling, had said no more about it during the 4 hours that remained of her shift.

She had not pointed out,‘ a red mark, the size of a fist’ as was reported to the GP.

I couldn’t bear this  cross examining sophistry any longer.

And Issy needed attention.

Why was no one concerned about her ?

‘For the mother of God’, I cried.

And Issy on cue, decided the phone had to go back in its place, and grabbed it.

That night, I reflected, on what the GP had actually, been told.

I had been distracted by the impaction discussion, and the bulge comment.

I  analysed the reported ‘concern’,

‘A red mark on the side of Issy’s tummy, the size of a small fist’.

I realised, it  wasn’t  describing a bulge,

It  painted, a shocking picture, of abuse.

It could not be accidental, self-harm, or, neglect.

It was on  soft tissue.

It could only be…………… a punch.

And, as small, my fist,  as the primary carer, and most alone with Issy.

Wow…..

How might this be made to appear in court documents;

An education worker, who had formed a good relationship with Issy over several weeks of support, and, had just managed to get her out of the house for the first time in 9 months, noticed a red, fist sized mark on the side of Isabel’s stomach.

She pointed it out to her mother, who ignored her.

So she reported it to the social services, who rang the parents, but they would not let them see Isabel, so they rang the GP, but the parents also refused the GP’s request to come to their home and examine her.

The GP, now very concerned for Isabel’s safety, arrived at their home, he was verbally attacked by the mother, didn’t manage to  examine Isabel, as she refused to undress, or cooperate.  (but did see her running around happy not in pain).

The mother then refused any more support, or engagement with the social services’.

I had walked right into that one…..

If I did nothing, as photos can be air brushed, this would be taken, as irrefutable evidence of a vicious assault.

And we would be cut out of Issy’s life for ever.

The LA would have their £6,000 +a week, cash and pharma cashcow, the Lodge Lady a career path, a loving devoted mother  destroyed, and a father heartbroken, never to see their child again unsupervised.

And Issy doomed to live in an abusive hell, alone.

Such is evil.

Such is morality.

Such is adult state protection costing millions

And  the danger of care/education workers.

I rang the GP, apologised, and, asked him round to try to re -examine Issy…..

He arrived but did not touch her stomach only viewed for marks

Yet recorded later in Issy’s medical notes that there was no hot bulge on her stomach.

Summary

Education workers mentions Issy’s stomach bulges on one side

other workers agrees with me that due to her due period.

Not mentioned again by Education Worker to me during rest of her shift

Education Worker notifies social worker ‘Issy has red mark size of small fist on her stomach’

SW rings GP attends , observes Issy’s stomach but does not touch her.

Yet records in notes hot bulge at side of stomach with no explanation/follow up

Neither worker is ever seen again.

The Kafkaneque Nightmare Continues

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It is Wednesday 28/1/15.

The day after  the storm.

A real storm rages outside.

Issy is asleep, up again most of the night, but this time due to the state.

Yesterday, the linchpin GP rang at 5.30pm.

Yes, it was quite a day.

The ever vigilant adult services social worker, who rang at 3.00, had asked the GP to examine Issy, as a worker, had reported a red mark on her stomach.

My husband had taken the call, and, was suitably enraged.

He explained, Issy, had now been up over 24 hours, had not had the best of days, as the looked forwarded to, education lady, had not turned up, and she was settling to sleep.

But, as an enforcer, the GP took no notice.

He must examine her.

My husband persisted, this was not the time.

There was no lump, mark. No pain.

Isabel was eating, and running around as usual.

I shouted, I’d send a photo.

I go to Sainsburys.

The GP rang again, demanding a visit.

My husband, caught between, not wanting to appear to have ‘something to hide’, and  my wrath, told him to ring back when I got home.

But the GP didn’t.

Within 40 minutes, he was in the kitchen.

Isabel was fast asleep in her bedroom.

I arrive back.

Beyond fury at the sight of the GP.

As I knew it would upset Issy, and, with the no show today, could put her back months, from her long…. Long…..long  awaited happiness.

It was also the GP, who insisted on seeing Issy last week, just to weigh her, on the hearsay of a worker, she’d lost weight.

And, when asked for a letter with reasons for his visit had just stated.

‘I understand there have been some concern about Isabels eating, and in particular if she has lost any weight over the last few months.. I would be grateful if we could arrange a visit to try to weigh her’.

Are we, not thought capable of being concerned about our daughters weight ?.

Why were these ‘concerns’ not discussed with us first ?

Are we thought not to be capable  of weighing her?

I am a conscientious objector to assertion, it is pernicious bullying, but, if continually asserted on, even I can let rip.

So I did.

But, as to be expected from a determined robot, it got me nowhere, except for some patronising ‘sures’, and some stammering.

The GP insisted on outlining ‘the process’.

Process, is all important to enforcers .

Substance, irrelevant.

Perfunctory adherence to procedure all.

‘conversations’  controlled to allow for this..

He told us, the adult services social worker, had been concerned, as a worker had reported, that Issy had a red lump on the side of her  stomach, the size of a small fist.

Wow.

Wouldn’t we have noticed ?

Wouldn’t we have called the GP?

Why was she happy, eating, running around, and not in agony?.

And why had the worker, sitting most of the day in the kitchen with me, yesterday, not discussed her concern with me, and asked me, rather than the  social worker, to ring a doctor ?

Or mention it, before she reported it?

The GP agreed, ‘they were ‘all good points’.

‘Then, why had he not thought of them?’.

He said he should have done.

But then, he is not paid to think, just to enforce.

I then explained, what might have happened.

But as the worker didn’t discuss her concern, this was all conjecture.

The day before, Issy on her many attempts into the bath, had stood naked drinking my coffee in the kitchen

In front of me, and the two workers.

I was discussing Issy’s faecal impactions.

The last one, cleared out on Issy return home, our GP had felt a hard lump, inside of her lower stomach.

I said I felt sure, she didn’t have one, as she was on Movicol- they had just seen me putting it in her juice, and was not faeces incontinent..

The Lodge Lady said, it looked, as if the side of Issy’s stomach was sticking out.

I explained her period was days away, and this was just a normal ridge,  the other worker agreed .

Lodge Lady said no more, during the remaining 5 hours of her shift .

Other than her comment was bizarre, I  didn’t think anymore about it.

So, I took the GP into  Issy’s bedroom, she was fast asleep.

I woke her up, she got distressed, and pushed us out, and closed the door.

I tried again.

She came into the kitchen, but would not pull down her trousers down.

She knew I was very distressed, and this made her worse..

‘Mummy come into my bedroom’, she  anquished.

Autistics, are hypersensitive to others emotions, particularly, those  close to them.

Despite the philistine, state-suiting ‘experts’ mantras, that autistics cannot guage feelings, nor, form relationships.

I cannot show impatience, anger, or distress, as Issy senses it , and becomes anxious.

That evening, poor Issy got a double wammy.

She couldn’t understand why I was upset, nor why this strange man, was in her bedroom.

The GP, took an oath ‘to do no harm’, but, left the whole family distressed.

And poor Issy remained up most of the night.

The post has just arrived.

A letter to me from the head of the GP practice, the nice doctor, who visited once in May, who had said what a beautiful environment, we had created for our daughter.

I thought he was on my side.

He writes,

‘ to ask whether you mind coming in to see one of us to monitor your recently diagnosed diabetes. Ideally we would organise some blood tests, urine tests and a blood pressure test and consider whether you might need treatment. I appreciate you may feel reluctant to do this but I would very strongly encourage you’.

It is dated the 23/1, around the date of the meetings, we were not invited to .

I have not got diabetes, their tests were negative, and so was the one I did from the chemist to check.

But, if 2+2 does in fact equal 4, when everyone says its 5, what does the truth matter.

All GPs are now profit making cabals, and, in MASH- Multi Agency Safeguarding Hub.

And the Mental Capacity Act allows them to  enforce, any treatment.

I still have to face the ‘Lodge Lady’ tomorrow at 10 am.

This blog is not made up, and, it could happen to you.

And, is happening, in various ways, throughout the country.

Education, Health and Care Statements- Emperors clothes ?

EHCPSEN, special educational need statements have now been replaced by EHCs, Education Health and Care Plans..

This seemingly superficial mnemonic change hides a multitude of sins.

Funding for special needs day schools after 16 no longer exists.

EHCs are not subject to OFSTED or tribunal challenge and providers are untested, unregulated, and unassessed.

The Local Authority fund, whatever ‘provision’ they choose, and, they alone, decide its adequacy.

A clear conflict of interest, and, recipe for corruption, and, inadequate provision.

As Care is now part of special education needs statement social services are involved in a child’s education reinforcing the treatment of autistic/LD as automatically ‘children in need’ because of parental neglect/incapacity/abuse.

The LA can intervene, at any time, and remove your child by court order to care if under 16, if over to ‘independent’/community living.

So the draconian power of the state is by virtue of the Children and Families Act 2014, now incorporated into education, and, can be used to silence any criticism, or dissent.

At 16  special needs schools are  replaced by ad hoc unregulated ‘education’ packages, that teach only, ‘independent’ living skills which most already have ie eating properly, helping cook, getting drinks, sorting clothes, throwing out rubbish.

My daughter’s ‘education’ skills were inter alia table manners, carrying a bag, mixing a cake, getting her own coffee and juice, all things, she could already do, if she wanted to.

‘Independent’ living is heavily risk and health, and safety assessed to avoid legal claims and maximise profit.

And requires residents, to be supervised at all times,  so most of these skills will never be used or indeed needed except to make support cheaper and more profitable.

So at 16, all special needs teenagers are deprived of everything a school, and its community have to offer, and taught ‘skills’, they already have, until they are 25.

All deeply patronising, and discriminatory to those deemed to have ‘learning difficulties’.

And a good tick box, unaccountable source of income.

Norman Lamb’s consultation on the implementation of the strategy for adults with autism in England, published earlier this month promotes this system, by providing money, to train the trainers and create, and teach ‘employability’ skills.

An industry, has already been created on the basis of these ‘emperors clothes ’ and is set to increase.

It would appear from these initiatives;

Disability,  will create jobs, but not for the disabled.

Spends money, but not on schools.

Isabel, is now on her second ‘education’ package.

It is now 8 weeks, since our ‘education’ package meeting, I posted about in, ‘Where is the cavalry?

The owner of the provider company, asked to meet us again  the Monday after that meeting.

She asked,

‘What we thought of the meeting?’

I replied it served no purpose.

She made no comment.

She continued with questions about Issy’s care and communication, my advice, the same as in our 2 hour meeting in August, only this time she took notes.

It occurred to me, but apparently not to anyone else, that Issy’s care plan might be useful, so I provided it.

She had neither asked for it or been provided with it.

Three months ago, both the LA education manager, and this measured lady, confessed to knowing little about Isabel, and, it would appear, nothing had changed.

Why, still no sharing of children in need meeting minutes, care plans, education report, or liaison with Issy previous education package manager.

She left promising to send her ‘proposed plan’.

It arrived via email two days later.

It was less than one side of A4, and consisted of 3 stages, the first concluded,

‘ we are not able to make a reasonable long term plan, as we don’t yet have IB’s voice to influence and shape such a plan’.

The third concludes,

‘Our aim is to build sufficient trust and confidence to encourage IB to start getting out of the house and to start attending Yewtree House. At this stage will aim to make another, longer term plan which will be shaped by IB’s voice’.

This plan, gave no inkling, as to how, she proposed to do this, or even the hours, or tasks, the PAs, would undertake, nor in what way we, as promised, employed them, nor mention of the ‘pot of money’, the LA funding lady, had repeatedly told us, this lady, held on our behalf.

And it had taken 7 and a half months and 9 hours of meetings to get it.

And, it appeared, excepting, to allow Isabel’s voice the same as the previous ‘education’ package.

But, instead of an agency worker, and an assistant teacher, and the package’s office, we had 2 PAs, and, an empty Lodge.

And how,

‘is a longer term plan going to be shaped by ‘Isabel’s voice’?

And what was that plan?

LA funding, facilities and policy, appeared to allow, only one future plan, the suggestion of which, appeared to have forced Isabel into her bedroom for the past eight months.

Was Issy’s her voice, still not loud enough?

The lady, who owned the education package company, insisted on introducing her two PAs, necessitating, two more meetings in the kitchen.

Despite in  August, exclaiming,

‘I could get 2 PAs in tomorrow, but things had to be done properly, and it won’t be cheap’.

Our social worker had emailed, without being asked, that the PAs were not CQC approved, restraint trained, nor risk assessed , so could not be left alone with Issy, nor support me with Isabel’s personal care.

Why not ?

The measured lady, arrived in the kitchen, with the first PA, we were not informed, if she was, as stated in the plan.

’The person who would be stepping into the role of senior PA is highly skilled in intensive inter reaction’

The Measured Lady greeted us with the usual,

‘How are things?’

My husband shrugged his shoulders, with a

‘What can you say’.

She looked bemused, but, made no comment.

Our proposed, ‘Mary Poppins’, was slight, quiet, appearing in her mid twenties, and, wonderfully unobtrusive.

I told her she had a heavy burden resting on her shoulders.

But she remained silent.

She declined coffee, so I made some without asking, for her boss.

As no one spoke, or asked, I wittered on about Isabel… in bed, lack of appetite.

The slight ‘Mary Poppins’ to be, confessed she knew nothing about Issy.

There’s a surprise.

Their silence forced more wittering by me, lack of any medical care, 3 such Isabel’s dying needlessly a  week, but still no reaction.

The slight lady asked if she could go into Isabel’s bedroom, so I took her in, and, not wanting to interfere with her, hopefully, magical powers, I left.

She returned to the kitchen, several minutes later, without comment.

Surely a good sign ?

Later, she went in again, this time without asking, a really good sign.

I hoped.

Two days later, the second PA was in the kitchen.

Some bad news, from the measured lady.

Our proposed ‘Mary Poppins’, had, on her first visit to Issy’s bedroom, sat on her bed.

Aptly, singing along to Issy’s Mary Poppin’s DVD.

Issy had probably told her to go, as she  did sometimes but then had pulled her hair which Issy rarely did.

Maybe this incident never happened it was an excuse as this young lady did not want to be part of spy and remove?

The truth can never be known.

A new PA had to be found.

All our meetings, Issy’s background, which she was ignorant of.

And common sense, had not stopped her sitting on Issy’s bed on a first meeting, and staying.

Our remaining PA was to come on Mondays and Tuesdays, but, no specific times or hours, were mentioned.

I suggested later in the morning, so the remaining PA, a sophisticated, polished, extremely affable young lady, promised to see me at 11 am, the following Monday.

She arrived at 11.20, and Issy was up.

Having been up all night.

She stayed in the kitchen, I made her a coffee, and chatted.

Issy came in three times for juice, and the PA left.

On Tuesday, she arrived later, about 12, and stayed just over half an hour, Issy was not up.

She said, she’d come on Friday, with the beads, she threads, which Issy might want to join in with.

The measured lady, rang on Thursday, asking if we could meet the next week, to discuss how things were going.

I updated her, and, that her PA was coming tomorrow. She said good.

But the PA did not arrive on Friday, so I thought she must have meant Monday, but she didn’t arrive on Monday either, and there were no phone calls.

She eventually arrived at 3.30 on Tuesday, with no mention of Monday, or Friday, nor why she was so late.

Issy, was still in bed, so she sat on her bedroom floor for half an hour, Issy told her to go, and she left.

On Monday the PA arrived at 12.40 pm and stayed 40 minutes, chatted over a coffee, and stood in Issy’s bedroom, whilst I tried unsuccessfully, to get her up.

She asked, if it was OK to come again around 7.00 pm sometime, but not which day.

I said she could drop in, whenever, she wanted to.

But she didn’t drop in not even on her designated Tuesday.

On Wednesday, within hours of us, relaying this to the social services complaint investigator, in a meeting about our formal complaint in June, the LA education coordinator, emailed me.

He had spoken to the measured lady that Monday, and,

‘She tells me that there has been some progress and the support worker is starting to build a relationship with Isabel.

Our aim is to introduce staff from Lodge, and eventually use this, as a base for Isabel’s learning.

Please let me know if you think we are able to accelerate this process or have any suggestions on how we may be more effective’.

In reply, I emailed back the specific times and outcomes of the PAs visits.

He emailed back.

’Thank you for the update and I will discuss with (measured lady). What do you consider to be most appropriate times to be engaging with Isabel at present?’

Such, is special needs ‘education’.