Autism and Deprivation of Liberty: The Shocking Tale of What the State is Doing

In addition to the thousands sectioned under the MHA, earning £13,000 a year from our cashstrapped NHS mainly now in private venture capital backed NHS hospitals, we also have hundreds of thousands held in various institutions – community living, nursing homes under Court of protection Mental Capacity Act Deprivation of Liberty Orders for life.

All their hearings, orders and services are secret on the grounds of confidentiality and their family is gagged from even mentioning them or their services and life .

At the time this article was published in 2014, it was estimated there would be 94,000 Dols LA applications, but in fact in 2015/16, there were 195,840. In a time of austerity this represents an average of over £6,000 per week payment for care from the NHS/LA with far more paid for ASD/LD deemed complex.

Dols allow every decision food, relationships, outtings, medication to be made by the for profit provider in what they think is in the  service user’s ‘best interests.

The deemed ‘incapable’ nor their family have any rights or even court representation as the COP appoints an Official solicitor to represent the incapable, funded by the state, but he invariably finds a person’s best interests is that chosen by the care provider.

Provided the service provider believe they are acting reasonably in a persons best interests they can effectively do what they like to  the service user for life and are not liable for their services under s5 MCA.

The LA/NHS who commissioned the services and would be liable if the services were inadequate oversee the services with a scant prescribed inspections from the CQC.

And the government has made it now much easier for LAs/nhs  to obtain DOLs which they are renaming LIBERTY  Safeguards

https://www.gov.uk/government/news/new-law-introduced-to-protect-vulnerable-people-in-care

Now the service providers via the CCGs will effectively control them and capture and control their own customers.

Planet Autism Blog

Deprivation of Liberty The Government created an Autism Act in 2009 for adults on the autistic spectrum.  Then it created an adults Autism Strategy (ironically entitled “Leading Fulfilling and Rewarding Lives”) in 2010, to remind authorities that there was an Autism Act and that they were meant to be adhering to it – just spelling it out sort of thing.  When people kept on reporting that things still weren’t being done as they were supposed to, despite the Act and the Strategy, the Government next created their “Think Autism” Strategy in 2014 just to remind them again (just how dense can these people be!).  What is all this achieving?  The Government can hold it’s hands up and say, “Look, we made a law for you, we did our bit, look how seriously we are taking this.”  …We all know what the term ‘lip service’ means though.

Some autistic adults are getting deflected…

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28 Comments

  1. Dear Alken st Augustines hospital have both staff and clinician have admitted to not being trained in autism Tey they paid 7 500 per week to.make.and jeep.my autistic son I’ll. After 3 months he lost his hair, his vision is blurry, his skin started peeling and his muscle started wasting, he now has tachardiya, parkinsonism tremors issue morbidly obese borderline diabetic, high colestrol and no longer recognises us so he is retarded.now they say they fixes him.if I did that to him I would be prosecuted but they paying the h to slowely but surely cause total organ failure.

    Reply

    1. Have you done what I suggested or tried to, What is happening to your son appears standard practice/gov policy and no one is stopping such appalling abuse.

      Words fail me at this horror please keep updating what is happening to him and please is there anyone reading this shocking comment can you help monaka and her son in his suffering and why are these people being paid 7500 a week by the NHS for this destruction of a person without any regard to his autism in breach of Autism Act, HRA. Equality Act and MHA.

      Reply

      1. In April my son had a ctr.
        There was reccommations that he was to be moved out into the community within a yr. Non of these recommendations were followed. St Augustines said these are simply recommendations not mandatory.
        We complained to HR. They arranged a meeting which was attended by Dr Lanka , Anita Fellows from ccg and Joe hemming from forward thinking birmingham. They all agreed that in line with the Transforming lives policy, my son would be moved to an acute ward close to home as so to prevent a further prolonged stay in locked up unit.
        My son was moved to woodborn priory in birmingham. My son settled down very well and the dr understood autism and was happy in treating him plus we were very happy to have him close to home. He appeared to have his spirits lifted. For the first time I saw him change , wash and talk.
        One week later lazy cpn turned up and before we knew it shifted him to anorther locked up unit in coventry hundreds of miles away. With staff that didn’t understand autism.
        Both dr and nurses said it weren’t in my sons best interests to be moved but it still happend .
        Now.my son wakes to eat then sleeps all day. I am devestated it’s a clear step back.
        Very sneaky actions of a lazy cpn who wants job title, money and not work. She said it wasnt a good setting but that this was the consequences of complaining.
        This is a woeful abuse of power by Tui Rosandale she works at Blakesley centre, for forward thinking birmingham.
        The nurses can’t understand why he was moved from an acute ward there. I think His liver is damaged now because as soon as he eats he straight away goes to tole and every thing comes strait out.
        I know he won’t come out alive.

      2. Thank you for being able to comment with your beyond distressing and horrific story of the abuse of your son.

        You must be beyond distraught as our many parents with children in ATU.

        This is not ‘treatment’ under MHA as clearly your son is getting worse physically and mentally. Have you tried using the hospital tribunal system to try to gain his release although he has to have a community placement under transforming care and as we know this is all about retaining the 13,000 a week he will be providing for his for profit hospital.

        It is difficult to know what to suggest and does not help that 3000 + are in a similar position and the government is doing nothing as its policy is mental services profit increase.

        What lead to his hospitalisation not that its needs more than a single crisis.

        All yours and your son’s human rights are being breached as is MHA and Autism Act and Equality Act but there is no point in laws if no lawyers or courts to enforce them.

        Please if you can update us here on what is happening to him I can’t begin to imagine your suffering and worry and wish I could help.

        Is there anyone out there who can help please get in touch.

        Thank you once again please stay in touch

      3. Thankyou for your kind reply
        You are right it has totally distroyed my son. Just don’t know what to do.I have Written and complained .I can tell you it don’t work.

        Cpns have powers and dr , and ccg listen .from my experience abuse only happens because others complicity allow it.
        The sadest part is before they took my son he wasnt even psychotic. he was a mild mannered well self regulated young 19 yr old. Looking for work and going college. He just didn’t look at anyone and didn’t speak much and now he is distroyed.
        It doesn’t make sence.
        Thank

    2. Could you let me know your son’s first name in case I decide to do a post about his beyond appalling predicament and how long has he been away from home and how did it happen ? I assume he was sectioned.

      Reply

      1. Hi, my sons first name is Ikram. He has been away from home for over 4 and half yrs.

        He was 19 when he was taken from me.

        My son was removed from me because I refused to give him voluntarily for randomised clinical trials .

        My son was known to Cahms as having aspergers. At 17 yrs I didn’t know why he lacked eye contact and didn’t speak I thought he would grow out of it so I went to gp.he got refered to youth services.everything was ok then at 18 a new adult team came and the new cpn kept on assuming my son heard voices.

        cpn David Marriot would visit my son and kept on giving him different and high doses of antipsychoytics this made my son slow down , and start to grimace and caused eye twitching i now know the drugs induced psychomoto retardation , college noticed it and home team told me my son was over medicated. I think David wanted to dilbratly remove my sons capacity.
        I told David to reduce the meds and not come .the meds were reduced and my son turned back to normal he went to gym , started to go to cinema, look for work and enrol into college. As a family and a community we had no concerns.

        Although I had stoped David CPN from coming it was asthough he had decided to tell the dr to section my son and I now believe my son was recruited for randomised clinical trials .

        Noori CPN said unless you start talking youll be sectioned. I couldn’t understand why he would be sectioned for not talking.

        Inspite of the fact that my son had done nothing wrong. This was a predetermined sectioning.

        Dr Cambel and David came and said they were going to assume my son heard voices. Later dr kholi and Launa Barney CPN said they were going to assume my son heard voices. I even got it recorded the second time.
        The fact is my son has never heard voices. He simply didn’t look at anyone or speak and couldn’t understand body language.

        Two dr called me to zinnia centre and said I should voluntarily give him in . so they could trial experiment medicine on him. I said no. Dr kholi then said if you willingly do not give him we will take him from you in a few weeks and displace you and appoint a social worker through the court to replace you. I said to him but my son isn’t a danger to himself or others so why would you take him .and why don’t we ask my son if he wants to agree to different meds being experimented on him .
        dr kholi said he was not going to ask my son because he didn’t have capacity.
        Actually if he had asked my son he would never have agreed to any experiemental medicine trial. My son didn’t talk much because this was part of his autism ,he had selected mutism. But he was well in touch with reality and had capacity.

        A few weeks later a taxi parked up and knocked our door. A lady told my son that she was going to take him to do activities. He at first declined but he was so simple and trusting and she convinced him that he would have a good time. He went with her and at 2:30 they phoned me from zinnia centre to say that they had sectioned him and was going to remove me from being his nearest relative. I screamed and cried down the phone and told them but he ain’t done anything wrong.
        They then made up a story that he had stabbed a patient with a pencil and was going to take out his eye . Later anorther nurse said he stabbed a nurse .then a senior nurse and ward manager Elezebeth scully said he hasn’t stabbed anyone but that don’t Matter as now we have him.

        My son was not violent nor liked being close to people so I found the story not consistent with his persnolity.

        I ran to zinnia centre dr kholi said it doesn’t matter whether he has or has not stabbed anyone you willingly didn’t give him and now we have him and there is nothing you can do. So go run ,run to your gp or to your mp no one can save him now. We have him now.

        My son was clearly very distressed but when I questioned him . He told me that he didn’t stab anyone .he had scribbled on a patients hand .because the patient had approached him and put his hand on his coulering and refuse to go even we he had told him to go.
        This makes sence because my son didnt like going close to people and liked minding his own buisness.
        They then sent my son like they were porning him from various hospitals around birmingham. Anytime an attempt was made by staff to work towards discharging him the Cpn would prevent it.
        After three months his eyes were rolled up in his head and he was shaking and drooling with slurred speach. The CPN said’ now that he has turned like this we don’t have to give you an answer.’ This suggests it had been done to others and they new they could get away with it.
        After a few weeks in Oleaster picu the staff said he had autism and was happy to spare 2 of the staff to take my son out of the high stimuli enviroment and escorts him home. The cpn David Marriot even agreed that my son was autistic. However Tui Rosandale CPN said even if you give 4 men we won’t let him out because he may not want to return. After 6 months at Oleyster hospital picu the staff said he has autism and called for a second opinion 2016. LATER THAT Year THE TRUST CHANJED hands to forward thinking birmingham and they not only lost any autism statements , but cpn also refuse to do the second opinion and instead he has spent over 3 and half yrs locked up in secure mental health units.
        The last unit didn’t even specialis in autism and instead called autism childhood schizophrenia and treated him with clozapin.

        He was a healthy athletic youth.who loved cycleing, swimming.
        Now he is not even a shadow of his former self . Confined to a starky plan room at best staring into the light , and at worst wondersley walking up and down the coridoors touching people. He is listless and depressed his hands and feet are cold and he is to week to open a bottle of water. His belly and face swollen and in a rash.he has high colestrol, tachardiya, parkinsonism tremors, liver damage and turned retarded.

        Who knows what lasting damage they have done.
        The hospitals get millions for research and I believe he is used for medical experiments.that is why they quickly move him away from dr or us family that seek to help him.
        Depriving us the family is one thing but ikram don’t even have the basic human comforts .he barely goes out .he is not allowed a mobile phone. And the treatment has no benifits to him just left him in pain and retarded.

        Tribunals are a fars and won’t even listen to ikram or the family and treat half misleading reports as the Gospel truth.

        This story is likely to be all to familiar to those parents who have experienced a loss of a loves one to the system in a similar manner.
        Parents across the UK need to reach out and expose the corrupt system that has ravaged families .
        Responcible good parents take their children to a dr pressed to find answers when they think something is not right . But no body goes to dr so they can make up symptoms then kidnap the person and subject them to medical trials.
        It’s an abuse of power , an infringement on the rights of the individual all in the name of medical advances.

        Mental hospital are testing grounds for contraverrsal treatments. Section 30 of the mental capacity act 2005 permits non therapeutic research and clinical trials to be carried out on non consenting mentally incapated. The saddest thing is that the mental capacity act is not even appropriate for autistics people due to their differences I. E .. a typical behaviours.
        S:30 ‘permits intrusive research to be carried on a person who lakes capacity to consent if it is (a) as part of a research project which is time being approved by the appropriate body….’ s:31 (4)(b) permits non therapeutic research that has no potential benefit to the patient, without the patients consent provided the research is.intended to provide knowledge of the causes of treatment, or of the care of persons affected by the same or similar conditions ‘.
        S: 30 (6)(a) the researcher assumes that the research is done in the patients interest and the carer is consulted’.s:32 (2).
        Some or many parents may not even be aware that the reason their loved one is getting better is be cut hey are just meat to be trialed on and that is why 3 autistic patients per week die in locked up units and as to date no one is ever bought to account.
        The law permits it hence , dr have a licence to kill with impunity. Thats why if they escape from the unit the police take them back even if they are not harming anyone.
        Perhaps if this story goes out many more will come forward as I am sure I am not alone. And I know this is the reason why the lipservice given I. E autism act and ctr are not always practiced.

      2. Yes my son was sectioned. I don’t know if I made that clear in my last post .it was a predetermined sectioning.

        Oh I also ment to say towards the end of.my last reply is that ‘ the reason they do not get better is because they are just meat’
        I hope that clarifies things .

      3. My sons name is Ikram.
        He is far away from home in coventry.
        There was no one real reason for his sectioning . Other than dr kholi and cpn David Marriot saying they wanted to trial different medication on him. This is something I didn’t consent to to allow.

        Two months before that there had been one isolated incident where he had spat on someone because he didn’t know why he was being stared at as he didn’t understand body language . From my understanding there had been nothing after that happend nor nothing before that. We had explained to him that when certain people stare it’s not always cause they givenyou dirty look .and you ignore it. He understood and nothing happened since.
        So no real reason for sectioning other trial medication was given to us.

  2. Dear Allen st Augustines hospital have both staff and clinician have admitted to not being trained in autism yet they paid 7 500 per week to.make.and keep.my autistic son I’ll. After 3 months he lost his hair, his vision is blurry, his skin started peeling and his muscle started wasting, he now has tachardiya, parkinsonism tremors is morbidly obese borderline diabetic, high colestrol and no longer recognises us so he is retarded.now they say they fixed him.if I did that to him I would be prosecuted but the NHS are paying the hospital to slowely but surely cause total organ failure and death.

    Reply

    1. If you lived in US MEDICARE funding would have been removed and you would be able to sue .

      I only hope someone reads about what is happening to your son and helps to stop this abuse . It is not right that it is allowed to happen and in secret . What a dreadful predicament for you both.

      Reply

  3. My daughter is being deprived her basic human rights. No SOAD. – sent to a profitable business venture – deprived of liberty – sleeping on floor/ settee to avoid bed bugs. This is Government abuse and its all about “proving yourself as CC – being more robust as to why institutional care is best. There is bo media reporting of the extent of abuse ans suffering as it affects everyone – no inspectors available at phso – then senior figures in my local area get involved – behind your back the most nasty things are being said and try getting a solicitor to back you – its all about profit and covering up their apalling treatment. 70 years celebrating nhs! Try telling that to the families of those who have died and those who have been bullied and treated like dirt and the Government is behind it.

    Reply

  4. All these institutions employ psychiatrists who are supposed to be the ‘responsible clinicians’ in these places. What is responsible about allowing your patients to be so badly and heavily medicated that they become so ill? Where are the meaningful activities in these places that supposed to be making them better?

    These patients are being systematically abused and because they have no power to object to or refuse these drugs. How on earth in a country like ours can this appalling abuse be ignored?
    Profit, profit, and more profit. Greed has become the overwhelming desire that has fuelled these horrific practices along with the ‘out of sight and out of mind’ government policy on people with LD. Only eleven MPs turned up at the ‘Transforming Care’ debate in the House of Commons. What more proof do you want on their complete apathy.

    Reply

    1. I c ouldnt have put it better myself and that is exact what I will be asking the stakeholders meeting on Monday, I will update you on what’s said.
      Only yesterday my son walked onto on coming traffic. Without meds he would have never done that. They say to me that now they have fixed him.my son has lost touch with Reay he now thinks his dad’s arnold swatznigger with our meds he was well in touch with reality and his sense. Please tell me do you know the names of the 11 MP that turned up. I want to see if my MP has showed up or not

      Reply

    2. Contain so many emails from. People telling me their child is being abused,ill-treated, ill cared for, even a child victim held in one of these money spinning homes, saying her life is over, they keep drugging her up so much her weight has doubled, she is desperate to go home, but powers to be stop that. Parent has tried so hard to get her home with her, to save her life. That’s the truth.

      Reply

      1. Phoned Dr Mirriam and asked as a responcible clinician what was responsible about medicating my son so heavily that he has become so ill that yesterday he walked onto oncoming traffic and he no longer recognises us.She said that’s a blip.so is him not recognising us a blip.? She also told me because of my complaint the entire hospital was now on an autism course, this was something that hadn’t happend in her 31 yrs in practice.she has never experienced this, don’t bring back the 2 and a half years my son was drugged to a stupor and still is whilst she trains on the course

      2. Can’t see how an autism course is going to help a person drugged to a stupor. Have you asked for a second opinion doctor as you are entitled to by contacting the CQC. Are you going to appeal to a Tribunal. Can you ?

      3. Yes asked for a second opinion. They are denying an independant second opinion, instead saying : (RC) dr mirriam said it will have to be one of her collegue’s. Forward thinking birmingham (CPN )said we can only use their second opinion doctors at early intervention .
        We now gone to his dr who will write to us and tell us whether he will get us an independant second opinion. Also found a solicitor” Tollu ” who says he is trying to get an independant second opinion.
        The problem is, who ever comes RC tells them he is on the right treatment and is miles better so they turn away and take her word as the Gospel truth.
        I simply Don’t get it .
        I phoned last night and they said they had to reduce his meds because of his blood count.so if clozapin is depleting his white blood cells so much that they had to temporally reduce his meds how is that miles better ?
        (RC)Dr mirriam says the antipsychotics are not altering his behaviour so he appears to behaving psychotic as thats how ikram is.
        She still won’t accept that it’s the meds that have taken him of Base line altered his mood and perception and conscience so much so that in his current presentation on meds he has lost touch with reality and says does things he otherwise would never have.How is that fixed.
        On Monday I will tell stakeholder in the meeting to please move my son from her as he will never get better under her. She has even barred my sons solicitor from attending the meeting. She said it’s about parents complaint not ikram.but our complaint is about the inappropriate treatment of ikram. I suppose she don’t want his solicitor to know that the last two years she and her team had archaic and limited knowledge of autism. I will keep yourselves posted .thanks for being here .

  5. Oh and I did contact CQC . They are not fit for purpose and simply said they can’t deal with individual complaints or cases .
    And solicitor said he is preparing for a scone opinion and a tribunal but it will take time.

    Reply

    1. So how does anyone get a second opinion doctor if CQC does not deal with individual complaints. What complaints does it deal with as all in ATUs are individuals. Meanwhile your son is destroyed by his ‘treatment’ and thousands of public NHS money is wasted on abuse which will then need rehabilitating..

      Reply

      1. True. As a parent it’s fustrating and takes the strength and will power from one.as I said CQC really isn’t fit for purpose. It’s job is just to teach hospitals how to cover up obvious flaws as they have done in my sons case.now hospital are a training course. I have also weiien to the gmc about the harm and suffering Dr mirriam has done to my son and how she is letting her whole team down with her limited knowledge which is outdated. It took 2 weeks for gmc yo respond now they want us to provide more information and signitures which will take God knows how many more weeks before they finally conclude whether they will investigate? ctr doctor , specialist in autism and interfacing between scitzophrenia and autism doctor at cygnet have all said dr mirriams knowledge is outdated yet gmc still needs to decide whether the case against her is seriouse enough to investigate. Let’s face it. it’s impunity and protection for psychtryrist .autistic patient life’s don’t count. Dr Mirriam said I shouldn’t complaint as she knows nothing will come of it. I have recorded her conversation. Norman Lamb Mp. Has done an article on the plight of these patients on 5 July 2018. It’s called ” it’s time to stop treating people with learning disabilities and autism like second class citizens” . I will also try and post a pettion which I made for my son. Please sign it and pass it on.

      2. True. As a parent it’s fustrating and takes the strength and will power from one.as I said CQC really isn’t fit for purpose. It’s job is just to teach hospitals how to cover up obvious flaws as they have done in my sons case.now the hospital is on an autism training course. I have also written to the gmc about the harm and suffering Dr mirriam has done to my son and how she is letting her whole team down with her limited knowledge which is outdated. It took 2 weeks for gmc to respond now they want us to provide more information and signitures which will take God knows how many more weeks before they finally conclude whether they will investigate? ctr doctor , specialist in autism and interfacing between scitzophrenia and autism doctor at cygnet have all said dr mirriams knowledge is outdated yet gmc still needs to decide whether the case against her is seriouse enough to investigate. Let’s face it. it’s impunity and protection for psychtryrist .autistic patient life’s don’t count. Dr Mirriam said I shouldn’t complaint as she knows nothing will come of it. I have recorded her conversation. Norman Lamb Mp. Has done an article on the plight of these patients on 5 July 2018. It’s called ” it’s time to stop treating people with learning disabilities and autism like second class citizens” . I will also try and post a pettion which I made for my son. Please sign it and pass it on.

      3. Hi.just to update those who have been following my sons case. (Ikrams)
        Met for the stakeholders meeting at St Augustines . Ccg was present as well as the lazy cpn. also hospital directors , managers and senior nurses. They denied that doctor had outdated knowledge, in spite of the fact that 2 of their own specialist and ctr doctor had intermated to me that calling autism childhood schizophrenia was old knowledge. They said dr mirriam is very experienced in autism despite the fact 2 days ago dr intermated to me herself she wasn’t experienced in autism and despite not calling for the statements of proffessor george that called for a second opinion (after my sons 6 month stay in Oleaster picu)cause he believed my son was autistic.
        I was told actually my son had a duel diagnoses, even though my son never heard voices . So we were asked what do you want we asked for him to be moved to a more appropriate setting close to home. They agreef to work.towards that soon .
        It was a clear cover up.cover up. Cover up of obvious failures. My son has lost 4 of the best years of his life .he is left with aeriouse medical problems.
        I hope he is placed in a setting that adheres to stomp Policy and brings my son to life. He looks like a balding 40 yr old and he is only 22 yrs old. I hope they get it right this time. Albeit I don’t trust anything the mental health service says.
        I will keep you posted of progress.

      4. Hi.just to update those who have been following my sons case. (Ikrams)
        Met for the stakeholders meeting at St Augustines . Ccg was present as well as the lazy cpn. also hospital directors , managers and senior nurses. They denied that doctor had outdated knowledge, in spite of the fact that 2 of their own specialist and ctr doctor had intermated to me that calling autism childhood schizophrenia was old knowledge. They said dr mirriam is very experienced in autism despite the fact 2 days ago dr intermated to me herself she wasn’t experienced in autism and despite not calling for the statements of proffessor george that called for a second opinion (after my sons 6 month stay in Oleaster picu)cause he believed my son was autistic.
        I was told actually my son had a duel diagnoses, even though my son never heard voices . So we were asked what do you want we asked for him to be moved to a more appropriate setting close to home. They agreed to work towards that soon .
        It was a clear cover up.cover up. Cover up of obvious failures. My son has lost 4 of the best years of his life .he is left with serious medical problems.
        I hope he is placed in a setting that adheres to stomp Policy and brings my son to life. He looks like a balding 40 yr old and he is only 22 yrs old. I hope they get it right this time.
        Albeit I don’t trust anything the mental health service says.
        I will keep you posted .

    1. Just checked out as much as I could on the net the Indeed Reviews are as they usually are in these places either too good or what appears nearer the truth see here https://www.indeed.co.uk/cmp/Witherslack-Group/reviews

      As always, as has happened with Community Living , Fostering they start off with small reasonably good services owned by effectively one individual here James Bowers and then it becomes commercially aware and the pupils become secondary particularly if they are getting long guaranteed contracts from the LA then these like with Acadia UHS will be bought up by the big guys or at least controlled by them. The profit motive with no competition or accountability will destroy the quality of the service.

      Reply

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