Britain, is a desperately depressing place, if your child is autistic or learning disabled.
As you look at your beloved son, or daughter, as you cuddle, and, struggle, and sacrifice, remember, your time together is short, and limited by the state.
Remember to, you cannot protect them, from that state,
And, that state affords them, no protection.
LB, Connor Sparrowhawk drowned in a bath, whilst having an epileptic fit, in an NHS Assessment and Treatment Unit, costing £3,500 per week, 4 staff to every 5 patients. http://www.theguardian.com/society/2014/mar/19/connor-sparrowhawk-death-nhs-care-unit-slade-house-learning-disabilities
Despite, a highly publicised, two year long campaign, and, hundreds of thousands of public money spent investigating, no one will, or, can be held responsible.
Stephanie Bincliffe, died at 25, weighing 25 stone, in her sleep of heart failure.
The known side effects of her anti- psychotic medication, weight gain, water retention, sedation, and, heart strain, were not mentioned.
Stephanie, spent the last two, of her 7 year, £4,500 a week,’ treatment’, in a padded cell, without being allowed out to bathe or toilet.
No effort made, to curb her weight, reduce her medication, for the two million, paid to the private company ‘treating’ her.
To be born an autistic cash cow, and, at 18 attack a stranger in a supermarket.
Shockingly the coroner found no neglect. So such treatment will continue and be hidden better as the industry grows and PR is perfected.
A similar fate, befell 20 year old Thomas Rawnsley, in an enforced under MCA, private Cambian Community Living ATU charging over £4,500 per week.
At 17, living at home,Thomas was medicated, became violent, was sectioned, then forced, to live in a supported living unit, where, he was physically and mentally abused by his ‘carer’.
This abuse, and PTSD, made him difficult to ‘care’ for, so he was medicated at a local Adult Treatment Unit.
With such a high dosage, a chest infection, made it impossible for him to breath .
And his brain, starved of oxygen, stopped his heart.
His mother, cannot reveal details of his Coroners Inquest, or this LA commissioned care, as Thomas, was subject to the secret Court of Protection.
Many, many more deaths unknown.
3 daily,torture, and, unbearable suffering, has, and is being hidden, simply because, it occurs, in a multimillion pound, unaccountable, allowed to charge what it likes, industry.
And, all the ‘investigations’, are by the very establishment, who commissioned, created, support and profit from this industry.
So, they will use everything in their power, to hide the truth, and, not to blame drugs or, state care. https://finolamoss.wordpress.com/2015/01/01/the-risperidone-scandal/
And the deaths, suffering, and, abuse will continue.
Unlike the USA, we do not have, an insurance based health and social care.
Although even in US private equity investment running disabled institutions has caused abuse see this https://newrepublic.com/article/125477/profit-abuse-homes-profoundly-disabled
But in the UK, we have no insurance company, with a financial interest, fighting for the vulnerable.
And private actions by parents are effectively impossible.
As parents, risk all assets even if the could find lawyers and experts.
Parents, therefore, have no means to ensure, profit hungry, private companies, ‘care’ for their children for life, let alone, allow them any quality of life, in now, the only adult services provision, of supported/independent living ?.
And the consumer of these services is declared legally incompetent by the very court,the Court of Protection that enforces the commissioned services of the LA.
Here, is the only information, I could find, on the rights of parents of autistic adults from the National Autistic Society Website.
‘ it is considered inappropriate for parents [ but not for corporate, profit making, parents] to make decisions on behalf of their children by this time in their lives’ [18, even if they have the mental age of a young child ]
NHS and Community Care Act 1990, says:
“The individual service user and normally, with his or her agreement, [not needed, if Mental Capacity Act ‘incapable’, as most autistics illegally are] any carers [ we assume this means parents,, not paid support ?] should be involved throughout the assessment and care management process. They should feel that the process is aimed at meeting their wishes.”
This means that care managers should consult parents when carrying out an initial assessment, and in recommending a PLACEMENT ( so your 18 year old cannot stay at home?)
but after that, your rights as parents are not clear.
at any time, you are not happy with the services provided and feel that they are not suited to your child’s needs, you can complain either through the complaints procedure [ internal, so parents will get nowhere, and, risk all access to their child ] at your ( how are they still yours? ) child’s placement
or through the local authority [as they are commissioning agents, parents, will get no where, as the LA could then be sued], if they are funding the care
That about sums up, parents rights, and, theirs, and their child’s future.
Parents have no rights.
Nor, do the disabled service users.
So enjoy your children while you can.
Transition starts at 16.
Strangely, NAS do not mention, parents can obtain an Lasting Power of Attorney, allowing them, to make decisions on behalf of their children, for the rest of their lives.
Or until the Court of Protection, overrides it.
Nor, your child’s right under the UN Article 12 Rights of the Disabled Convention, not to have all his decisions removed, because of his disability.
Or, his right to decide, where he lives, and be supported there.http://www.un.org/disabilities/default.asp?id=279
And, his right to make his own decisions, and, not to have them illegally removed under the Mental Capacity Act , and made by profit making private residential care provides in secret. http://www.un.org/disabilities/default.asp?id=272