Two social workers arrived on Wednesday 4th February .
The day Thomas Rawnsley’s life support machine was switched off, just a few miles away.
The day he died in enforced ‘independent’ living.
The adult social services lady, and our social worker.
We didn’t know why they were coming.
Issy was not in a good mood amidst cleaning, and tidying.
I now have the wonderful help of local family support group, who I googled.
Angel Eyes, a lovely lady, who has supported an autistic girl, a similar age to Issy.
I do not feel judged by her, nor does she watch everything I do, and she treats me like a human being.
I see genuine concern, in her eyes.
She also cleans more, and better.
My stress is relieved by all this, and I know, this is the support Issy needed, for so long.
A breath of fresh air.
And most of all, independent, or so I thought.
The social workers arrive at 1.30 .
Issy is in a better mood… I am beyond relief.
A skip had arrived that morning.
My husband came back from work.
We put Issy’s old bed and mattress, outside for the past 3 months, due to a warm car, snow, and not wanting it to put Issy off walking out.
We offer the social workers a drink.
Angel eyes has been replaced by another nice lady from the new support, and she attends the meeting in our kitchen.
They ask if they can see Issy in her bedroom.
I say probably better, if we hold the meeting first, and see if she comes in for juice, so she initiates the meeting .
And ask what Issy eats.
I say anything, and go to fridge, and show them the large chicken pies, which are currently her favourite.
I tell them what she ate yesterday, and say she doesn’t eat much during the day, maybe crackers and cheese, or toast.
Issy comes in for juice.
I get it.
On seeing the social workers Issy wets herself.
The social worker asks me what am I going to do about it.
I say, change her
And go and get new knickers and trousers.
Issy puts them on in her bedroom.
I resume the meeting.
Meanwhile, the lady form the support agency I found informs them of the facilities, and help they can offer Issy.
Issy comes in saying ‘coffee’.
I give her the decaffe.
They talk to her.
She ignores them.
She drinks her coffee in the kitchen.
She goes back into her bedroom shouting coffee, I jump up towards the kettle, she looks at me doing this, through the glass kitchen door, she says shut the door, I say shut the door, and she does.
This is her standard ritual.
The adult services social worker, asks if she drinks coffee, after coffee.
I say, ‘no that is just a mantra’.
So, ‘she does it for comfort’, she replies.
‘Then why does she do it ?’
‘Because she is autistic.’
They ask does Issy have clothes, should she want to go out.
I show them the new coat I bought for the purpose, they ask if she has proper shoes, I show her the boots she used to go out in, and the treds underneath.
The social worker asks what size her feet are.
I refer to the fact, that all these clothes, were given to the Lodge Lady, three weeks ago, and she had taken photos of them, on her iPad.
And Issy had been dressed in them, only two weeks before, on the road with me and the lodge lady, set for a walk, when frightened back by some giggling girls.
She replies they have to see them for themselves.
I say Issy read 6 pages of her Keyword book the Tuesday before, on the sofa in the lounge, before we waited outside for the nice affable lady, who didn’t turn up.
I tell them I videoed it.
They ask if they can watch, but I can’t get into the clip.
I offer to email it, but can’t as the LA has a firewall.
They ask about Issy’s bed, has it got springs sticking out.
I say they were never sticking out, but one could be felt, as she had worn down the mattress by banging up and down.
When I noticed it, I had turned the mattress over to the good side.
And then a day later, pulled out the guest bed underneath, pulled it up, and she used that for a month, and then we replaced it by a single bedded divan we had in another room.
This had now been her bed for the past 2 months.
The information for this concern, I assumed , was a comment from the trainee social worker to me in October about the matress, which I had responded to, in front of her, by picking the mattress up and turning it over.
The next week, the same worker had seen Issy sleeping on the brand new assembled the guest bed, and the mattress outside.
Thankfully, we delayed the skip, and the mattress was clearly visible with no springs sticking out, for them to inspect.
I must take a photograph before it is removed.
They then ask if the bed in the skip was the same one…….
They inspect the bathrooms, and go into see Issy in her bedroom.
They are back again next week, and weekly, for how long, we do not know.